caret icon Back to all discussions

I have had MS for 35 plus years

I have tried all sorts of mediation prescribed by my doctor. I still get neuralgia in my face when I shave or brush my teeth. Pain is so bad ,it feel like a electrical current shooting in my face. The neurosurgeon wants to try the operation called MRgFUS. Has any body tried it if so how succesful was it

  1. This symptom sounds awful and I'm sorry you are experiencing such pain with no results. Medications/treatments are different for everyone and of course what works for one may or may not work for another. MRgFUS is something I never heard of before, and I wonder what the safety, results other factors are about this. It would be interesting to hear what others have to say and of course, your MS specialist. All the best, Debbie (team member)

    1. MRgFUS is a fairly new procedure recommended by Dr. Kiss of Calgary. She works closely with Dr Patry my MS specialist my doctor doctor in Calgary. Dr. Patry put me in contact with her. MRgFUS does not use surgery of any kind ,just radiation

      1. Hi . I believe the use of MRI-guided focused ultrasound for treating trigeminal neuralgia is still in the clinical trial stage, but it might have been recently approved. It's noninvasive, so it might be worth trying, if it doesn't leave you broke. Would insurance cover it for you? If you do decide to try MRgFUS, could you let us know how it goes? Wishing you the best! - Lori (Team Member)

    or create an account to reply.