Calling Y'all Out
FYI: The “C” Word = Cure
Okay - I'm in a "mood" at the moment...
Let me just start off by saying that even though there are a lot of us with Multiple Sclerosis… There is not ONE case that is EXACTLY the same… meaning what works for one person, does not work for another. And that can be applied to medication, diet, etc.
But all I can say is, ARE YOU FREAKING KIDDIN ME?!?! I really HOPE this blog post reaches ANYONE who has or are claiming a bunch of BULL... HONKEY! (watching my language)
Okay readers, y'all know me... I don't have a filter when it comes to speaking my mind! So that’s your only warning… lol
So, what am I talking about, you ask? I'm talking about all these "bloggers" who are sitting here posting LIES - just to benefit themselves in some way.
Now - I'm not just trying to single ONE ploy out... there are so many.
For example, look at CCSVI - all these MS patients got the CCSVI procedure done, and they still have MS! Which by the way, CCSVI has been debunked recently! Check out a publication by the Huffington Post HERE!
Now I’m not going to put any names in here, but there is a certain article… stating that the artificial sweetener (Aspartame) had actually ‘poisoned’ her family member… who was diagnosed with MS to begin with. (This diagnosis seemed to be made with out any MRIs or Lumbar Punctures, by the way) This certain writer/blogger then goes on to promote/market/sell a “special water system” for thousands of dollars…
Now check out this article that addresses Aspartame and MS
Now when it comes to all those diets that "Cure" MS. ugh! I can't tell you how much I HATE it when the "C" word is used wrongfully! When people are using the word Cure in the same sentence as MS, it seems to me it's usually for marketing purposes (this does not include any write-ups on studies, by the way).
So let me just get my opinion out there... It doesn't matter if you have MS or not... your doctor wants you to follow a healthy diet, don't smoke, don't do drugs (the illegal kind), don't drink excessively, etc.
Lately, we've been seeing a lot of "natural-remedies" and "diets" included in a phrase that is followed by ... CURE MS.
Well - Don't you think that if these natural remedies or diet plans CURED MS, it would be wide spread news... and no one would have MS anymore? Everyone says - the pharmaceutical companies’ and doctors don't want you to know about it - because then they lose money... I like to roll my eyes to that one.
Here is my stance... If you have found a natural remedy or a certain diet that has improved your health... THAT. IS. AMAZING! There is no other way to go about it - I couldn't be happier for those individuals who have tried something and their Quality of Life has improved!
What I DISAGREE with - is the word "Cure" being thrown around... so here we go:
Ashley's Definition of a CURE for Multiple Sclerosis: A medication and/or technique/procedure that stops any future demyelination to a patients Central Nervous System to happen EVER again. BUT this certain medication and/or technique/procedure ALSO corrects any and all damage done to patients Central Nervous System due to Multiple Sclerosis.
How do you have a CURE for MS when there is not even a (for sure) CAUSE of MS?
By saying the above it means that for the rest of my life, if I have an MRI done on any part of my spinal cord - there will be NO demyelination that was caused by Multiple Sclerosis.
I hope that explains why I LOATHE the "C" word.... ((Cure)) - when being used in a misleading manner.
So - when it comes down to all of this... I have another thought... So - some of us have "black holes" from MS - basically a certain area/nerve in your Central Nervous System was attacked so much, to the point that the nerve 'broke'.... How can that be "cured/fixed"...?
Since I'm "Calling Out" all of the people who use the "C" word... I want them to answer and explain, what I'm about to show/ask... (Mind you, I'm not "picking" on anyone - or being rude... I just want things justified and certain topics/content to not be misleading to the MS community.)
I’m going to show you images I made – to help “show” an MS Attack… (Cut me some slack, I never claimed to be an artist.)
[caption id="attachment_2491" align="aligncenter" width="300"] Okay – so obviously – this is what makes a “lesion”… the myelin sheath, protecting the nerve, being attacked… which then exposes the nerve.[/caption]
Are we all on the same page now? I hope so…
Okay – so we have all been diagnosed with MS, because of damage done to our Central Nervous System, as shown above and that we see in our MRI’s as “white matter”. We are ‘encouraged’ to choose a DMD (Disease Modifying Drug) that may help slow our progression with MS.
Okay – so say we are reading about this AMAZING, PHENOMINAL, OUT OF THIS WORLD Cure that someone has come up with (that is not backed by scientific research). This person is claiming that their certain remedy (be it natural remedies or diets, etc.) that it will CURE MS **gasp**
They then proceed to explain that due to the specific remedy, that it has stopped MS progression.
**Pause right here**
Okay this is one of my “Calling Y'all Out” questions… – So, for example, Relapsing-Remitting MS… you can/will go in to remission for a certain amount of time. So keeping that in mind – How are you for certain that this “remedy/technique/diet” has “cured” your MS…? What time frame are you going off of? And I’m going to go ahead and say that most people are implying that they had NO new lesions and at times their Quality of Life improved.
Okay – now comes the BIG question for ALL of you that I’m calling out…
How does your remedy/technique/diet fix the damage that has been done to my Central Nervous System from previous attacks? Also – PLEASE explain to me, how it would go about fixing any “black holes” that are made, due to MS Attacks.
Now see, I know that all of these people who have claimed MS Cures just LOVE to justify themselves and their specific “treatment” plan. So please… I’m all ears… Please answer (in depth, w/ LEGIT proof) to the questions I have stated above. Oh and make sure you make this answer for the public to read as well.
One more… thought… for those of you who are promoting something using the "C" word just to make a profit off of us...WHY? I can understand people publishing and/or sharing their stories and what they have done that helps or has proven to help with MS, but I'm talking about the people who are trying to sell certain products that "cure" MS... HELLO?! Can we say false advertising? For those certain people, I gotta know... How do you sleep at night?
All right readers… here is what we need to do. We need to get this blog post to spread like a Texas Wildfire… We need it to reach any and all of those individuals who have or are using the “C” word under FALSE pretenses.
You think maybe we should go back to when we were younger, and wash out mouths with soap to those individuals who use the “C” word, under false pretenses?
**Note: I am not stating that all remedies/diets aren’t good for MS patients, or anyone in general, if it works for you… and it improves your Quality of Life, more power to you**
Yep - I think I let it all out... for now at least.
Have you ever experienced any of the following financial struggles due to your MS?