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Everybody’s Working for the Weekend, Right?

I had so many ideas of projects to accomplish this weekend, but the ultimate spell of MS fatigue washed over me. After a very long week, I came in last night from work, sat down to decide with my spouse where to go to dinner and woke an hour later, still in my coat and hat. I guess I have redefined Friday night happy hour as a one hour nap.

I managed to stay upright for about 90 minutes to toss some pasta and sauce together for dinner, eat, and then right back to sleep by 8:30 pm, despite my intention to remain alert. I was awake on Saturday at the usual 6 am range, got out of bed, but I was immediately back to sleep in my chair. It was a day of in and out of semi-consciousness, for lack of a better description.

Somewhere in there I managed to read my email but I’m not quite sure what I read. I did a few posts on Facebook and I can only hope whatever I wrote was brilliant and not an embarrassment. I think I need to put a safety lock on my electronic devices that keep me from using them without being fully awake and can only hope that anything I have posted publicly makes sense.

So many of our friends use the weekend to socialize, but I don’t have it in me right now. Loverboy sang about Working for the Weekend in the 80‘s on their album Get Lucky, which fortunately at my age I don’t have to worry about either, and I feel no pressure to get out or get it right.

Everyone’s watching, to see what you will do
Everyone’s looking at you, oh
Everyone’s wondering, will you come out tonight
Everyone’s trying to get it right, get it right

I’m just thankful it’s ok at my age to stay home and not feel pressured to go out and play because it’s too hard at times to even think about going out let alone actually doing it.

We are having our first true snow day of this winter – with about 8 inches of the white stuff and fortunately we have a wonderful neighbor who has a snow removal business and he has already cleared our driveway which is great because dressing and  putting on my coat and boots would probably induce another required rest time of a few hours. It snowed overnight and the outside world came to a screeching halt to allow the salt trucks and snow plows to shove aside the white mess. It also forced me to stop – which obviously my body was desiring to do.

Late in the day, as the sun was starting to set, I finally roused myself enough to shower and dress as if I was going to finally start my day. I realized while showering that the numbness in my right leg from the ankle to my hip is not improving by getting up and moving. There’s no pain. Not even pins and needles, just deadened senses. I’ll hope it improves in the next 24-48 hours or I will be calling my neurologist to request a round of mega-steroids, which is not my drug of choice but a necessity at times.

Sunday was not much better, although I did dress and leave the house for a few hours. I confess I just kept thinking about getting home so I could close my eyes and rest some more. The end of the weekend was looming and before I could enjoy my weekend, Monday is here again. And you know what they say about Monday – you can’t trust that day. I hope your weekends are filled with more energy than my recent times and Monday morning treats you kindly.

Wishing you well,

Laura

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Comments

  • Marla
    4 years ago

    I can relate to your experience with MS fatigue; however, I experience it on a daily basis, not just on weekends. Unfortuntately, my fatigue isn’t just from MS but from Narcolepsy as well. Therefore, I’m lucky to get out of bed each day, let alone get dressed and go anywhere. My life is spent hoping I have a day where I’m able to get dressed and do something minor like go out to lunch or dinner.

    Although I do spend a lot of time feeling sorry for myself, I do empathize with others who are suffering and I want to wish you a speedy and full recovery (even though you might have to take steroids) by getting full feeling back in your leg as soon as possible.

  • mamak1118
    4 years ago

    I know where you both are coming from. With a full-time job and four kids of varied ages, my weekends should be fun time with them, but it’s making up for lost rest. I couldn’t survive financially on disability, but I feel so bad sleeping through the only real time I have with my kids!

  • Laura Kolaczkowski author
    4 years ago

    Thanks for those words, skcullers. I am wrestling with that dilemma right now -at what price do I continue to work? thanks for reading this and commenting. best, Laura

  • skcullers
    4 years ago

    I understand what you’re going through. Mine wasn’t fatigue but the dizzies. At 50 my neurologist said I needed to stop working as using weekends to rest up for the week and not the way to live so social security disability it was. Wished I could still work as liked my job as high school job counselor for special education kids but realize it was for the best. Best of luck to you.

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