kayleighhill
We know most people mean well and are trying to be positive, uplifting, or helpful but sometimes, those messages fall flat and completely miss the mark.
What have you heard someone say that should NOT be said to someone with MS?
Conversely, please feel free to comment with a rephrasing of what someone could say instead.
sbyrd2 Member
AjHooves Member
Alene L. Brennan, RYT Moderator & Contributor
Best
Alene, Moderator
mtoddh Member
DON'T DO THIS:
When I inform friends, family, co-workers of this bad MS news, they all feel compelled to tell me the story of someone they know (or knew) who was stricken with this. Some tell me about how well this person has coped with this, others have feel it is their responsibility to tell me about the terrible life their person has or had.
DO THIS:
The most expectable response is to express your sadness and concern.
Offer any and all needed help to them, reiterating that you don't know much about their case of MS.
CommunityMember0ee1f2 Member
People have heard about MS but they automatically think of a wheelchair user.
No MS sufferer is the same. But we are all on a journey of educating others about it🥺
marshay Member
tess0714 Member
@mtoddh, Even my new PT people said Oh, my moms friend has had MS all her life and she deals just fine. I know how hard it can be.
Ummm…know ya don’t!!
cherip Member
I wish I had a dollar for every time I've heard "you don't look sick" or "I know someone who lived a full life, like she didn't have MS. How bad can it be?" I could pay off the National Debt! I've even gotten dirty looks when I use my handicap parking permit! I think to myself, "Come back in an hour and watch me crawl to my car."
marshay Member
kayleighhill Community Admin