Achieving Psychological Wellbeing in Multiple Sclerosis
The editorial team at MultipleSclerosis.net is working with a team of health care providers from the University of Massachusetts Medical School to advance their research about how MS impacts mental health and psychological wellbeing. We do our best to promote academic research when it can benefit and provide insight for the MS community. Continue reading to learn more about this project.
A life-long autoimmune disorder
Multiple sclerosis (MS) is a life-long autoimmune disorder that is characterized by the presence of inflammation in the brain and spinal cord. It affects several aspects of the nervous system, including motor and sensory functions. Some of the symptoms caused by MS include weakness, fatigue, walking difficulties, pain, tingling, numbness, vision changes, bowel or bladder impairment, and sleep and mood disturbances.
MS and mental health
Symptoms of MS can intrude upon activities of daily living and result in a lower quality of life. Individuals living with MS may also experience role changes among family or at their places of work which may put their self-identity and self-esteem at risk. Researchers estimate that approximately half of people living with MS will experience clinically significant depression and more than a third will meet criteria for an anxiety disorder in their lifetimes. There is however still much more to learn about how mental health professionals can work with individuals living with MS and their MS-specific providers on providing personalized, culturally appropriate mental health care.
Help us achieve personalized psychological wellbeing in MS
We are a group of health care providers interested in promoting the psychological well-being and mental health of every patient with MS. We would like to better understand how people with MS from different backgrounds think about and experience mental health. This study is part of the University of Massachusetts Medical School.
If you are over 18 and have MS, we invite you to complete the research survey below and share your thoughts with us. Everyone is invited!
Have you ever experienced a "weird" symptom and wondered if others with MS have experienced it too?