When being diagnosed feels wrongHey everyone! I'm new to the forum, I'm 20 and I was diagnosed one year ago. As you can see from the title, my diagnosis feels wrong. Unfortunately I'll have...Reactions 0 reactions Comments40 repliesCoping
Learning to talk againOne of the more frustrating issues with this disease is the ability to communicate. I love to talk. To talk about anything really. Be it a movie I saw, the...Reactions 0 reactions Comments10 repliesCoping
Is it all in my head?Quick background, August 2017 I went numb from the waist to my toes... Lesion found... Termed it transvers myelitis... Tested positive oligoclonal bands in spinal fluid. Fast forward to July...Reactions 0 reactions Comments8 repliesCoping
My Mom My Worst EnemyFor a year now my Mom has been experiencing dementia/schizophrenia events. She lives 11 miles away but that does not hold her back. She can call 24/7 cursing me, accusing...Reactions 0 reactions Comments3 repliesCoping
FrustratedAfter 5 years of coping with RRMS, the DX was upgraded to PPMS. First a cane, then a rolater, and finally a wheel chair. I am blessed to have great...Reactions 0 reactions Comments9 repliesCoping
NMOSDHello, I have new and recently been diagnosed for NMOD and wanted to check with anyone if there was an NMOSD specific discussion forum? My blood work showed positive for...Reactions 0 reactions Comments1 repliesCoping
Necessary lifestyle changes??I'm recently diagnosed and about to start treatment. My husband has jumped into overdrive and wants to put me and our family in a bubble. We have been taking COVID...Reactions 0 reactions Comments1 repliesCopingNewly Diagnosed
MS coming out party!Hi everyone! I am a "brand nee ms baby"! Although I have suffered with this for almost 20 years, I finally was able to get a diagnosis!!! Yeay me!!! I...Reactions 0 reactions Comments2 repliesCoping
MS or NMO?Hi, for around 3-4 years I have seen a succession of neurologists who say I have NMO, and others who say I have secondary progressive MS. It is quite confusing...Reactions 0 reactions Comments3 repliesCoping
Undiagnosed yet symptomaticDoctors for years have considered the fact that I may have sclerosis yet none have officially tested for it, I woke up today with no feeling from the waist down...Reactions 0 reactions Comments6 repliesCoping