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What is your ‘physician experience’ like?

A majority of MS in America participants who were under the care of a healthcare professional were satisfied with the level of care received – 78% of respondents were either satisfied or very satisfied with their healthcare professional and only 6% were dissatisfied or very dissatisfied.

Study participants were most likely to see their healthcare professional twice a year (40.5%) or once every two to three months (39.3%) with most visits lasting anywhere between 15 minutes and one hour.

Although most patients were under the care of someone who specializes in Multiple Sclerosis (71.4%; n=1,323), many noted consulting with a variety of healthcare professionals including Family practice/internal medicine physicians, ophthalmologists, radiologists, Emergency Room physicians, psychiatrists, naturopaths, chiropractors, physical/occupational therapists, urologists, neurosurgeons, pain medicine physicians, rheumatologist, rehab specialists, gastrointestinal specialist, otolaryngologists (ENTs), acupuncturists, and massage therapists.

8.3% of respondents were not under the care of a physician (n=1,442). Concerns with cost/insurance issues were the most common reason for not seeing a doctor (45.8%, n=120). Other reasons for not seeing a physician included lack of local MS specialists, absence of symptoms, difficulty finding the “right” doctor, and fear/denial.



Tell us – Are you seeing an MS Specialist? How satisfied are you with the care you receive? How often do you see your doctor and how long do those visits typically last? Is there anything you would change? Please share in the comments!

The MS in America Study was conducted over the internet from November 2012 until January 2013. The primary goal of the study was to establish an understanding of the current state and trends of patients affected by Multiple Sclerosis. The survey included over 100 questions on a broad range of topics. A total of 3,437 people started the survey while 2,562 people completed the survey resulting in a high completion rate of 74.5%. To qualify for the survey, participants had to be MS patients over 18 years old and a US resident or US citizen living abroad.

The study was solely developed and funded by Health Union, LLC which does not manufacture, sell nor market any product to diagnose, prevent or treat MS or any other disease.


  • LD90
    6 years ago

    Prior to first being diagnosed, I had a hard time finding the right doctor. One who could actually diagnose me and then treat me. It wasn’t until I went into the hospital and was paralyzed on my right side – did “MY” new doctor walk in the room. Years have gone by and Kaiser no longer deals with Wellstar. So now I see a Kaiser Neurologist. I am happy with her. She listens, she and I email each other about different things, and I see her about every 3 months or so. It’s a lot easier when you have an understanding physician with a good bed side manner. I feel for those who don’t have that yet.

  • Faith French
    6 years ago

    You are so fortunate. Until recently, I blindly believed in my neurologist for many years, and my health status suffered. I do so much better now with a good provider. We discuss all aspects of an issue so we are on the same page. She thinks outside the box, which only increases the value of our relationship, and my overall health.

    Best wishes to you.

  • Donna
    6 years ago

    I have moved to a new area about 6 years ago. I have seen 2 different MS Dr’s . The first one just retired, wasn’t very happy with him, but he was close to my home. Now this new Dr. Mmmm I just don’t know , he listens , but I get the feeling he is not up todate with all what’s going on. When I mention that my lower back pain could be from the MS , he just looked at me like I had 3 heads. Oh well the search goes on.

  • Faith French
    6 years ago

    I learned the hard way, again, the importance, and the success rate of following my gut reactions. If you have any negative feelings about anything medical, it is worth not acting, and to opt for more thought and research. Your health is worth it. It helps to know what questions to ask, so then even a brief conversation can help you decide what to do.

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