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10 Common MS Symptoms

Over 5,000 people with MS completed the 2014 Multiple Sclerosis in America survey telling us about their initial MS symptoms as well as the most common and frequently experienced symptoms. Learn more about some of these common MS symptoms:

 

Learn more about multiple sclerosis in america 2014 survey results.

Comments

  • Cathy
    2 years ago

    I was diagnosed in 1985, but started having symptoms after the birth of my son in 1983. A few years ago I was at a point where I was so tired every day that I would have to take a nap. I had been taking Betaseron since it became available to me in May 1994. It definitely helped me those 18 years I injected myself every other day. I did start to slowly get worse after experiencing very stressful times with my husband losing his job after 30 years, having to sell our home, finding a new one, the list goes on and on. My new Neurologist suggested I stop Betaseron in 2012. She said I was moving into a new stage of MS called Secondary Progressive. I didn’t want to accept that. She didn’t know me. She only just met me. I told her it was stress over the last few years that got me to this point. I did listen to her and stop the Betaseron. She didn’t recommend I take anything at that point but told me there were many drugs in trials that would be available soon. I went on the internet and I found out about a drug, which in low doses, helps people with auto-immune diseases. I approached her with the computer printout about this drug and she said she would let me try it. It has worked wonders for me. My fatigue is 80% gone, my immune system is so much stronger, I don’t get colds even though my husband and son are sick all winter and living on Nyquil daytime and night time. I was able to vacuum the other day! This drug will not take away my MS but it has given me my life back. Low Dose Naltrexone. I started at 3 mg for a month, then moved up to 4.5 mg which I have been taking for almost three years. No new lesions, no exacerbations, no steroids, no hospital stays. I really think it is rebuilding my immune system! It is a compounded drug which is not covered by insurance because the drug company invented it to be given in a 50 mg dose to drug addicts and alcoholics to help them get through withdrawal. A doctor in England is the one who tested it in lower doses and found it to be very effective. The drug company doesn’t care about selling it in lower doses so they are not asking the FDA to approve the drug in lower doses, hence we have to pay to have it compounded!

  • RITESH PANWAR
    3 years ago

    Helloooooooooooooooo friends …..

    MS = More Sensitive….
    yes this is my experience….
    Every time i said to everybody, “I am taking decisions from under 1 and 1/2 feet under(down)than others !!!!!!!!!! Distance between Brain and Heart is 1.5 feet!!!!!!!!!!
    So………………
    MS PATIENTS ARE VERY GOOD NATURE PEOPLE, BECAUSE THEY ARE WITH PURE HEART…..
    THEY ARE EMOTIONAL, MORE SENSITIVE THAN OTHERS………

    AM I RIGHT FRIENDS ?

  • PetieJ
    2 years ago

    Sensitive indeed, Ritesh! And I’m with you. Sometimes I realize I’m thinking or decision making in my head and make a concerted effort to get back to where they belong before doing or saying anything “final”!
    I’d like to think I’m a good natured person but some days are questionable for sure. Or depending on situation. You seem a Very good natured soul! I was glad to see your post today!

  • TltMMT
    2 years ago

    I would agree!

  • Kim
    3 years ago

    Fatigue is the worst symptom I have. I have others on this list. However, the fatigue can definitely make dealing with all the other symptoms that much more difficult

  • 105bvmf
    3 years ago

    Some days, the only thing I can accomplish is making it to the bathroom. The fatigue is overwhelming. My legs are sensitive to touch and feel as I am wading through deep sand.

  • anne
    4 years ago

    I got my MS diagnosis last april and I would love to be able to talk about this with my family . They completely ignore the whole MS thing . I have tryed a couple of times to talk about it , but without succes .
    I have no “real ” problems up to now . Trigeminus neuralgia ( my husband was very much aware of those attacks, since he HEARD me) but since a couple of months that suddenly stopped .
    Fatigue, burning, tingling , blurred vision … I think I should tell my family what I’m feeling, but I don’t want to complain so often .
    At this moment my biggest problem is : not knowing what to expect ( = fear ). But one never knows what the future is bringing !
    I’m lucky to have friends to talk to about everything , but I really miss some support of my husband .

  • PetieJ
    2 years ago

    Hi Anne! I commiserate with you regarding your family. I think probably when push comes to shove, they don’t want things to change. We’re just all supposed to be there, doing what we’ve always done, taking care of things no one else thinks of and then some, everyone getting older, but in general, life just goes on. They will learn!
    Many, many times our son or daughter in law have called to say they want to come over and my husband will put them off bcuz of how I’m doing at the time. I recently told him, I don’t care how bad I feel, look, sound, the fatigue so bad I don’t have the energy to speak or walk, or stumble around etc., tell them to come! Maybe seeing is believing. But if you are in fear-your husband may be also. Sit him down and make him tell you his thoughts about the whole situation!! Mine “doesn’t know what to do to help” bcuz he thinks he needs to “fix” whatever it may be. You need to be on the same page-you’re a team. My Dan says if the tables were turned, I’d be doing for him what he does for me-& he’s right. But there’s many times he’s oblivious too! So I’ll tell him what’s going on.
    I hate to know you have fear. Do what you have to do to eliminate it!!! It does you No good. It has come to tear you down even more. Just take a moment at a time if you have to. I don’t “worry”. It’s an exercise in futility. When I was diagnosed, somehow I had a lot of booklets from the MS Society about MS and one for about every symptom!
    Check & see if you can get that info. So sorry to have gone on so long! God Bless you Anne!

  • Martha
    4 years ago

    I have all the Symtoms and I have never been check for this: How can I talk to my doctor and ask her about this????? I am falling everyday,I walk in my home(small apt)with a cane, outside with a walker, I can now only go about a half a block or less before I’m weak and have to set down, it gets so bad that I drag my left leg, the pain is sooo bad. I do have an appointment with a Nerosurgen on the 23rd of this month, should I discuss with him:

  • PetieJ
    2 years ago

    Oh Martha! Thank goodness you have an upcoming appt. this month. By all means tell your doctor, this is what’s been going on…and tell the doc just what you told us! I’ve been taking Adderall XL (big difference between ‘regular’ & XL). It’s for the fatigue and if I didn’t have it, I’d really be up a creek. Tho’ I still have many days where I feel so weak it’s a matter of getting from bed to the couch!
    But by all means, tell your doctor and keep us posted! In the meantime…carefully!!

  • Kelly McNamara moderator
    4 years ago

    Hi Martha,

    You should definitely mention any symptoms you’re experiencing when you meet with the neurosurgeon on the 23rd. Let us know how it goes.

    Wishing you the best.

    Kelly, MultipleSclerosis.net Team Member

  • MsDee
    4 years ago

    I first experienced MS January 6 of this year. I awaken to get ready for work and I could not adjust my eyes to the light.It was like a shade came down on my eyes. Within 3 hours I was blind in both eyes. After many tests and a lengthy hospital stay, I was diagnosed with optic neuritis. After 4 months treatment with predisone, my sight returned. I still have blurred vision and night vision problems. In the meantime other, symptoms of MS started developing. Fatigue, Balance & coordination, muscle weakness, pain, numbness, cognitive problems, walking problems, some incontinence & retention problems. Finally my neurologist was, able, to give me, a definite diagnosis of multiple sclerosis. I was started on a regiment of Coxpaxone injections. This MS diagnosis has changed my life but through Faith, family & friends I am thriving.

  • PetieJ
    2 years ago

    MsDee, what a wonderful thought–thriving!! Wow, when it rains it pours! You’ve gone the gamut in a very short time. I woke up to go to work one day and was blind in one eye! It was actually the opthomologist I was sent to who first diagnosed me with MS and was then sent to a specialist. My eye was restored in probably two weeks–I cannot imagine what your situation would be like! Thank God, you can now see. I wonder if the optic neuritis leaves us with residual problems (the blurred vision, etc); maybe not. I’m Constantly cleaning my glasses and new prescriptions seem great at the time til I go get my new glasses. Hmm, are you sure these are mine?!!!
    What great news that you are thriving. Keep it up. With your Faith, I Know you will! <

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