How MS-Related Digestive Problems Have Embarrassed Me in Public

By Kim Dolce

3 min read

Multiple sclerosis finds inventive ways of humiliating me in public. Oh, I look and act normal enough at first. I’m a petite gal of once-engaging cuteness that is now fading as I move through my sixties. To compensate, I wear an industrial-strength underwire bra beneath animal print dresses, and stylish, flat-heeled, strappy bronze sandals.

A distraction from my cane and odd gait

I also wear an ever-present smile to distract people from looking at my cane and odd gait. “Isn’t it a beautiful day,” I chirp, beaming at them as I limp across the grocery store parking lot. I can tell when people are smiling behind their masks. Their eyes crinkle up and sparkle as they meet my gaze. “Gorgeous day!” they respond, matching my sunny mood. During such moments, life is beautiful. Then there is what happens next.

The dreaded gurgle

I enter the grocery store — or perhaps I am finished shopping and pushing my cart out of the store — when I hear the dreaded gurgle. First, I wonder if others near me can hear it too. Above their masks I see no one snap to attention with that alert, direct look people wear when they hear my bodily functions.

My MS and diarrhea experience

For an instant, I feel relieved—until the gurgle is followed by pressure. What is happening is so familiar that I could draw it out for you in breath-taking detail. I can also lay odds that my anal sphincter might fail to contain the gas-propelled waste racing through my gut in search of an outlet. I have no choice but to weigh my options.

Weighing my options - run for the car or the bathroom?

My position at the entrance is equidistant from the store's restroom and my car. Do I make my way around customers to use the restroom and risk gurgling or noisily passing gas near them? Cloth masks don’t make people deaf, so they would hear my gut sounds and then give me that alert, direct look that proves they heard it. They might even laugh, watching me hobble briskly towards the restroom. “Hope everything comes out right,” someone might say. Then I have a terrible thought. What if I evacuate my lower level right there on the floor, in front of everybody? Face masks wouldn’t keep them from smelling it if I had an accident, either. At least my mask would somewhat cover my identity— and a deep blush from being totally embarrassed.

Praying I don't have an accident in public

I choose to high-tail it to the store restroom, gurgling and noisily passing gas, praying I don’t let loose. I fix my gaze on the destination and ignore everybody around me, so I don’t know who is hearing or watching me. Fortunately, I make it to a stall in time. I’ve had less successful outcomes at home, though. Crapping on my carpet and bathroom floor is nowhere near as harrowing, though it is just as humiliating. It makes me afraid to go out in public, too.

Adult diapers don't seem fit for bowel incontinence

Adult diapers caught my attention and I ordered a few samples. They seem to be designed for urinary incontinence more than bowel. Elasticized leg openings and additional pads don’t look like they would effectively contain liquidy feces. Those incidents happened last year and the year before. As of this writing, I haven’t had an accident anywhere during the whole of 2020, so I’ve elected not to try protective undergarments.

How I've been coping with my MS diarrhea problem

Fortunately, I resolved most of my explosive diarrhea problem by eating smaller amounts of food and taking a yeast probiotic as needed that slows the speed of the digestive process. A side effect is constipation, but it only lasts a couple of days. It’s a small price to pay for some peace of mind.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The MultipleSclerosis.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

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Therry Neilsen Moderator & Contributor
Oh Kim. The stories we could tell! This is one of the ways I have found out the location of every bathroom between downtown Boston and my home in Southern New Hampshire, including convenient stops in not quite dense enough woods along a back road or two. Consider yourself elbow-bumped by somebody who knows what you're talking about!
1. Cnthneal6 Member
 TherryNielsen <inline-mention username="35happyiamhere" user-id="3961357"/> I know what you and Kim are going through. I call it the D-Dash in stores at home or anywhere it rears its ugly head. I am on Chloestyramine powder 1 time a day and I found that eating avocados helps with the gut and mine has calmed down considerably. I can go out in public again. You are right Kim adult diapers are no match for the D-Dash. 
2. Kim Dolce Moderator & Contributor
 <inline-mention username="Cnthneal6" user-id="4530846"/> Oh, I feel you, and I feel for you. And glad that you found some control and relief in some treatments and food choices! That can be an uphill-years-in-the-trenches kind of battle. Here's hoping we can all find a mesure of control and relief.
judyvarley Member
Therry, for years as we had a mini van, we carried a portapotty in the back so I was safe for the most part. A couple of years ago I saw a urologist who specialized in ms patients. He put me on a new me Mirabegron, which is a Canadian drug, but it is also found in the States with a slightly different name. That twice a day pill is like a miracle in a pill. I no longer have to race to a toilet. I can actually sleep through the night without an every two hours trip to the bathroom. By the way, after talking about exercising yesterday and you missing the gym, when I was still using a gym, my favorite device was the rowing machine. It exercised all the muscles, legs, arms, back, etc. If I could afford my own now, I would still use it.
HeatherLW Member
I understand my friend!!
Janus Galante Moderator
Thank you Kim for sharing your candid experiences with us. How many this had to have encouraged and helped! Each story is truly a gift to the community. xxxx's Janus
cajun-betty Member
Thanks for being so open about this unpleasant symptom. Of all my MS issues, this is the one that is the most distressing.
mabgardener Member
I used to have this problem frequently. I still have it once in a great while. The big game changer for me has been going to a whole food plant diet. Eat enough fiber and have more (but much more predictable and controllable) bowel movements. I especially love to eat oatmeal for breakfast with 1 1/2 tbsp of fresh ground flax seed for both omega 3 and fiber. BTW I credit the wfpd with my minimal disability after ~45 yrs since diagnosis.
krissyg Member
Thank you for being so candid and brave to post this. I've had two instances recently I was mortified and didn't realize this may be related to my MS. I don't feel like such a "freak" anymore. Thank you!
mseverchanging Member
Great article. I have it linked to Everchangingms A Man has same issues.
kaddie437 Member
Dear Kim, thank you so much for your posting. I know this stressfull bowel symptoms very well - and feel a litlle less alone with them upon reading your postings! Just a small tipp if it is sometimes only "gas urgency": in Europe, you can buy special panties called "Shreddies" which contain an active cole filter, thus adsorbing unpleasant smells... guess they are availaible on amazon, too. Please excuse any writing errors as a not native speaker... All the best, Katja
silverdracos Member
Thank you! I hear about constipation issues all the time and felt alone in this. If you ever find me crouched or sitting on the grocery store floor intensely studying the bottom shelf, 99.9% of the time it's not the pinto beans I'm concentrating on.
1. crazycatlady Member
 I had to laugh at your last line since I'm getting good at the art of "crouching" and/or sitting in various places. I had c. diff last year for 4 1/2 months so between that and MS I was ready to start a go-fund-me for toilet paper, butt wipes and new underwear!
2. carolecarole Member
 LMAO! I’m right down there with you! (And aren’t those bottom-shelf contents fascinating? 😉 ... Thank you, all my soulmates, for sharing these least-charming of all MS manifestations. Knowing we’re not alone—that another soul shares our pain, our shame—lightens the weight of our burden. Next time I’m down on the floor, I can look around and be comforted by the understanding only a been-there-felt-that soul can give. Thank you. Bless you!
patbel Member
Thank you for this article. I'm 44 years old. For over 20 years i have this problem and no one can help me with the solution. was told its stress and anxiety. I feel like a weirdo. Im scared to go anywhere and make sure i check out all the bathroom location. I had no idea this was MS. I thought i was alone! Thank you.
mickeylou Member
Hey Kim. Thanks for the writing of your very personal article. I too have the same issues. I have had MS since 2002 and I am also now in my 60's. I have had bowel issues all my life and since diagnosis, my diarrhea bowel issues rule my life. I totally get your humiliation, been there done that and suffered the consequences as well. A few years ago, my doctor told me to start taking Restoralax daily, which is a laxative (PEG3350). I balked at it at first and couldn't understand since my problem was too much "going", not that I couldn't "go". She said that the medication pulls the water from the bowels and ends up forming more of a solid stool instead of just liquid. I still go very often but it is more controlled now since the urgency is not quite so watery, so I am able to get to a washroom or get home on time. I have a fear of using any washrooms outside my home so this has made my life a little easier. I can't say it is completely fixed but it is way better than having a fear of leaving the house in case of an accident. Just thought I would mention it to you just in case you wanted to try something different. I still don't quite get the use of a laxative to help stop me from going constantly but I have to say when I decide to stop using it, to prove her wrong, I end up back with the watery version. You are not alone!! Thanks for your posting.
1. Kim Dolce Moderator & Contributor
 <inline-mention user-id="3992529" username="mickeylou"/> Thanks so much for the suggestion!. I'll look into it. Here's hoping you have more normal bowel days ahead. --Kim
Debbie Petrina Moderator
Oh, Kim. Good for you to be open enough to write about this dreadful problem, that so many of us have to deal with. If I was granted a wish whether I wanted my legs restored or my digestive system, I would choose the latter. I lost count of how many accidents I had, and still they are so humiliating. Having both a neurogenic bowel and IBS-constipation is very painful too, and complicated in figuring out what I should do, While there are many suggestions worth trying to determine how to manage the gut or bowel, I’ve learned that what works for one person may not work for another; it’s trial and error, and anything is worth a try. After a bowel impaction in May, I’ve spent the last five months monitoring everything I swallow—one thing at a time/one day at a time. My friend who was a registered dietitian at a hospital for 35 years is helping me too. For me, between diet (low-residue) and Colace 1-2/Perdiem 2x/wk, things are finally falling in place. At least for now anyway. (sigh) If you ever want to have a poopy conversation, please contact me. Talking, listening and sharing helps so much. Hugs, Debbie
1. Kim Dolce Moderator & Contributor
 <inline-mention user-id="3949754" username="debbie"/> I'm so glad you found relief! And thanks bunches for your kind offer! --Gratefully yours, Kim
katekelly Member
This is the story of my life. I had it several years ago and it subsided for a while in favour of constipation. Now it’s back and I cannot control or hold anything. One if the problems I have run into is a Resulting UTI from all the “contamination” of the area. I just finished two rounds of antibiotics to get the latest one under control. Bowel issues are what was the final straw in deciding to retire. I messed my pants several times and I worked out in the community doing home visits as a nurse. There was often no bathrooms to go to. I had no choice and had to retire. I still get caught with my pants down so to speak, often when I am shopping away from home in the city.
rev214soon2b Member
I know this problem exactly. I have a double problem with it. Due to Bowel Resection Surgery I have only 12 inches of large intestines in addition to MS. Watery bowels are normal for me. I get frustrated because my primary care doctor will say it's MS related, while the Neurologist says it's a physical issue unrelated to MS. I have an emergency bag that I carry when away from home to clean up and change my clothes if needed. So far, only a few times did accidents occur away from. Emotionally I try to use humor. But take comfort in the reality that God's Kingdom will soon put an end to all illness (Isaiah 33:24, Isaiah 35:5, 6a, Revelation 21:4) More information on this promise can be found at <a href='http://www.jw.org' target='_blank' rel='noopener noreferrer ugc'>www.jw.org</a>.
1. Kim Dolce Moderator & Contributor
 <inline-mention user-id="4105864" username="rev214soon2b"/> , Wonderful that you've found sources of comfort in humor and faith. Thanks for sharing your thoughts about this stressful symptom. --Kim
anne435 Member
I can relate! As far as diapers, I have found that "belted undergarments" are real life savers. They can be more easily changed and discarded (I carry a plastic bag, wipes, and a few "safety nets" with me) without having to change clothes. They aren't as easy to find on grocery or drug store shelves as they once were. I have found "Prevail" brand on Amazon.
1. Kim Dolce Moderator & Contributor
 <inline-mention user-id="4095334" username="anne435"/> , thanks for the tip, I'll look for them. Glad to know you found something that works. --Kim
pamr Member
Thank you for making me smile... when this happens I am mortified but it helpful to read this and see I'm not alone.
1. Janus Galante Moderator
 So glad that Kim's article brought a smile to your face PamR, there is something so comforting about knowing that others experience similar symptoms and that just when you start thinking that "I'm the only one," then suddenly an article or story comes out, or someone posts something and you know that you are most definitely not alone. As we read so often in this community, "we are in this together." xxxx's Janus
itsdiana Member
I too have this same issue I thought it was because I didn’t have a gallbladder anymore but the weird issue is that it just started to happen more regular than not. And it happens to me regardless of what I eat or time of day it even hits me while I’m sleeping.
1. Kim Dolce Moderator & Contributor
 <inline-mention user-id="3978617" username="itsdiana"/> , Interesting about the gallbladder aspect. I had mine removed in 2011, and it was that year that my IBS symptoms worsened. Although I started out with chronic constipation that year, it morphed into diarrhea in 2018. If I come across a study linking gallbladder removal to bowel problems, I'll write about it. How awful that it hits you at night too! I haven't had that happen, knock wood. Thank you so much for telling us your story and including the gallbladder detail. Perhaps others will relate to that too. Best, Kim
dclaybrook Member
I wasn’t diagnosed until age 59, but have had symptoms for decades. I also have bowel incontinence. It hit me in the middle of a large music store one day and I had no warning. My stomach made a large gurgling noise and immediately emptied the contents of my bowels onto the carpeted floor. I ran towards the restrooms trailing liquid feces behind me, only to find the women’s room out of order. Heart racing, shaking uncontrollably, I entered anyway. I pushed open a stall door and sat down on a toilet trying to figure out what to do. Totally humiliated, clothes ruined, I stuck my head out the bathroom door and called for help. Choking back tears, I explained to the poor soul who came my my rescue what had happened and asked if there was a way out the back of the store. My husband pulled our car up to the back of the establishment and picked me up. We made the trip home breathing through or mouths. He was sweet enough to never mention it again. It took me hours to quit shaking and gain my composure. It was over a year before I could allow myself back into that store, happy that it was such a large city that I wouldn’t be recognized. That was in about 2005. AlthoughI always try to know where the nearest restroom is I have had many close calls since. I’ve also had to pull over to the side of the road, in lieu of a bathroom, more times than I care to remember.
1. colette4 Member
 dclaybrook -I can imagine how you must have felt, thank god there was someone around to help you. I have had those episodes similar to yours. I had one at home in the middle of the night. There was so much, it came fast, and it ended up all over the bathroom. I was crying and hysterical and ended up waking my husband to help me clean my mess up. I hope to never to hear about it. Like you, I always check, first thing, where the bathrooms.
2. Peteic Member
 I have bowel and bladder total loss and therefore use briefs full time. The real bad part is the bowel incont. which happens at night and during the day at work. It's very hard to conceal the odor even if one wears plastic pants which I do. People know right away and it's impossible to conceal the odor at home. Obviously, intimate relations are not comfortable.
karlal-lynn Member
I do not know the cause of my explosive diarrhea, but I take a dose of cholestyramine (in orange juice) every evening, it helps slow things down (and firms my waste)....since it it a prescription medicine you would need to talk to your Dr. to see if this might work for you. I still wear an adult diaper and carry wipes (and a change of clothing), just for my own peace of mind....and I also take a probiotic/prebiotic daily.
1. karlal-lynn Member
 this also goes by the name Questran....
2. Kim Dolce Moderator & Contributor
 <inline-mention user-id="4086843" username="karlal-lynn"/> I'm so glad you found a prescription med that works for you. Anything that might help us better manage bowel habits is so worth sharing. I love how we learn from each other in this community! Best, Kim
mariet Member
On my last visit to my Urologist, he handed me a brochure about Medtronic bladder control device. He told me to read about it and research it. After looking online, I found out that it is used for bladder and/or bowel issues. When I asked my Neurologist why I had never heard of this before, even in my MS support group, he said a new version has come out that is more adaptable for yearly MRIs. I have an appointment next week to discuss this further with my Neurologist. I did talk to my Cardiologist and she said she has patients who have this - mainly patients with spinal cord injuries. It seems it works like a pace maker for you bowel or bladder. It is implanted under your skin. I am anxious to find out more about this device as I am taking three different prescriptions for my bladder and am self catheterizing and still have to keep an eye for bathrooms everywhere I go.
1. Kim Dolce Moderator & Contributor
 <inline-mention user-id="3969557" username="mariet"/> , thanks bunches for the Medtronic info. I know they make an intrathecal baclofen pump (ITB), but I had no idea about one for bladder/bowel control. Better still, one that allows us to have MRIs! I hope you'll share here what more you learn about the device. Our readers will be as grateful as I am! Here's to better bladder days ahead! Best, Kim
2. mariet Member
 Kim Since I last wrote I have completed a voiding diary while using my current medication and while using the new medication. It turns out the new medication did not work for me as it caused constipation, dry mouth, heartburn and difficulty peeing. I then did a trial for four days with a different device, the Axonics Bladder Stimulator. It works the same as the Medtronic device, is rechargeable and allows full body MRIs. During the trial I keep a voiding diary that showed an improvement. I am scheduled for surgery to implant the permanent stimulator on the 29th. The Axonics and Medtronic Stimulators help with bladder and bowel dysfunctions. You can go online and check them both out. There are patient testimonies and you an speak to patient Ambassadors if you like. I am very hopeful that I can cut down on my bladder medication, discontinue self catherizing and stop scouting out bathrooms whenever I leave the house. I hope this information can help someone else!
kimber Member
I can totally relate. I had the first of many episodes of uncontrollable bowel evacuation a couple of years before I was diagnosed with MS. I was driving with my daughter who was 14 yo, I don’t think she or I will ever forget it. She is 30 now and I have a lot of practice with incontinence products for both bowel and bladder. I have many products that I use depending on the type of problem I am having a that time. “That time” usually last 1-2 months-like a flare. In this instance, I would recommend using a men’s urine guard (pad) . I turn it around and put the wide part to my behind. I also use a peri pad to line the panty area. Sometimes I use with tight fitting underwear and sometimes with a depends. I wear dresses, tunics or shirts to cover my behind. Never wear with white pants! Once, AFTER league golf, my husband kindly told me everyone could see my JUMBO pad. Men!! 
1. Kim Dolce Moderator & Contributor
 <inline-mention user-id="4107112" username="kimber"/> , oh my, that post-golf remark did reveal how immature men can be! Hope someday we can laugh off stuff like that. I haven't been able to do that yet, though... ...and thank you for the tip about taking the men's urine pad and turning it around! And the panty liner with a Depends.That's thinking outside the box. Good on ya for working it out for yourself. It seems we have to do that with most things. I love when I learn something useful from readers. It's what makes this community so great, we all help each other. Best, Kim
itscomplicated Member
On my gosh, I can so relate. MS made dealing with my digestive issues difficult. MS does not cause my digestive issue. I have multiple food intolerances....gluten and histamine being the biggest. Until I understood this and learned to manage my diet (not a quick, easy task) I was a mess. Remember, your health is a complicated ball of wax. Not all imperfections of your health are directly due to MS. Ferreting out other issues can be helpful. Fecal incontinence can be emotionally debilitating.
1. vicky72 Member
 I couldnt agree more, I have posted in the past about how important it is to have these issues checked and not just assume it is a new ms symptom or worsening of an old one. When my bowel issues got worse 15 or so years after my ms diagnosis I ignored it. Luckily I had to have a colonoscopy to check for a hereditary condition and was found to have stage 3 rectal cancer. With surgery, a colostomy bag and some chemo, I have been cancer free for nearly 3 years. I would be dead now if I had continued to assume all of my bowel issues were ms.
martina1960 Member
I have had similar problems when shopping. I have had very close calls with having an embarrassing "bowel incident" in public. This is the first time I've read anyone talk about it and refer to it as "bowel urgency" which is a perfect title. It is hard to determine when it could happen. I rarely go out anyway because of my limited mobility. I still walk with aids (cane seat, walker) but it is tremendously difficult and tremendously painful because on top of the MS I have advanced degenerative arthritis, fibromyalgia and diabetes, among other things. This combo of chronic conditions really decimates any quality of a normal life. I never thought I would get to this point at age 60. I saw a new neurologist who claims that the belief is that MS can burn itself out at 60 or even 55. However, I do not feel like it has and have read many patient stories that have been told the same thing and yet feel worse than ever. I also feel worse than ever and have been terrified that I can no longer live on my own. However I am determined and recently spent $6,200 to put in two stair climbers so that I could remain in my home and independent. But there are days when I can't even bathe because I am so weak and in so much pain.
1. Kim Dolce Moderator & Contributor
 <inline-mention user-id="3945577" username="martina1960"/> , struggling with so much pain and with dodgy bowel issues could have really crushed your spirit, but it hasn't! Your determination to stay independent shows high self-esteem, and that's what it takes to push through. It's so hard to find a treatment that keeps our bowel quiet without constipating us. Although I found relief with Imodium and a yeast probiotic, They still do not restore my bowel to "normal." An alarming number of neurologists believe that MS burns itself out in our senior years, but it simply is not true. In fact, a number of people get diagnosed with MS at 65 and 70. Personally, I am 63 and have no intention of going off my disease-modifying therapy. I can so relate to your description of how weakness affects you. If you haven't already, you might consider pursuing a physical therapy program, it can help improve strength and balance. I can personally attest to that. Pain is so debilitating, even when we have fairly high pain tolerance. If you haven't pursued it recently, making an appt. with your doc to discuss your symptoms would let them know how much it interferes with your quality of life. Perhaps a review of your pain treatments, medications, etc. might lead them to adjust dosages or try other treatments. Martina, thank you so much for sharing your experiences. It was brilliant of you to install two chair lifts! Please do keep us up to date on your situation, we love hearing from you. Best, Kim
35happyiamhere Member
I’ve never been a person that can go in public! Diagnosed last year, advanced RRMS, I’m on tysabri, I have never had gas this foul, I also have gas a lot! Had to move back in with my parents and leave my husband. Anytime I’m in public I have to hold it in, if a little slips out, people tend to start talking about it loud. I just join in, wth is that!!
oliviaj Member
Good column! MS and digestive issues means I don't easily go out anywhere. I use a wheelchair and today my husband took me to a local health care centre to test drive a few wheelchairs. I wore an adult diaper (I hate using that expression so tend to refer to them instead by their brand name) and popped a couple of Immodium (an anti-diarrheal product -- oops there goes a brand name) to feel secure during my 90-minute appt. It worked, but the downside is constipation. The noise and gas you talk about so freely are a big reason I prefer to stay home. Thanks for your frank talk -- I so relate!
pippa Member
Wow!! This is me too. It's a subject that I haven't spoken about to anyone. Yes I have had "accidents"....Unexpected loose bowel movements <a href='http://suddenly.no' target='_blank' rel='noopener noreferrer ugc'>suddenly.no</a> warning. It really shakes my self confidence and limits me, more than I want to admit.
hershey21 Member
Martina, I know this may sound crazy but I’ve heard testimony from MANY people how a “Facia Blaster” has mostly or even completely eliminated their pain! If you’re not familiar w/ this tool google Ashley Black Fascia Blaster. She developed it for her own pain but many people also use it to eliminate cellulite amongst other uses. There is a group on FB who shares their testimonies and even pics. VERY supporting. You can enter search and find testimonies of pain relief from arthritis and fibromyalgia!
metomeo43 Member
Thanks for your open, honest article, Kim. It’s nice to know that others share in my anxiety-inducing and humiliating MS symptoms. I’m only 39 but feel as though I’m much older. So again, thank you kindly😀
Roger Hellard Member
I was diagnosed with RRMS back in August. Actually got the call from my neurologist on my birthday. I had been having bowel problems longer than that. At least a couple of years. I thought it was from my diabetic medication, but I probably had a double whammy with the MS too. I've had a few close calls in public, and one accident at home just a few feet from the toilet. With the urgency, I just call it the "screaming shits". Because sometimes you gotta run for the bathroom and you feel like screaming for people to move. And now here lately, I am having bladder issues, too. No fun at all.
colette4 Member
Kim Dolce - I don't have the gurgle, but I do have the other problem. I unfortunately pass gas too often and suffer from diarrhea. I have pooped on the bathroom floor and carpet. Recently, my diarrhea was so bad it was all over the bathroom! I was crying so hard when I showed my husband! He reluctantly helped me clean it up. It was beyond belief. And I agree that adult diapers/depends aren't made for diarrhea. I take the anti-diarrhea every day to stop attacks from coming
Anita Williams Contributor
Hi Kim, Thank you for writing this. There is so much shame and embarrassment around bowel issues that shouldn't be there. My fecal urgency means I think I need to go when I don't, so I have spent hours hostage to the toilet waiting for a bowel movement that never happens. Of course, when I really do have to poop, I am making a run for the toilet for that elusive BM while praying I make it. These issues make it hard to go out due to fear. I feel you! - Anita
3ybgf7 Member
This is my fear as well! I haven't had any accidents but I never know when my stomach will start to hurt! I eat very little before I go to the grocery store. It's bad enough when I have the urge to pee and have to use the public restrooms! I usually try to hold it all in till I get home and that can be challenging at times! I'm only in my 40's so I can't imagine things getting worse as I age!
sruasonid Member
I feel your pain, and my heart goes out to you. I have the same problem, and you're right about the adult diapers. I've found they're really not as effective as you'd hoped for bowel incontinence, especially that of the runny variety. The best you can say about them is they buy you a little time to make it to the bathroom, although getting them down without making a hideous mess is another issue. I'd say if it happens often, it's definitely worth a try.
1. Kim Dolce Moderator & Contributor
 Chrisite, I'm so grateful to you for sharing your experience with and insights about adult diapers and bowel incontinence. I'll definitely consider your suggestion. Here's hoping your holidays are accident-free. Best, Kim, author and moderator
tigger15 Member
I receive care from the Veterans Administration. Too control my bowel incontinence I take Loperimide and use Latex gloves for evacuation. For urinary incontinence I use a Condom catheter and leg bag. I began having symptoms in the service in my mid 20s and diagnosed around 26. I am now a parapelgic and dealing with coping issues as they occured. Foot drop, to ankle braces, to leg braces, one cane to two canes, walker, to wheelchair.
1. Kim Dolce Moderator & Contributor
 <inline-mention user-id="4008399" username="tigger15"/> , First, thank you for your service, we cherish the men and women who keep making it possible for us to be the country we are. And thank you so much for sharing your challenges with us. You have been through so much! I hope the VA is providing all the care you need. I wasn't familiar with condom catheters and did a little research on it. I hope it is an effective tool for you. Re: bowel incontinence: loperamide and manual evacuation seem to be a common treatment among us as we swing back and forth between diarrhea and constipation. Thanks again for adding your voice to this thread. I love that we can all share our difficulties and support each other. Best wishes to you, Kim, author and moderator
coco3494 Member
One day while wearing white capris,and shopping at Sam!s Club with a friend, I had the urge to pee bad. Of course the bathroom was at the opposite corner of the store, so half way there, the “dribble” was more of a steady stream lasted most of the way to the bathroom. My white pants were yellow front and back! So my friend who checked on me was sent to get me another pair of bottoms. I threw the underwear away and rolled up the capris. Put them in my purse! Most embarrassing shopping trip ever! Handicapped bathrooms need sinks in them with paper towels!
1. Kim Dolce Moderator & Contributor
 <inline-mention user-id="3975656" username="coco3494"/> , what an experience! Thank goodness you had a friend with you. As you can see by all the comments here, you are definitely not alone with these pesky incontinence issues, not to mention having embarrassing moments in public! I hope it helps you to see how many others share this in common with you. Here's hoping your future public appearances are "leak-free." Warm wishes, Kim, author and moderator
2. bandi Member
 I have had this happen while out with my sister shopping. It was embarrassing. I had to have her go and purchase a new set of clothes for me because I didn’t make it as I raced to find a restroom. I HATE it it’s bad enough my legs are bad but when my colitis kicks its really embarressing
bandi Member
I know EXACTLY how you feel. I sometimes panic looking for the restroom when I go out in public. I found out the Hard way Going on a dream vacation To HI. That they do NOT have public restrooms. Which caused Me to not have as much fun racing to find a restroom with MS and gait walk.
mommamia Member
Good evening everyone. I finally got around to reading this article in the <a href='http://MS.net' target='_blank' rel='noopener noreferrer ugc'>MS.net</a> issue. When I first receive an email from my various MS sites, I scroll down through the content, slowing to read the opening caption of an interesting article and then move on. I am truly impressed by the amount of quality content in each newsletter I have! The authors and contributing authors always give me something to think about. Hats off to the editors! I have only commented on one other article, that ironically, was about urinary incontinence. The later is my main symptom, I’ve been 100% inconsistent since I was 38ish and 10 years before I was diagnosed with MS. I sometimes dislike being part of this club, the ‘know what exactly what you’re talking about’, ‘I’ve been there’ club. It’s not only embarrassing, but down right dishonorable. I have adopted a new trick, I just leave my cart or my items, and walk away. I try not to make eye contact, apologize for rushing by them and walk, not run (running is bad) to my car and get out a underpad for my seat and get in. Totally drowning in feces and urine. As you can imagine, this leads to a UTI from hell. I’m luckily with a very wonderful man that always covers for me and helps if he can. Which he can’t. I get angry when this happens. Grit my teeth the whole way home, undress my pants and socks in the laundry room and head straight to the shower. I have no real hope in this category. Not to mention that my doctors have never mentioned there is a RX or anything that may help me. We put all our faith in our ‘team’. Disappointing. I was diagnosed in 2017 at age 46. Currently I have PPMS, and according to my MRI, I have had MS for the better of 20 years. My neurologist keeps telling me that my incontinence is due to MS and not the stones. The jury is still out... Thank you all for your member contributions!
gannod Member
After Toviaz alone became ineffective, I’ve had effective bladder management with outpatient injection of Botox through a process called Bladder Cystoscopy, available every 6 months. Started with 100 units, adding daily Toviaz after a month for some improved control. Next tried 200 units and didn’t have to add Toviaz for about 2 months. The best result has been obtained with the injection of 300 units (the highest dose available) and didn’t add Toviaz for first 3 months. I still wear diaper, but have gone 3 days in a row without wetting. As for bowel incontinence, I rely on probiotics and loperamide for management of unpredictable activity. For several years I used Metamucil as well, but eventually it seemed hit or miss, so I quit. I’ve picked up some good tips from the comments, so thanks for sharing.
jake301 Member
My gurgles are extremely loud. When I was attending the murder trial of a famous music producer my gurgles started and were so loud the judge looked up at me! Worse, I was seated directly behind the murder victim's family members. Finally, one of them turned around to see where all these gurgle were coming from. I embarrassingly expected an unhappy scowl, but instead received a sweet understanding smile.
indygal Member
I have MS, and Crohn’s disease. It is a disease of the GI tract. I’ve had a foot of my colon removed so I don’t absorb the water I need to form solid stools. Don’t sweat it. It happens to the best of us. But bentyl helps me get out and about. Talk to your doctor or see a gastroenterologist. They can offer you other medications to help you. I just make sure I don’t eat at least an hour before I head out. Good luck. And know you’re not alone. I guess I’m your Potty Pal hugs
emmanora Member
Just found this site for MS blogs. This is first I read too. I have had this issue happen to me way too often and always when I’m no where near my toilet. I have to laugh sometimes since if I dwell on problems too much I could go nuts. Thanks for making me smile as someone who has really experienced this can only do.
1. Therry Neilsen Moderator & Contributor
 <inline-mention username="emmanora" user-id="3961505"/> welcome! I'm glad you found us too. This community is terrific for information and support and for hanging out with people who really do get it! Don't forget to check out our Facebook page, too! https://www.facebook.com/MultipleSclerosisDotNet
colette4 Member
Kim, your article really spoke to me. I don't like the smell or the noise. I have screwed up at home, but never when I'm out. I certainly agree about those adult diapers, they are not for our problem. I've had days when I have gone through countless Always. And I agree, it certainly puts a damper on our "social activities."
fromnwmont Member
Every time I think I am alone I read the honest post on this site! The dreaded gurgle, cramps and penguin walk, praying the bathroom is open, I use the adult diapers they are far from perfect but help, I fell and broke my back so now sphincter tone is almost nil, it’s the perfect storm setup! I had my gallbladder removed a few years ago things actually improved a little, also take Cholestyramine, it was actually designed for cholesterol reduction but also works for loose bowels, talk to your dr, it is off label use but insurance still pays... thanks everyone
kimi Member
Finally! A discussion about urgent poop! Humbling, humiliating, really messy and unpleasant. And yet we survive, Clean up, and waddle on.
Therry Neilsen Moderator & Contributor
Oh Kim, do I ever hear you!* Makes it worthwhile to keep an amazing amount of backup supply in my handbag! *that didn't come out quite the way I meant it. neither did that.
Roger Hellard Member
I know exactly how you feel! I've just about lost count of the times I've been in public and have to make a mad dash for the restroom. I call it the "screaming shits". Because you're ready to start screaming for people to get out of the way. Like you, there have been times at home I have not made it in time. It makes you feel like you have no control of your body at all.
1. Erin Rush Community Admin
 Your description of those bathroom emergencies is pitch perfect, <inline-mention username="Roger Hellard" user-id="4073962"/>. Bathroom issues can be hard to talk about but we're pretty open and honest about them here. I'm sorry you have had to deal with these types of issues and I do hope the incidents are few and far between. Best, Erin, <a href='http://MultipleSclerosis.net' target='_blank'>MultipleSclerosis.net</a> Team Member.
Roger Hellard Member
 @Erin Rush Thankfully they are not very frequent. Just enough to be a bother.
1. Erin Rush Community Admin
 Well, I'm glad they are not frequent, but I know it would be better if the incidents never occurred at all! Thanks for sharing and again, your term is one of the BEST I have found for describing this particular bathroom emergency. It made me giggle, which maybe it shouldn't have, but sometimes being able to find humor in the hard times is a good way to vent some stress. Best, Erin, <a href='http://MultipleSclerosis.net' target='_blank'>MultipleSclerosis.net</a> Team member.

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