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A man being tossed out and kicked while he

One More Thing

When I think about my day-to-day life with Multiple Sclerosis, there is one phrase that I think comes to mind constantly: “One more thing” (often times, that sentiment is preceded by an “ugh”). It’s a phrase that seems to perfectly sum up the frustration that my disease constantly springs upon me. Whether it is having to add a new medication, or having a new symptom, or just any MS-related problem that comes along, it always feels like it’s already adding to a mountain of other things. One more straw to see if the camel’s back will finally break (and there are many moments when I feel certain it will).

There’s always something else

“One more thing” is a phrase that relates to nearly every aspect of my disease. Talking with the doctor and ready to try a new medication? Great, just one more thing to try. Having a rough day already where you’re fatigued and can barely walk, then dropping a glass, shattering it and spilling the contents? Yep, one more thing to add to the day’s disasters. Experiencing a new symptom, like blurry vision, for the first time after years of living with the disease? Yep, one more way MS is affecting you (reminder: new symptoms should always be told to your doctor).

When non-MS problems add to the frustration

Non-MS problems also add one more thing to the pile. Already struggling with the daily tribulations of life with MS? OK, your wife is leaving you. Already accounting for every minute of your day because of your disease? Well, time to get your taxes done. Living paycheck to paycheck on disability? OK, you now owe tax money. The lawn won’t cut itself? OK, one more thing to get done, somehow. Sometimes, it’s the non-MS problems that really make me want to crumble. Don’t I already deal with enough? Isn’t MS hard enough on its own?

It’s never-ending

I’m sure life for people without MS can feel like there is always “one more thing”. One more problem, one more expense, one more thing to do. The thing is, we have that on top of all of the ways our disease can add to the pile. Add MS to the equation of life and I feel like every day I wake up just to get kicked in the… um, let’s just say “male region”. Life can seem like an onslaught of one frustration after another that never stops. It’s like kick after kick to that “male region,” and you wonder when it’s going to give. How can we possibly keep going with one thing after another with no end in sight?

Trying to look for the good

Sometimes there isn’t a great answer. No matter what I do, I still often feel like there is always one more thing trying to bring me down. It gets to the point where I simply have to laugh at it. You hit so much misfortune and I think it’s natural to think, “Really? This, too? No way.” and laugh. Maybe that’s actually the sign that the camel’s back has finally broken. Throughout the frustrations and problems, I try to enjoy the simpler things much more than I once did. A cool breeze, a tasty beer, the comfort of my dog laying next to me, etc. I try to stop and think that there is an endless parade of good things that happen to me, too, they just aren’t as noticeable. I think you really have to be mindful and condition yourself to look for those good things. Even with them though, I admit, I can still feel like there’s always one more thing! When you get overwhelmed by all of this additional issues in life, try to pause and remember the little things, the good things, and remember you aren’t alone. I’m somewhere, probably muttering “ugh, one more thing”, just as you are, so hang in there!

Thanks so much for reading and always feel free to share!

Devin

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Comments

  • Bkboo
    3 months ago

    Oh My, you wrote exactly what I have been feeling. Overwhelmed with all the constant issues and yet I do know it could be worse. I’ve been saying that since being diagnosed with RRMS. Now, my disease has progressed to SPM. Trying to adjust with the new me isn’t easy and yes it seems harder to find the good in life but I do try…..My dog is a comfort for sure!

  • Devin Garlit moderator author
    3 months ago

    Thank you @Bkboo, I think knowing things could be worse still doesn’t always make things easier for us. My dog is a huge comfort to me too!

  • potter
    3 months ago

    Thanks Devin I needed that reminder to think about something positive. I have been bummed out for a month. I look at the weeds from my window and wish I could do something about them. It is already too hot and humid to be outside and I haven’t been walking that well lately. My husband already has his hands full with me and his mother. I am grateful to have a husband to mow the lawn even if he doesn’t see the weeds. Potter

  • Devin Garlit moderator author
    3 months ago

    Thank you @potter! Hang in there! While it’s hard, this time of year can be a time to let some things go, the heat and humidity can just be too dangerous!

  • Suze
    3 months ago

    Great article, Devin! I’ve had a lot of “one more things” in the past month, and often find myself asking how much more I can handle! Another good one pertaining to my MS body is “If it wasn’t this, it would just be something else!” Thanks for your articles, I always look forward to reading them.

  • Devin Garlit moderator author
    3 months ago

    Thanks so much @Suze, very much appreciated!

  • Richard
    3 months ago

    You are dead on right! So much crap you just have to stop and smell the roses! People are nicer to me now than ever before. I need assistance and I always get it. And, I live in the US where we have ADA requirements. I rarely visit anywhere inaccessible

  • Devin Garlit moderator author
    3 months ago

    Thank you @Richard!

  • corgi9
    3 months ago

    The simple things we take for granted in life…like showering. If people (non MSers) only knew. Or like Devin says…. “Just one more thing”.

  • Devin Garlit moderator author
    3 months ago

    Thanks so much @corgi9!

  • Lily
    3 months ago

    I’m going to take a shower AND wash my hair. Does anyone else realize how much energy is needed to wash one’s hair? Ladies?

  • Devin Garlit moderator author
    3 months ago

    Showering can definitely be a task that is way more challenging than most people understand: https://multiplesclerosis.net/living-with-ms/the-unexpected-perils-of-showering/

  • Michelle
    3 months ago

    Just throwing this out there since showers are the common comment here… Have you guys tried using a shower chair? I find mine to be a huge energy saver on days I don’t have it.

  • messeeone
    3 months ago

    I so totally understand! Should I expend the energy and feel half human or conserve it feel gross, but not quite as tired?

  • chong61
    3 months ago

    Lily,
    You got that right about washing our hair. Try doing it while hanging onto a grab bar and using one hand to shampoo and rinse.

  • JACABUR2018
    3 months ago

    Lily, taking a shower means I have to wash my hair as it is past my shoulders and very oily by the day I get to it.

    Energy afterwards is nil for the rest of the day as just the shower experience then getting dried off and dressed finishes my reserve completely.

    However like Devin says there is an upside to everything and being clean afterwards is the most wonderful feeling for me as it makes it easier to relax without body oil, dead skin and the sweat coating that washes off.

    As long as look at it that way the comfort is worth the discomfort as unfortunately can only shower once or twice a week anyone due to the nature of my MS progression.

  • messeeone
    3 months ago

    I love all these comments. What “normal” person could understand this stuff?

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