How To Stay On Top Of Everything And Anything MS
In the course of a day I spend more time with my laptop than I do with my husband. After publishing a post on my blog, or the other sites I write for, I then share it around social media and respond to every comment from readers.
In the world of MS keeping current with news and information isn’t as easy as it used to be. There’s a glut of information available regarding MS, and it’s difficult to know where to turn first.
Patients, caregivers and loved ones also want to remain current. But who has time for that when we’re busy taking care of ourselves?
So, aside from MultipleSclerosis.net (where you'll always find current information about everything MS) here are a few other places I go to so I can stay on top of things:
NOTE: This is by no means an exhaustive list, so please feel free to add the sites you use to help you stay current. I’d love to hear from you.
- The National Multiple Sclerosis Society – Provides resources for the MS patient and their loved ones and raises money in an effort to further research toward finding a cure.
- The Multiple Sclerosis Association of America – A leading resource to provide services and support for the MS community.
- Multiple Sclerosis Foundation – Offers programming, support and education to help patients remain self-sufficient while promoting awareness about MS.
- Science Daily – An American news site that provides the latest news and articles about research and clinical trials being conducted.
- The Multiple Sclerosis International Federation – An international network of 90 MS organizations.
- ClinicalTrials.gov – “A registry and results database of publicly and privately supported clinical studies of human participants conducted around the world.”
- MS Advocacy – I signed up to be an activist for The National Multiple Sclerosis’s MS Activist Network. I want to do what I can to make a difference with policies being proposed or signed into law that may ultimately lead to making a difference in the lives of people with MS.
- National Institutes of Neurological Disorders and Stroke – The mission of NINDS is to “seek fundamental knowledge about the brain and nervous system and to use that knowledge to reduce the burden of neurological disease.”
- Google Alerts – In my Gmail settings, I sign up for alerts using the keywords “Multiple Sclerosis.” Depending on whether you want emails sent daily, weekly or monthly to your Inbox, you will receive top news stories that contain the words “Multiple Sclerosis.”
- Dr. Weil – From the day I was diagnosed I’ve read Dr. Andrew Weil’s books. I’ve always found his opinions to be spot-on regarding complementary medicine. Harvard educated, I love perusing his website, www.drweil.com, because it’s filled with information about everything from herbs and supplements to conditions and articles. I don’t subscribe to anything he sells. (I “met” him at a book signing and thanked him for his advice. He was very happy to hear that he was instrumental in helping me during my early days with MS. Then he told me I looked good! Ahh.)
- CAN DO Multiple Sclerosis (former The Jimmie Heuga Center in Colorado) – a site chock full of information about MS with interviews, podcasts, webinars, online resources and more. A very user-friendly site I’ve been following CAN DO for many years. Sometimes I wish I lived in Colorado to be able to take advantage of their in-person programs!
How many specialists did you see before finding "The One"?