Day in the life of Ashley
Well, I recently had a idea for an article come to me, seeing if I could share what it’s like to be me for a day. This is also for MS Awareness Month… to raise awareness about Multiple Sclerosis to the general population.
So, where do I start? Because I don’t have a normal routine for EVERY day of the week, but I figured I would go with the one that I’m used to, as long as nothing ‘eventful’ happens.
As you may know, I am a mother of two boys, who are 6 & 8. They are both in school, so I have to wake up Monday-Friday at 6am (central time) and get things ready to take them to school.
First thing that I do when I wake up, is of course, take my medicine. Now when I wake up, it isn’t a hop out of bed and walk around kind of routine. I have to lie there and fully wake up. Then I have to carefully get out of bed, to make sure that I’m ‘stable’. Once I get the boys up, I have to make sure that I remember to take my morning medicine.
After I’m done with the craziness of getting my kids ready, I drive them to school, then most likely come back home. Now, I don’t have a job that I “go-to”. I’m a stay-at-home mom, but I also volunteer for MSWorld, as well as write these blogs.
Now, I don’t come home and just jump on the computer and get things done. Nope… I have to wait for my brain to wake up. Even though my body is up and moving (or trying to) my brain isn’t on the same schedule. And there is no forcing my brain to wake up, it’s just a wait and see kind of thing.
So I make sure my dogs are taken care of. I have five dogs, so it’s a bit of work at times, because they aren’t even small dogs. I also have to make sure that my Rooster is good on food and water.
Now, one good thing about being a stay-at-home mom… I don’t have to get all dressed up, hair done, make-up on every day. So I’m most likely going to be in comfy clothes for as long as I can.
So I of course, have to do things around the house throughout the day, as much as I can anyways. Some days, all of my ‘chores’ just have to wait, because I’m having a bad MS day, as I like to call it.
So once my brain decides to join the party, I get on my computer and check my e-mails, social media, etc. Not only do I love social media for my personal use, but I am also the Social Media Director for MSWorld. So I check up on everything, then set off to get things done on the computer that need to be done. We just launched our updated website at MSWorld, so needless to say my days have been busy with a bunch of technical work as well as design.
I usually run any errands that I need to while both my boys are in school. So I have to make that trip to the grocery store that I just ‘love’ so much [insert heavy sarcasm]. Going to the grocery store doesn’t sound like much, but for me it’s an adventure that takes time and patience. Do I have my list? Do I have any meds that I might need while out? Do I need to eat before I go? The list goes on and on. And I hope I’m not the only one who goes to the store for a few things, then comes home with way too much.
Once I’m done shopping, I have to come home and unload the groceries, so that takes a lot of time as well. If I got anything heavy that a store employee had to help me load up, it has to stay in the back of my car until my husband can get it out.
With everything I’ve done so far on this type of day, I’m exhausted and want to take a nap. I know it doesn’t seem like a lot, but it is a lot for my MS and me. So, I’m contemplating taking a quick nap, but would you look at the time? It’s time for me to go pick up the boys from school.
Once I get home from getting my kids from school, we have to get their homework done, go through any papers that are sent home, etc. Then they need a snack and to get situated with whatever they are going to do…. Now, can I take that nap I need yet? Well… No.
My oldest son is in competitive gymnastics and has practice that he must go to certain days of the week. So I have to get him ready for that, along with helping my younger son with anything he needs. Then I have to load them up in the car, to go drop my oldest off for practice. Once I battle traffic and get back home, I feel like my bed is calling me. But of course… I can’t lay down just yet. What are we doing for dinner? Did I wash the clothes? Oh, I better check my e-mail. Those three thoughts/questions seem to come at me all at once, but I can’t do them all at once. So I’ll do them one at a time, then I will end up forgetting one of the things most likely.
Once I get my son home from practice, the kids need to take a bath. I have to get everyone fed and ready for bed, this includes my dogs. Maybe I can relax a bit in the bath? Yes… you heard me right, a bath. Why not a shower? Because I tend to not be graceful barefoot on wet surfaces, so the bath is the safer option.
When things are finally calming down for the night, I go to take my medicine again. Sometimes I have to really think back or ask my husband and kids if I took a certain medication already, because even though it wasn’t that long ago, I’ve already forgotten.
Once the kids are asleep, I usually get on the computer… check in with friends, MSWorld, Social Media… then I go lay down to go to bed.
I’ve wanted to go back to bed since I woke up this morning, so can you even imagine how relieved I am that I finally get to lay down? So glad it’s bedtime, because I’m exhausted. Now remember when I told you even though my body is awake, my brain isn’t. Well, now it’s the opposite. My body is ready to sleep, but my brain isn’t. It loves to go into overdrive whenever I don’t want it to.
My brain then decides to remind me of those tasks that I was supposed to do. I got dinner done, checked my e-mail… but I forgot about the laundry. OOPS. Guess it will have to wait for tomorrow, unless I forget.
So I’m trying to go to sleep, but my brain is just going on and on. After lying down for at least an hour, if not more, I can usually finally go back to sleep… where I’m not battling my own body on a constant basis. Which of course, if I’m tossing and turning, my husband doesn’t appreciate it all that much… but oh well. Through the good times and the bad, right?
Okay, so I know that if you’re reading this, it probably seems like it’s a walk in the park for me. Unfortunately, it’s not. At times I literally have to force myself to stay awake. I, of course, didn’t go in depth about EVERYTHING I do everyday. Because me telling you about cleaning, organizing, cleaning some more (I am in a house full of males) and much more. It’s just boring to write about, but exhausting to do.
It seems that lately I’ve been saying, “There aren’t enough hours in the day.” And there really aren’t. Especially if I have doctors appointments going on, functions for my kids, etc.
So, there you have it… a summarized day in the life of yours truly!
Does your employer provide workplace accommodations due to your MS?