A Caregiver's Perspective: Am I Competent to Do This Job?
I earn a living by working in a hospital in the department of Human Resources. Hospitals are heavily regulated and one of the most stringent agencies who monitor us is The Joint Commission. One of the standards they have for human resources is that it’s our responsibility to determine if the people we hire are competent enough to safely do their jobs. I won’t bore you with the details on how that’s done but in working on a project related to competency determination today, I thought about what competencies are required to be a family caregiver. It’s not an easy job but for some reason insurance carriers and the government seems to believe that any family member should be able to be a caregiver.
Just before my father-in-law died last month, I was attempting to assist my mother-in-law in finding someone who could take care of him if he was discharged to hospice care. We discovered that once a person is deemed not to be able to improve but instead just needs comfort care or maintenance care that Medicare and insurance companies no longer pay for help regardless of the health and well-being of the family member responsible for his care. My mother-in-law is near 80 and has myasthenia gravis, a neurological condition that makes all her muscles very weak. She cannot lift or move anything more than a few pounds in weight. There was no way that she could provide care for her spouse; however, that factor was not considered by insurance and she was unable to get any type of financial assistance to bring someone in to care for him or to place him in a skilled care facility. Why? Because insurance said he did not need skilled care; just palliative care.
I’ve found the same is true for someone who is totally disabled and cannot improve their health, like Lynn. His MS has progressed to secondary progressive and he can do nothing physical for himself; not even scratch an itch. He is an author and writes manuscripts with the use of a verbal command program that writes what he dictates. It’s slow going but it keeps him productive and fortunately, so far his memory has not been affected by the disease. With Lynn needing total care and my needing to work full time to pay the bills, I looked for help that we could afford. I now pay an individual to work six hours a day 2-3 days a week to assist him with typing, feed him, and make sure he has liquids to drink. I provide all the rest of his care. Am I competent to truly care for him? What type of competencies do I need to keep him safe and healthy? If someone was to apply for my job, what would my job description as a care giver look like?
Caregiver Job Description
Experience or Education Required: None required; you just need to be related to the person to whom you are providing care. However, experience in providing mental, physical, and emotional care to someone who has been disabled is preferable.
- Ability to lift 193 pounds independently using only a transfer belt
- Ability to reach, push, pull, shift, and adjust 193 pounds into various positions
- Ability to work 19-20 hours a day non-stop and adapt to being awakened at least once during the 5 hour sleep cycle to provide care for 15 minutes
- Endless energy (may be supplemented by food and/or caffeine)
- Ability to put self in second place in order to meet needs of the one being cared for
- Emotional stamina required to not dwell on what’s been lost, face the fear of the future, to battle the loneliness of feeling alone in an occupied house, and the ability to help the one with MS cope with his own emotions and similar concerns
- Ability to adapt to constant muscle aches, spasms, and/or muscle strains and to continue working even when ill
- Ability to assess the physical, emotional, and mental status of the family member needing care
- Ability to relay details of above when something’s not right to help the health care provider be able to determine what’s wrong with the family member’s health and what should be done
- Ability to research medical symptoms, caregiver tips, medication administration, insurance documents, house and care maintenance, and a vast number of other things you have no idea about but must now do
- Ability to problem solve and make decisions
- Ability to provide emotional support and mental health care
- Ability to manage money and other finances
- Self-sacrificing love
- Ability to do all things, be all things, endure all things until your services are no longer needed or you physically can no longer provide them
Now, if that job description was posted in the paper, how many people would apply? How much salary would be expected? How much prior training and experience would be required? But, as a family member, you do the job with or without experience, with no pay, perhaps with no experience or training and you do it with the love of one family member for another. There is no greater gift to give than to give your life for another—that’s your reward, the gift of giving love.
How well do people around you understand MS?