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Does this sound like ms and does anyone experience similar symptoms?

Hi, I'm a 14 year old female and I've been dealing with a wide variety of weird symptoms for around 2 years, but some of my symptoms have recently appeared. I'm diagnosed with lumbar degenerative disc disease, vocal cord dysfunction, polycystic ovarian syndrome, asthma, mitral valve prolapse, paraspinal muscular atrophy, and innapropriate sinus tachycardia so im not sure if any of my symptoms could be related to these conditions. I got told by my orthopedist that he thinks I have an autoimmune condition so I have an appointment with a rheumatologist in 6 months, I have family history of lupus so I was pretty sure I had the neuropsychiatric version of it but now I'm thinking it could be ms... my symptom list is:

Constant muscle jerks and twitches

Numbness and tingling in ring and pinky finger on both hands, tingling and numbness in toes

Bladder incontinence

Joint and muscle pain

Pinpricks/itching/tingling feeling near ribs and spine

Memory problems

Severe chest pain

Sensitive to cold

Vertigo, dizziness and feeling like I'm floating when lying down

Very clumsy, bumping into things and dropping stuff.

Is there anyone who experiences anything similar and could it potentially be MS? I'm going to my neurologist in 3 days to see what she thinks. Any advice would be appreciated and i hope everyone is doing well!!🙏

I also have a positive rombergs test.

  1. Hi Zadie. I am 77f and very impressed with your precise medical history. Very sorry as a young person you are going thru so much. What your neuro say? MRI? Was your neuro exam helpful. Pls respond if you'd like. Best wishes from nyc

    1. that's certainly a lot of symptoms to be dealing with, especially at such a young age. It sounds like you have a very strong understanding of the diagnoses that you've been given and the symptoms that you're experiencing. Your ability to clearly articulate this will really serve you well as you've continue to meet with doctors. It's something that I've learned over the years and has been really helpful.

      While we can't give medical advice here on the site, it sounds like you're taking all the right actions to get a proper evaluation of your symptoms. Meeting with a rheumatologist and neurologist will be really helpful for you, I'm sure. They can provide in person evaluations that will give you more personalized feedback that's unique to you - which is exactly what you want.

      Here's an article that you might find helpful, it's all about preparing for your neurologist appointment. https://multiplesclerosis.net/living-with-ms/preparing-for-your-neurologist-appointment

      And here's one on doctor/patient communications. https://multiplesclerosis.net/living-with-ms/tips-patient-doctor-communication

      Please keep us posted as often as you feel inspired and comfortable in doing so. We're thinking of you and hope that you get the answers that you're looking for soon.
      Best
      Alene, Moderator

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