10 Tips on Managing MS Fatigue

10 Tips on Managing MS Fatigue

Multiple Sclerosis fatigue affects us in our daily living. At times (or all the time) we perform one or two tasks, and then feel completely exhausted the rest of the day. The remainder of our daily responsibilities go unmet because we are simply too tired to complete them.Here are some ways people try to manage their fatigue. As with anything, consult your doctor about your fatigue, and discuss any medications, alternative therapies or over-the-counter drugs you are considering.

Read Cathy Chester’s original post here.

Managing MS Fatigue

Exercise

Exercise

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  • PetieJ
    1 year ago

    10 minutes of exercise??!! OMG! I have a friend’s Total Gym shoved up under my bar and had been using it almost daily. Little by little, I was on it less and less, until it’s sitting there getting dusted on the rare occasion.
    I have a pair of 2-2.5lb hand weights sitting right in front of me under the coffee table but I think they may have been picked up sometime in the last three months. There’s no way there was 10 minutes involved in any capacity!
    It’s very frustrating to truly not have the energy to do any sort of meaningful exercise, and when I decide to go for it, any effort I’ve made is fruitless. I have nothing to show for it but worse fatigue. I can’t get at it long enough to create a Habit. A do what I’m able Daily Habit. I desperately need stamina but the only way to get it is to Do!
    When I take a shower I do feel as if I’m fighting to get thru an Aerobic boot camp bcuz that’s what it feels like. I can’t even get that done every day. Getting out and dried and dressed is a whole other event.
    I take Adderall XL which helps to a point but it isn’t like taking a sleeping pill that’s going to keep you asleep. Is a drug like that Supposed to keep you going all day? I still have get from the bed to the couch days and I take it every day. Oh the frustrations…

  • LuvMyDog
    2 years ago

    Managing fatigue?
    It depends greatly on the individual.
    I was always a very strong person, physically strong, mentally strong.
    After dealing with MS for 35 years, the pain, fatigue, memory problems, bladder problems, looking like I’m drunk sometimes when I’m walking through the grocery store…in my mind, there is NO way to “manage” fatigue or much else.
    When you have help with doing everyday things….Yup, it’s easier. But, I don’t have any help.
    So, I do as much as I can, rest, do some more, rest…and so on.
    I’m not about to go on a diet at this stage in life.
    I’m not going to limit myself anymore than I am already limited.
    Life isn’t easy with this disease and all that goes with it, so I’m not going to change my diet or my habits anymore.

  • J R
    3 years ago

    Hello,
    I would like to know if the FDA is going to allow Provigil for MS patients again. The only way to get it is to do the sleep study and be diagnosed with a sleeping disorder. MS patients have been using this for years and all of a sudden the FDA said no study has been done. WHEN!!!

  • kathy123
    1 year ago

    I know your feeling My insurance paid for it for the 1st year then they would not approve it for MS my Dr. Put me on a generic for provigil 200 mg 2x’s a day also Ritalin insurance paid for Ritalin 1 year then said its not for MS so now I’m on adderal 1x’s a day along with provigil 2 x’s a day it gets me thru part of the day but i still get fatigued

  • Katroc
    3 years ago

    JR, I had not heard anything about the FDA not letting MS patients have access to Provigil. I have been on Provigil/modafinil for quite some time. My neurologist prescribes it. I also in the past have been a Nuvigil which seemed like a better drug for me but it was very expensive even with insurance and a discount card. Sometimes the reason that you cannot get it is that either a therapy is not coded correctly or the scrip is not worded correctly. My daughter has oral dysphagia. When we were first going to speech/feeding therapy that’s how it was coded. When it was coded finally as oral dysphagia, suddenly it was covered. As if they don’t make it difficult enough for us :-/

  • bethr
    3 years ago

    I play doubles tennis at a pretty competitive level. The problem is, I never know how I’m going to feel when I get on the court. I often feel a sort of “brain fog” while I’m trying to play, mixed in with bouts of light-headedness, fatigue, and blurred vision. Other times, I feel normal. It’s definitely a challenge….

  • LuvMyDog
    3 years ago

    Fatigue is a big part of my life but I can’t allow it to take over completely because, I’m all I’ve got.
    My little dog is old now and in order to keep her active, I have to be active, so…it’s my dog who has always helped me the most.
    For nearly 40 years I was into weight lifting. It’s hard for me now because of pain, balance problems. But, I manage to use my free weights at least 4 times a week and get on my weight bench as much as pain in my back and legs will allow.
    I do feel better when I do some lifting or a little jogging outside with my dog, but also it is extremely tiring and I have to rest in between whatever I am doing.

  • catswalkjpgr
    4 years ago

    Provigil aka Modafinil. It doesn’t last long, but it’s good when it’s active. I take two a day.

  • JK Collins
    5 years ago

    My tip for handling fatigue? Follow the Wahls Protocol Diet! I’ve been on it 6 months now and my fatigue has been slowly melting away the longer I stick with it. (Note: I am in no way associated with this doctor or publisher, just someone who has tried it and is having terrific results).

  • 1n67ouj
    4 years ago

    What is that diet that you are referring to. I would love to hear about it.

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