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The Need to Feel Productive

One of the struggles we have had to address with Lynn’s MS progressing so rapidly at one point was the loss of his feeling useful. Lynn was very strong, flexible, and talented all of his young adult life. Then over the course of three years, it seems he went from having the ability to build his own home (drafting the plans, laying the foundation for a full basement, toting, lifting, hammering, shifting, etc.) to not being able to have the strength to push a button on a keypad. He was the supervisor of a fabrication shop that designed and built displays that were the size of small houses. He was a very talented carpenter, but he could do just about anything related to construction and was even good at auto repair.

He was not going to acknowledge that he needed help

Unfortunately, just as his MS was progressing to the point that his work was being affected, his company closed the fabrication shop. He was still in the state of mind that he was not going to acknowledge he had MS and needed help so he did not apply for disability; therefore, he lost access to that financial assistance. He was convinced that if he didn’t own “it (MS),” then “it” had no control over him. Though I tried to explain that he could and should fight to keep all of his functions intact and working well, he did not want to accept that disability insurance and other resources were there to help in that fight, not to prevent him from doing what he could on his own. But, my husband is very stubborn. Enough said on that.

Discovering a new passion

While Lynn struggled to continue to “work,” being a carpenter doing physical labor is not safe when you lose your balance and fall often. Also, if hands and fingers don’t grip well, then use of power tools is dangerous. He realized after a couple of close calls that he needed a new line of work. His son suggested he start writing because he seemed to have a talent for it and enjoyed using his imagination. He started with short stories but soon had an idea for a novel. He found that he loved to write, and it became his new job. He had his first novel published (Rising Tide) in 2009, just before his physical spiral downhill resulting in months of hospitalization.

A need to feel productive

After his third hospital discharge in six months, he was very weak; however, he continued to want to write. He NEEDED to write because he NEEDED to feel productive. As a man, Lynn had to feel needed and productive to feel he mattered. Actually, don’t all of us feel that way to some extent? No one wants to feel like a burden. People have a need to contribute and when they can’t, depression sets in and health starts to deteriorate. Therefore, I realized that part of my role as Lynn’s caregiver would be to help him work and be productive. I needed to find a way that he could write daily that would still allow me to work. It’s often a challenge and can be very frustrating for both of us.

One-finger typing to voice recognition software

Initially, Lynn did all his writing with one-finger typing. It took him hours to write a paragraph because his lack of strength in his arm made maneuvering around the keyboard difficult. He also would become very tired after short writing sessions. We decided to ask friends and family come in to write for him which worked out wonderfully. However, all too often, they had to cancel coming for various reasons, and he would go back to the one-finger technique. That technique is also very difficult if you need to hold down two keys at once. Finally, I decided to have him try Dragon software. Using voice recognition software can also be very frustrating because it often does not recognize what he is saying. If he’s very tired, his voice slurs, and it sounds very different from his usual speech pattern.

An outlet for his creativity

However, even with all the frustrations, Lynn has a job that he goes to every day. He has now written four novels and is working on his fifth though only one has yet been published. He looks forward to writing. He likes to be able to say his occupation is “author.” It gives him purpose, is an outlet for his creativity, and it gives him something productive to do for the long hours between waking up in the morning and going to sleep at night. It also keeps him busy and keeps him from calling out to me so often for things that bother him just because he’s bored (meaning he does not notice them as often when he’s busy).

My role in helping him to work

Needing to work is fundamental for most people, and as a caregiver, I see part of my role is helping him to work, to be productive, to feel useful, and to feel he contributes. At times, it feels like I have two jobs to go to on a daily basis–my job and his job. In many ways, I guess that is true. Now…if only he could find an agent to help get these other books published so he didn’t need me to help with the marketing…(that’s another story for another day).

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The MultipleSclerosis.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • Laura Kolaczkowski
    6 years ago

    I wish I knew an agent or two – instead have you thought of self-publishing through Amazon? Many successful authors have begun (or continued) that way. The need to be productive resonates with all of us, whether it is a paid job or doing things that make us realize our contributions matter. best, Laura

  • Jackie
    6 years ago

    I think it’s wonderful how you have been able to help your husband. I have had MS for 30 yrs and don’t get around as well as I used to. My children are adults and my retired husband has to help me care for myself. I do feel that I’m a burden and depression often grips me. I try hard to find ways to be productive but it’s a daily struggle. Thank you for sharing your story.

  • Donna Steigleder moderator author
    6 years ago

    Lynn feels that way at times, especially when I’m struggling to do a”man’s” job like repairing something mechanical. When that happens though I try to remind him of how he DOES help me. He provides advice, he’s my confidente and encourager. He can’t do much physically anymore but his very presence in our home provides me with comfort. I’m sure the same is true for you and your husband. Best wishes to you both.

  • carebear3510
    6 years ago

    I felt like I was reading my own story with my struggles for the need to feel productive. I used to volunteer, but people hurt me with their comments & lack of support. Now, I’m back to that struggle of feeling useful. Thank you for this blog!

  • Donna Steigleder moderator author
    6 years ago

    I think most people want to feel useful and need to work. It’s difficult when life’s events whether illness or injury, take us away from being productive in the way we are most comfortable but I think it’s important to find some way to get that back. Volunteer work is a good way but sometimes doing things online, calling shut-ins, sending letters of encouragement, reading to children, any number of options migh be available to find some way of giving to others. I think it helps with depression and an overall sense of well being. Good luck to you in your search.

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