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The song that best describes my MS is…

The song that best describes my MS is…

We asked you for the names of songs that describe your MS – and you told us! As we all know, multiple sclerosis can affect individuals in many different ways. The songs you suggested highlight the unpredictable nature of MS, as well as the strength and resilience of the MS community.

We’ve highlighted the top five responses on the following pages, and included the complete list at the end. If you don’t see your ‘MS song’ in the list, please to add it to the comments!

Comments

  • Gwendolyn
    1 year ago

    I have one song I listen to when I am feeling like it isn’t fair, why do I have to deal with this, and so on. I usually cry the first time through, but at the end I am happier and have accepted life more. The key lyrics are “It’s not right, It’s not fair, But its only what you make of it”.

    The song is “Only What You Make Of It” by Little Big Town.

    I recommend listening to it several times in a row.

  • Stephanie
    2 years ago

    This is awesome! I loved “Highway to Hell” and “We Are the Champions”

  • ebboulden7
    2 years ago

    I knew you were trouble when you walked in – Taylor Swift

  • JanK
    2 years ago

    “Staying Alive” describes my journey with MS so far

  • ElleLLe
    3 years ago

    Hello..I’m new to the site. So my two cents is late! Haha! Anyway, I love the list y’all have made. Good song picks! I have so many running thru my head but one that came and stuck immediately was “Last Resort” by Papa Roach. It’s not for everyone but it helps me. 🙂

  • kathiatkins
    3 years ago

    I have 2….both by Tears for Fears!

    Goodnight Song

    Here on the stage
    The time has come
    With the strains of “Be my angels!?, of rock in two four
    Time may keep alive that old swang song
    That we’ve been playing forever
    Till the time maybe right to say goodbye
    My voice is aching, I’m tongue tired
    And the sounds we are making are so uninspired
    Goodnight song, played so wrong
    Blame the crowd, they scream so loud, so long
    Get some honesty
    Take the best of me and then the rest let go
    In every situation with it’s tireless rage
    Step outside your cage and let the real fool show
    I should have stayed round to break the ice
    I thought about it once or twice
    But nothing ever changes unless there’s some pain
    And our…
    Goodnight song, played so wrong
    Blame the crowd, they scream so loud, so long
    Goodnight song, played so wrong
    Blame the crowd, they scream so loud, so long

    And

    Secret World
    This is a garden
    This is a steeple
    I hear the crowd
    Before I ever
    See the people
    Yours for the asking
    And for the taking
    There is a power
    In the vacuum
    We are making

    You and I have a secret world
    And we can keep it unfurled
    And pay no attention
    To the cradle or the grave

    And when we’re crossed
    We can say that we’re lost
    In the middle of nowhere
    Think you’ll like it a lot
    And if we’re wrong
    And we end up alone
    We’ll light a candle
    For their innocent bones

    You and I have a secret world
    And we can keep it unfurled
    And pay no attention
    To the cradle or the grave

    You and I have a secret world
    And we can keep it unfurled
    And pay no attention
    To the cradle or the grave

    And when we’re crossed
    We can say that we’re lost
    In the middle of nowhere
    Think you’ll like it a lot
    And if we’re wrong
    And we end up alone
    We’ll light a candle
    For their innocent bones

    You and I have a secret world
    And we can keep it unfurled
    And pay no attention
    To the cradle or the grave

    And when we’re crossed
    We can say that we’re lost
    In the middle of nowhere
    Think you’ll like it a lot
    And if we’re wrong
    And we end up alone
    We’ll light a candle
    For their innocent bones

    I love Secret World, because I feel people with MS live in a Secret World!

  • DonnaFA moderator
    3 years ago

    Hi kathiatkins, thanks so much for sharing your thoughts, these are both lovely songs. Thanks for being part of the community. -Warmly, Donna (MultipleSclerosis.net team)

  • MJRmsWARRIOR
    3 years ago

    WE ARE THE CHAMPIONS by QUEEN

    I’ve paid my dues
    Time after time
    I’ve done my sentence
    But committed no crime
    And bad mistakes
    I’ve made a few
    I’ve had my share of sand kicked in my face
    But I’ve come through
    We are the champions, my friends
    And we’ll keep on fighting ’til the end
    We are the champions
    We are the champions
    No time for losers
    ‘Cause we are the champions of the world
    I’ve taken my bows
    And my curtain calls…

    But it’s been no bed of roses
    No pleasure cruise
    I consider it a challenge before the whole human race
    And I ain’t gonna lose
    We are the champions, my friends
    And we’ll keep on fighting till the end
    We are the champions, my friends

  • joanne59
    3 years ago

    My song is, “This is My Fight Song”!!! By Rachel P. Every time I hear that song it boosts me up. The part, “I still have a lot fight left in me”!! I may be down but it reminds me I am in no way OUT!!

  • DonnaFA moderator
    3 years ago

    Hi joanne59! You picked an awesome anthem and I’m glad that it buoys you! Thanks for sharing with us. -All Best, Donna (MultipleSclerosis.net team)

  • billbart55
    3 years ago

    “Arriving somewhere but not here”by PorcupineTree band best expression musically of my somewhat but not completely hopeless outlook on my future with SPMS. Ampyra seems to help me walk a bit quicker but hasn’t lessened my fear of falling. Luckily my upper body retains some strength.

  • billbart55
    3 years ago

    So many excellent music pics.
    Thanks to everyone.

  • Brydie777
    3 years ago

    There are so many good ones already! But, Michael Jackson’s ” Startin’ Something ” should be there too!!!

  • rabia yusuf
    3 years ago

    Rise up.Andra Day
    Move mountains.Find the fighter . Rise up

  • DonnaFA moderator
    3 years ago

    Hi, rabia! I can totally see that song for you based on your writings. It’s an absolutely lovely and uplifting song. Thanks for sharing! -All Best, Donna (MultipleSclerosis.net team)

  • Vicky
    3 years ago

    Running on Empty since that’s how I feel most of the time. Always Running behind.

  • Jade1956
    3 years ago

    Garth Brooks said it best with his line, Words at 20 paces, anger at high noon. MS is not my friend. I do not like being called an MS person. I am not my disease. And it is not my friend. It is a battle a fight and a war I will not yet admit MS will someday win. I cry into pillows and sometimes beat up pillows, and I laugh with abandon, love like there’s no tomorrow, and celebrate every day as my possession, to be used as well as I can. But this disease and I still have words at 20 paces and we share anger at high noon. But do you see the power in it? The disease is shouting, too, and the disease is angry too, because I won’t let it make me miserable and I won’t be identified by its name. I win.

  • rabia yusuf
    3 years ago

    Yes Jade1965 MS cannot frightened us . We definitely wins as after every relapse we will . It breaks us every time in attack and we will ,to get ready for another . ☺

  • Betty Bre
    3 years ago

    “I Will Survive” Gloria Gaynor

  • Iamviv
    3 years ago

    Fire Inside, Bob Seger. The last two stanzas.

    Then you walk to the window and stare at the moon
    Riding high and lonesome through a starlit sky
    And it comes to you how it all slips away
    Youth and beauty are gone one day
    No matter what you dream or feel or say
    It ends in dust and disarray

    Like wind on the plains, sand through the glass
    Waves rolling in with the tide
    Dreams die hard and we watch them erode
    But we cannot be denied
    The fire inside

  • Piyush
    3 years ago

    It’s nothing to me by Lee Hazlewood as I am pushing and enduring

  • FallenOutWithMyHead
    3 years ago

    During relapse: “My Man” by They Might Be Giants
    During remission: “Just Another Day” by Oingo Boingo

  • Fayetta
    3 years ago

    emotional rollercoaster Vivian Green
    still here The Williams Brothers

  • BaltoRic
    3 years ago

    Just to name a few…

    Hit the road Jack!- Ray Charles
    The Good Life – Tony Bennett
    Mama Said – The Shirelles
    In Dreams – Roy Orbison
    Smile – Judy Garland version
    Let’s Twist Again! – Chubby Checker
    These Boots Are Made for Walkin’ – Nancy Sinatra

  • Lisa M
    3 years ago

    All American Rejects…..”Move Along”

  • Stephanie
    2 years ago

    This is awesome!!

  • jules
    4 years ago

    Elvis Costello – I Can’t Stand Up For Falling Down

  • GritzAndGravy
    4 years ago

    “Radioactive” by Imagine Dragons
    “Doesn’t Remind Me” by Audioslave
    “Answer” by Sarah McLachlan
    “Moonshadow” by Cat Stevens
    “Heart of Gold” by Neil Young
    “Take Me Home” & “In The air Tonight” by Phil Collins
    “Let’s Be Still” by The Head and The Heart

    Sorry, I couldn’t think of just one.

  • dorth
    4 years ago

    Oooops. That would be in the post below:
    “ALL WE EVER FIND”
    by Tim McGraw

  • dorth
    4 years ago

    “TATTOO” by Jordon Sparks

    “ALL WE EVER HAVE” by Tim McGraw

  • Merethe Sjovoll
    4 years ago

    “Yesterday” by Paul McCartney hjelped me find words to describe the feeling I har after newly diagnosed. I used to sing it to my daughter at bedtime, but suddenly I couldn’t because I started crying. “Yesterday all my troubles seemed so far away”, right? And with a slight change: Yesterday life was such an easy game to play…

  • kicknMSback
    4 years ago

    for the upbeat: Can’t get you out of my head by Kylie Minogue.

  • kicknMSback
    4 years ago

    Try by Pink, my relationship with myself and the constant dance with MS

  • chonguita
    4 years ago

    Much Too Young (To Feel This Damn Old)- Garth Brooks

  • But You Look So Well
    4 years ago

    I have never heard of ANY of these songs? Where have I been all my life?

  • Tonia
    4 years ago

    Upside Down – Diana Ross

  • AlexH.
    4 years ago

    Where is my mind? – Pixies

    That the question I ask myself more and more often.
    I got the impression that my head might collapse, too.

  • Nani
    5 years ago

    On my really bad days it’s Drown by Bring Me The Horizon:

    [Verse:]
    What doesn’t kill you
    Makes you wish you were dead
    Got a hole in my soul growing deeper and deeper
    And I can’t take
    One more moment of this silence
    The loneliness is haunting me
    And the weight of the world’s getting harder to hold up

    [Pre-Chorus:]
    It comes in waves
    I close my eyes
    Hold my breath
    And let it bury me
    I’m not ok
    And it’s not all right
    Won’t you drain the lake
    And bring me home again

    [Chorus:]
    Who will fix me now?
    Dive in when I’m down?
    Save me from myself
    Don’t let me drown
    Who will make me fight?
    Drag me out alive?
    Save me from myself
    Don’t let me drown

    [Verse 2:]
    What doesn’t destroy you
    Leaves you broken instead
    Got a hole in my soul growing deeper and deeper
    And I can’t take
    One more moment of this silence
    The loneliness is haunting me
    And the weight of the worlds getting harder to hold up

    [Pre-Chorus:]
    It comes in waves
    I close my eyes
    Hold my breath
    And let it bury me
    I’m not ok
    And it’s not all right
    Won’t you drain the lake
    And bring me home again

    [Chorus:]
    Who will fix me now?
    Dive in when I’m down?
    Save me from myself
    Don’t let me drown
    Who will make me fight?
    Drag me out alive?
    Save me from myself
    Don’t let me drown

    [Bridge:]
    You know that I can’t do this on my own
    You know that I can’t do this on my own
    You know that I can’t do this on my own

    On my really good days it’s Superhero by The Script, specifically the chorus:

    When you’ve been fighting for it all your life
    You’ve been struggling to make things right
    That’s a how a superhero learns to fly
    (Every day, every hour, turn that pain into power)
    When you’ve fighting for it all your life
    You’ve been working every day and night
    That’s a how a superhero learns to fly
    (Every day, every hour, turn that pain into power)

  • pananny1
    5 years ago

    the song that fits my MS and living with it is : THE CLIMB by Milley Cyrus and my grandaughter had major brain surgery and lost movement in left side she says that this is our song

  • Lisa777
    5 years ago

    “Zzyzx Rd.” by Stone Sour

    (Holds so much meaning for me throughout my MS journey – the DX, the injections, the symptoms of MS & the side effects of the meds, the decision to go on Tysabri, the effects of MS & how it’s changed my life.. changed me.. etc etc. Anyways here’s the lyrics, check it out on YouTube sometime if ur not familiar with it – it def reaches into the depths of ur soul)

    “Zzyzx Rd.”

    I don’t know how else to put this
    It’s taken me so long to do this
    I’m falling asleep and I can’t see straight
    My muscles feel like a melee
    My body’s curled in a U-shape
    I put on my best but I’m still afraid

    Propped up by lies and promises
    Saving my place as life forgets
    Maybe its time I saw the world

    I’m only here for a while
    But patience is not my style
    And I’m so tired that I gotta go

    What am I supposed to hide now?
    What am I suppose to do?
    Did you really think I wouldn’t see this through

    Tell me I should stick around for you
    Tell me I could have it all
    I’m still too tired to care and I gotta go

    I get to go home in one week
    But Im leaving home in three weeks
    They throw me a bone just to pick me dry

    I’m following suit and directions
    I crawl up inside for protection
    I’m told what to do and I don’t know why

    I’m over existing in limbo
    I’m over the myths and placebos
    I don’t really mind if I just fade away

    I’m ready to live with my family
    I’m ready to die in obscurity
    ‘Cause I’m so tired that I gotta go

    Where am I supposed to hide now?
    What am I suppose to do?
    You still don’t think I’m gonna see this through

    Tell me I’m a part of history
    Tell me I can have it all
    I’m still to tired to care and I gotta go

  • vaguegirl
    4 years ago

    grrrrl, i listened … i so agree with you … thks

  • Cathy
    5 years ago

    Roar – Katy Perry

    I think this is great to listen to on those “not so good” days…it helps me feel like fighting back!!!

    Lyrics

    I used to bite my tongue and hold my breath
    Scared to rock the boat and make a mess
    So I sat quietly, agreed politely
    I guess that I forgot I had a choice
    I let you push me past the breaking point
    I stood for nothing, so I fell for everything

    You held me down, but I got up
    Already brushing off the dust
    You hear my voice, your hear that sound
    Like thunder, gonna shake your ground
    You held me down, but I got up
    Get ready cause I’ve had enough
    I see it all, I see it now

    I got the eye of the tiger, the fighter, dancing through the fire
    Cause I am a champion and you’re gonna hear me ROAR
    Louder, louder than a lion
    Cause I am a champion and you’re gonna hear me ROAR
    Oh oh oh oh oh oh
    You’re gonna hear me roar

  • linchav
    5 years ago

    My Body is a Cage — Arcade Fire

  • Monica
    5 years ago

    Hit me with your best shot.

  • debannholt
    5 years ago

    Never Can Say Goodbye

  • vivi
    5 years ago

    Elvis song “Shake, Rattle and Roll”. And believe me, my leg can shake just like his!

  • obiwan
    5 years ago

    “Shake The Disease” by Depeche Mode.

  • Ojibajo
    5 years ago

    Walking on Broken Glass by Annie Lennox

    Maybe not the song, so much, but definitely the title! Since that is often EXACTLY what it feels like when I walk! I’m sure others can relate!

  • Brenda
    5 years ago

    The River by Garth Brooks
    You know a dream is like a river
    Ever changin’ as it flows
    And a dreamer’s just a vessel
    That must follow where it goes
    Trying to learn from what’s behind you
    And never knowing what’s in store
    Makes each day a constant battle
    Just to stay between the shores…and

    I will sail my vessel
    ‘Til the river runs dry
    Like a bird upon the wind
    These waters are my sky
    I’ll never reach my destination
    If I never try
    So I will sail my vessel
    ‘Til the river runs dry

  • Izzi
    5 years ago

    Still ‘I don’t get no satisfaction’ by Rolling Stones

  • lois
    5 years ago

    https://www.youtube.com/watch?v=_NcJUdtBjXM

    Eet Regina Spektor

    It’s like forgetting the words to your favorite song
    You can’t believe it, you were always singing along
    It was so easy and the words so sweet
    You can’t remember, you try to feel the beat

    Eet, eet, eet
    Eet, eet, eet

    You spend half of your life trying to fall behind
    You’re using your headphones to drown out your mind
    It was so easy and the words so sweet
    You can’t remember, you try to move your feet

    Eet, eet, eet
    Eet, eet, eet

    Someone’s deciding whether or not to steal
    He opens a window just to feel the chill
    He hears that outside a small boy just started to cry
    ‘Cause it’s his turn, but his brother won’t let him try

    It’s like forgetting the words to your favorite song
    You can’t believe it, you were always singing along
    It was so easy and the words so sweet
    You can’t remember, you try to move your feet

    It was so easy and the words so sweet
    You can’t remember, you try to feel the bea

    Read more: Regina Spektor – Eet Lyrics | MetroLyrics

  • Bird
    5 years ago

    “Rise Like a Phoenix” best describes my MS

  • oldtimer56
    5 years ago

    Wife song that describes her feelings:
    “One”

    I Can’t Remember Anything
    Can’t Tell If this Is True or Dream
    Deep down Inside I Feel to Scream
    this Terrible Silence Stops Me
    Now That the War Is Through with Me
    I’m Waking up I Can Not See
    That There’s Not Much Left of Me
    Nothing Is Real but Pain Now

    Hold My Breath as I Wish for Death
    Oh Please God,wake Me

    Back in the Womb its Much Too Real
    in Pumps Life That I must Feel
    but Can’t Look Forward to Reveal
    Look to the Time When I’ll Live
    Fed Through the Tube That Sticks in Me
    Just like a Wartime Novelty
    Tied to Machines That Make Me Be
    Cut this Life off from Me

    Hold My Breath as I Wish for Death
    Oh Please God,wake Me

    Now the World Is Gone I’m Just One
    Oh God,help Me Hold My Breath as I Wish for Death
    Oh Please God Help Me

    Darkness

    Imprisoning Me
    All That I See
    Absolute Horror
    I Cannot Live
    I Cannot Die
    Trapped in Myself
    Body My Holding Cell

    Metallica—One

  • Ojibajo
    5 years ago

    That’s really sad. Her MS must be really bad if she is to the point that she relates to a quadruple amputee who has also lost his eyes, ears, mouth and nose. (What the song was written about.) My thoughts and prayers go out to you and your wife.

  • Lovee
    5 years ago

    I have always had the song in my mind for many years that goes “Those were the days my friend, we thought they’d never end. We’d sing and dance forever and a day. We’d live the life we choose, we’d fight and never lose, those were the days oh yes, those were the days”. It tends to go through my mind all the time. I can’t even remember who sang it, but I’ve had MS since 1972, so that is understandable 🙂

  • H Parks
    5 years ago

    Great list! I need to make an M.S. play list for my iPhone!

  • H Parks
    5 years ago

    Elvis Costello – I can’t stand up for falling down
    Chumbawumba – Tub Thumping

  • Ojibajo
    5 years ago

    The Elvis Costello song — good one!

  • korrie
    5 years ago

    Korn- coming undone

    Matchbox 20 – unwell

  • Theater Geek
    5 years ago

    Love love love that there is a showtune on the list!! 😀 And Defying Gravity is very fitting I think. I also think, in a round about way if you listen to it, No More from Into the Woods would be good as well. A few of the lyrics I think are most fitting, they’re not in order of the song because I don’t know if there’s a character limit or if it’s ok to post the entire song (you can look up the lyrics to the entire song if you want! 😀 ).

    BAKER:
    No more questions,
    Please.
    No more tests.
    Comes the day you say, “What for?”
    Please- no more.

    MYSTERIOUS MAN:
    Running away- let’s do it,
    Free from the ties that bind.
    No more depair
    Or burdens to bear
    Out there in the yonder.
    Running away- we’ll do it.
    Why sit around, resugned?
    Trouble is, son,
    The farther you run,
    The more you feel undefined
    For what you’ve left undone
    And, more, what you’ve left behind.

    BAKER:
    No more giants
    Waging war.
    Can’t we just pursue out lives
    With our children and our wives?
    ‘Till that happy day arrives,
    How do you ignore
    All the witches,
    All the curses,
    All the wolves, all the lies,
    The false hopes, the goodbyes,
    The reverses,
    All the wondering what even worse is
    Still in store?

    I was in the show Into the Woods and loved this song and Children Will Listen even though Stephen Sondheim is an evil evil man…but only if you’re in a show he wrote and trying to learn it lol.

  • Theater Geek
    5 years ago

    Lol….don’t get me wrong, Into the Woods was a super fun show to do, but we all loved and hated Sondheim at the same time when it came to certain songs (like the 3 group part in the song Into the Woods haha). 😉 Like I said this is not all of the lyrics to the song because I didn’t know if there was a character limit.

  • Laura Kolaczkowski
    5 years ago

    Funny review of performing Sondheim. this is a gret choice of a song to include in the roundup.

  • zenhead
    5 years ago

    I Can’t Stand Up for Falling Down, Elvis Costello

  • Sarah M
    5 years ago

    I was so gonna put that! Love knowing there are other Elvis Costello lovers out there!

  • X28ALM
    5 years ago

    Hi! Has anyone though about making these songs into a 4 cd album? Selling them to make money for say the MS society or one similar? I for one think it’s a brilliant idea!

  • HuskerHog
    5 years ago

    “I AIN’T AS GOOD AS I ONCE WAS”, by Toby Keith. Cannot believe that didn’t make the list as well as
    Garth Brooks’, “MUCH TOO YOUNG TO FEEL THIS DAMN OLD”… I suppose you are trying to put a positive spin on it, I understand, but these two describe MS perfectly for many of us!

  • westwind
    5 years ago

    I would agree with your choice of Toby Keith’s song, Just remember the next line is I am good once as I ever was(I think}. It is quality not quantity.

  • Ojibajo
    5 years ago

    These are great!

  • Caryn
    5 years ago

    It’s not a complete list when you leave off songs that people have posted. Thanks for the invite to re-post my song. However…. it feels more like a waste of time…..

  • alchemie
    5 years ago

    I agree but I think that I just listed my favorite band and not one of their songs. And a lot of these are what is popular right now. Its a good thing that people were allowed to ‘chip in’ but some of these I don’t think have anything to do with being sick at all.

  • DebRoars
    5 years ago

    Love it. Made me smile. Definitely agree with the top picks.

  • Laura Kolaczkowski
    5 years ago

    For me, I immediately think of Luther Vandross’s song sung by Little Anthony –

    “Going out of my head”

    http://www.youtube.com/watch?v=Kq204wG8UfA

  • Troy
    5 years ago

    “Don’t Stop Believing” 🙂

  • Ojibajo
    5 years ago

    As a Detroit Red Wings fan, I love this one!

  • Nettie
    5 years ago

    I didn’t see this earlier….but my choice would have been…”Lean On Me”….because we all need each other for support!

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