Yearly Archives: 2013

living
Posted by Donna Steigleder - December 23rd, 2013

I’ve never been comfortable with strong expressions of anger. I’m the sort of person that prefers to compromise and resolve things peacefully so one of the more difficult challenges I have faced… READ MORE

living
Posted by Ashley Ringstaff - December 22nd, 2013

I know a lot of women with MS discuss/question if they should have children after receiving their diagnosis of MS. Well, I can’t say that I had to ‘make’ that decision because… READ MORE

living
Posted by Kim Dolce - December 20th, 2013

With Christmas only days away, I’ve racked my brain to come up with some sage wisdom to share about how to manage the stress of the holidays and realized that I haven’t… READ MORE

living
Posted by Steve Woodward - December 18th, 2013

Following my last relapse in the summer of 2012, I had a course of Cognitive Behavioral Therapy. I’d never had any kind of therapy before and I’ve always had quite a short-fuse (about stuff… READ MORE

living
Posted by Editorial Team - December 13th, 2013

Hundreds of stories from our community have been submitted and published this year. Here is a short list of some of the most memorable quotes. Click on the image quote to read… READ MORE

living
Posted by Ashley Ringstaff - December 11th, 2013

You’re probably wondering what in the world the title to this blog means… Well let me explain. I’ve found that I try and explain to others that every individual with Multiple Sclerosis… READ MORE

living
Posted by Laura Kolaczkowski - December 9th, 2013

A topic that comes up over and over in a variety of places on the web where people with Multiple Sclerosis gather and compare notes is the handicapped parking placard.  You know… READ MORE

living
Posted by Christie Germans - December 6th, 2013

Did you know that about 15% of the world’s population lives with some kind of disability? That means more than 1 billion people are facing all kinds of frustrating barriers: physical, social,… READ MORE

living
Posted by Steve Woodward - December 2nd, 2013

So here’s a thing I’ve been noticing more and more as I’ve been exploring websites with my MS Head on (aside from the fact that there are a LOT of MS websites/blogs/portals/news… READ MORE

living
Posted by Laura Kolaczkowski - November 22nd, 2013

Finally! There’s an answer and justification for my full closet.  A group of researchers at the University of Michigan recently published their results from a study testing whether shopping can positively affect our mood. … READ MORE

living
Posted by Kim Dolce - November 18th, 2013

There is a special place in my heart for guys who are unlucky enough to develop Multiple Sclerosis. We’re all unlucky to have this disease, but as statistics will bear out, our… READ MORE

living
Posted by Laura Kolaczkowski - November 16th, 2013

I opened my Facebook page on November 12 and was confronted with the following post from Patrick and Patti’s daughter, Megan  - “Patrick Leer passed away at home yesterday morning. It was… READ MORE

living
Posted by Ashley Ringstaff - November 14th, 2013

I find myself saying, “I don’t know” frequently when it comes to my MS when having discussions with family and friends… Here are some examples: Is your MS medication working? Are you… READ MORE

living
Posted by Laura Kolaczkowski - November 5th, 2013

A while back I wrote about the abuse of the generous policy at Walt Disney World to accommodate people with special needs.  It had been widely reported that their system to make… READ MORE

living
Posted by Ashley Ringstaff - November 4th, 2013

There is this popular article named the “Spoon Theory”… it was written by someone with Lupus, and trying to describe to her friend what it was like living with Lupus… while they… READ MORE

living
Posted by Nikki Kennedy - October 29th, 2013

Finding a job is never easy. Finding one in today’s economy is even worse. And finding a job with a progressive neurological disease like Multiple Sclerosis is like adding insult to injury…. READ MORE

living
Posted by Kim Dolce - October 27th, 2013

Ever wonder how far back in time people had MS? What they thought about it, and how they treated it? Naturally, our knowledge about MS in times gone by is heavily reliant… READ MORE

living
Posted by Laura Kolaczkowski - October 25th, 2013

How many of you have that moment you realize that something significant about you has changed?  I’ve been experiencing that moment over and over lately and am not quite sure how to make… READ MORE

living
Posted by Ashley Ringstaff - October 24th, 2013

Let me start off by saying, I’m not an ‘overly serious’ person. I like to make people laugh… and I try to keep things light hearted for the most part. Of course… READ MORE

living
Posted by Laura Kolaczkowski - October 22nd, 2013

Our caregiver expert, Patrick Leer, has been absent for a while from his writings.  Those of you who read his blog, at http://caregivinglyyours.blogspot.com and his writings here at MultipleSclerosis.net, know he has… READ MORE

living
Posted by Ashley Ringstaff - October 11th, 2013

**Warning: Long Personal MS Relapse Story** You know, when people learn that I have MS – they can’t “see” any disability physically (without looking REAL deep and longer than a few minutes)…. READ MORE

living
Posted by Christie Germans - October 10th, 2013

You might say that I was born to love cycling. It’s in my blood. My family, after all, was raised in a part of the world where everyone bikes around to school,… READ MORE

living
Posted by Ashley Ringstaff - October 2nd, 2013

** This blog is just a vent in general… it is in no way directed towards anyone or any certain situation. This particular blog post is FULL of sarcasm; you have been… READ MORE

living
Posted by Laura Kolaczkowski - September 30th, 2013

Not long ago there was a message on my voicemail to call the credit card company’s fraud department.  Thankfully, their surveillance system automatically caught the fact that wiring a large sum of… READ MORE

living
Posted by Laura Kolaczkowski - September 29th, 2013

It’s finally here –not just any book, but a book about MS, written by people who know Multiple Sclerosis the best – patients and caregivers. Last year, a creative writers group named… READ MORE

living
Posted by Kim Dolce - September 24th, 2013

What is this, you ask? A sequel to Michael Crichton’s blockbuster sci-fi thriller, The Andromeda Strain? Hardly. That little dickens was a rogue airborne microbe from outer space that crystallized blood and paralyzed… READ MORE

living
Posted by Laura Kolaczkowski - September 22nd, 2013

My neurologist was saying  that his young children are learning French and are able to carry on a conversation in the language even though they have barely begun their elementary years. It… READ MORE

living
Posted by Ashley Ringstaff - September 19th, 2013

Okay, let me just start off by saying… I don’t embarrass easily. I’m a very open person… and I don’t usually care what people think. But let me tell you what happened… READ MORE

living
Posted by Ashley Ringstaff - September 12th, 2013

I think it’s well known that multiple sclerosis has MANY “mimicking” diseases… such as Lupus, Rheumatoid Arthritis, and many others… I was not diagnosed with any of those prior to getting my… READ MORE

living
Posted by Nicole Lemelle - September 9th, 2013

Everyone can look back 5 years and say wow I was so different then. We can all remember the things we did years ago that we are not able to do now…. READ MORE

living
Posted by Ashley Ringstaff - September 2nd, 2013

So I’m gonna have another “vent” post… and I hope I’m not alone with what I’m about to discuss. Have you ever had someone tell you, “I think you’re exaggerating” or “I… READ MORE

news
Posted by Laura Kolaczkowski - August 31st, 2013

Multiple Sclerosis patients are again seeing headlines about a disease modifying drug causing Progressive Multifocal Leukoencephalopathy, or PML, in a patient – this time that drug is Gilenya (fingolimod), the oral pill… READ MORE

living
Posted by Laura Kolaczkowski - August 22nd, 2013

I have worked a school calendar schedule for 23 years and relish every day of my summer vacation as much as the students. I have the good fortune of being able to… READ MORE

living
Posted by Patrick Leer - August 14th, 2013

Sitting in the waiting room I listened as Patti reinvented the boundaries of cursing, swearing and yelling even with her own daughter trying to help before another mammogram bit the dust …… READ MORE

living
Posted by Laura Kolaczkowski - August 11th, 2013

On the recommendation of my neurologist, I had  Botox treatment last week and may now have a very young looking bladder after receiving 200 units through injections.  This is a relatively new… READ MORE

living
Posted by Kim Dolce - August 9th, 2013

Romantically speaking, MSers fall into one of four categories: Happily married, in a complicated relationship, happily or resignedly single, or single and looking for love. Separated from my husband for nearly a… READ MORE

living
Posted by Patrick Leer - August 8th, 2013

Palliative Care does not leap out as something associated with MS. Yet in reality ‘palliative care’ is medical care provided by physicians, nurses and social workers that specializes in the relief of… READ MORE

living
Posted by Ashley Ringstaff - August 6th, 2013

I don’t know if it’s just me, but whenever I have an MRI and learn that I’m progressing and/or when I go into a flare, it feels like I’m dealing with being… READ MORE

living
Posted by Ashley Ringstaff - July 31st, 2013

So, I was very excited/nervous to start Tecfidera. After taking 3 other medications and them not working out… I hadn’t been on any medication for a few months. So, for the first… READ MORE

living
Posted by Editorial Team - July 14th, 2013

Although severe cognitive impairment only affects a small group of people with MS, up to two-thirds of people with MS notice some problems with the thinking process. This may include memory, communication… READ MORE

living
Posted by Laura Kolaczkowski - July 5th, 2013

Philosophers have long proclaimed that music soothes the soul.  There are many written references that romanticize the healing power of music. In 1697, William Congreve, a British author, wrote the play The Mourning Bride, about… READ MORE

living
Posted by Editorial Team - July 3rd, 2013

Several weeks ago we asked our Facebook community members to help us finish this sentence: In a word – Living with MS, I get my inspiration from ________. The results were overwhelming… READ MORE

living
Posted by Laura Kolaczkowski - July 2nd, 2013

There was a recent discussion on multiplesclerosis.net, started by a person who is trying to navigate the emotional pitfalls of caring for someone who is living with MS.  This friend’s friend had just undergone multiple… READ MORE

living
Posted by Patrick Leer - June 20th, 2013

Mobility is archetypal yet with Multiple Sclerosis as ambulatory symptoms progress, falling becomes the dominant danger while contractures are the stealth enemy lurking inside the solution. Lacking a National Health Service, here… READ MORE

living
Posted by Ashley Ringstaff - June 17th, 2013

I’ve heard a lot of things since I’ve been diagnosed with MS. Some of them are like, “Why don’t we have a ‘famous’ spokesperson for MS to represent the MS community?” Well… READ MORE

living
Posted by Nicole Lemelle - June 15th, 2013

  “We learn the inner secret of happiness when we learn to direct our inner drives, our interest and our attention to something besides ourselves.” - Ethel Percy Andrus Some days I am… READ MORE

living
Posted by Patrick Leer - June 13th, 2013

‘Unicorn in a cage’ was a popular phrase in the late 80’s early 90’s to motivate MS fundraising before maintenance meds signifcantly changed the focus for some. Living with MS as a… READ MORE

living
Posted by Cathy Chester - June 11th, 2013

Stress and MS is a subject I could write volumes about.  Over the past 26 years I’ve written about the importance of utilizing stress reduction techniques more than a dozen times.  But… READ MORE

Posted by Ashley Ringstaff - May 31st, 2013

We all know that MS is a complicated illness to live with… so how do we even begin to explain it to our family and friends??? There is a very popular article… READ MORE

living
Posted by Laura Kolaczkowski - May 23rd, 2013

The credit card company sent an email at 3:30 AM asking me to call them because they believed my account had been compromised and fraudulently used. Now I don’t know what makes… READ MORE

news
Posted by Laura Kolaczkowski - May 18th, 2013

I’ll publicly admit as a child I did some stupid things – fortunately they didn’t cause permanent damage and I have the ability to still laugh at most of them. One of… READ MORE

living
Posted by Laura Kolaczkowski - May 14th, 2013

Have you taken the time to look through the stories of Multiple Sclerosis being told on this site? The number of people sharing their story on Multiple Sclerosis.net is growing. Everyone’s experiences… READ MORE

living
Posted by Laura Kolaczkowski - May 10th, 2013

In 2008 I had a myocardial infarction due to vasospasm of unknown origin. In other words, I had a heart attack that couldn’t be explained through normal reasons and tests. My arteries… READ MORE

living
Posted by Laura Kolaczkowski - May 2nd, 2013

Some of the terminology in  Multiple Sclerosis bothers me a lot, particularly because we don’t have our own medical vocabulary and many of the words we use  don’t clearly tell what the… READ MORE

living
Posted by Cathy Chester - April 17th, 2013

Who ever thought we’d be injecting ourselves with medication for some strange disease called Multiple Sclerosis?  Growing up, no one thinks about illness or medication or autoimmune diseases.  Girls think about skipping… READ MORE

living
Posted by Laura Kolaczkowski - April 11th, 2013

The headlines alternate between confusing and frightening.  Annette Funicello, the Disney Mouseketeer and also Frankie’s Beach Blanket Sweetheart, passed away this week at the age of 70, and the headlines are saying she died… READ MORE

living
Posted by Nicole Lemelle - April 2nd, 2013

My 20th Year Class Reunion is around the corner this June. Now under most circumstances this party conjures up a plethora of emotions among the best of us or shall I say… READ MORE

living
Posted by Laura Kolaczkowski - March 29th, 2013

Diagnosing and treating MS always includes questions about balance because that is a common problem, and the doctors regularly ask about any recent trips or falls. This is a disease that can make even the strongest of us walk at times like we have been on an all-night bender, weaving left and right to get to our goal.

living
Posted by Nicole Lemelle - March 28th, 2013

I have added a new activity to my repertoire! Therapeutic horseback riding or hippo-therapy! Have you heard of it before? I certainly had not. Though I live in the south, riding horses… READ MORE

Posted by Patrick Leer - March 25th, 2013

“How do you deal the envy you may feel toward others who lead seemingly “normal” lives?” Frankly I couldn’t even tell you what ‘normal’ is anymore. People who devote their life to… READ MORE

news
Posted by Laura Kolaczkowski - March 23rd, 2013

It caught me by surprise when I read the NMSS headline: “National MS Society-Supported Studies Point to Possibility that Dietary Salt May Stimulate Activity of Key Immune Cells Involved in MS Attacks.”… READ MORE

living
Posted by Nicole Lemelle - March 21st, 2013

I just realized I submitted my first blog post on this very new site www.multiplesclerosis.net without first formally introducing myself! Please excuse my obnoxiousness. I am Nicole Lemelle of www.mynewnormals.com and I… READ MORE

Posted by Laura Kolaczkowski - March 17th, 2013

More than a few people have told me their story of how Multiple Sclerosis has affected them and their relationships.  At those times when MS gives me the blues, I think of… READ MORE

Posted by Patrick Leer - March 16th, 2013

Marriage is a coin flip in the USA with half of all marriages ending in divorce. Living with Multiple Sclerosis is certainly not going to improve the odds of success. Back in… READ MORE

Posted by Lisa Emrich - March 15th, 2013

As with many autoimmune diseases, the exact cause(s) of multiple sclerosis is still unknown. However, research has identified contributing factors including genetics, the environment, and our immune system.  There have been theories… READ MORE

Posted by Nicole Lemelle - March 14th, 2013

“Our greatness lies not so much in being able to remake the world as being able to remake ourselves.” –Gandhi 

In order to make a difference I’ve gotten more involved with my… READ MORE

living
Posted by Laura Kolaczkowski - March 13th, 2013

Perusing MultipleSclerosis.net, my eye wanders to a heading at the top of the page that asks ‘What is MS?” and I immediately thought ‘now that’s the million dollar question!’ Beyond being the… READ MORE

Posted by Laura Kolaczkowski - March 12th, 2013

It can be annoying when a child around the age of 5 discovers the joy of repeating a knock-knock joke over and over – we continue to smile each time it is repeated and we laugh to encourage their engagement with learning this social skill.

Posted by Cathy Chester - March 7th, 2013

 “Let’s start at the very beginning.  A very good place to start.” ~ Rodgers and Hammerstein, “Do Re Mi” from “The Sound of Music” Welcome to the exciting launch of MultipleSclerosis.net and… READ MORE

living
Posted by Laura Kolaczkowski - March 6th, 2013

Look around the calendar and you will find the months littered with colors, all intended to raise awareness for a specific cause. You would have to live under a rock to not… READ MORE

news
Posted by Editorial Team - January 6th, 2013

Welcome to MultipleSclerosis.net, the newest resource for patients and caregivers living with multiple sclerosis. Multiple sclerosis can have an enormous impact on the lives of patients and their loved ones. Whether you were… READ MORE

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