MS = Many Stories
Have you taken the time to look through the stories of Multiple Sclerosis being told on this site?
The number of people sharing their story on Multiple Sclerosis.net is growing. Everyone’s experiences are different yet still the same – we all have MS and are sharing what we know and what we feel. I went looking for quotes about stories that might fit what is unfolding through your words on MultipleSclerosis.net and found a sampling to share.
Why are so many of you taking the time to tell your story here? Perhaps it is the emotional release we get when we talk about what we are facing. Maya Angelou writes “There is no greater agony than bearing an untold story inside you,”and by telling our stories we feel relief in sharing. Yes, our family and friends know our story, but it is also commonly accepted in our MS community that only others who also live with this invisible disease can grasp the reality of what we live with. Telling our stories makes us feel better, at least emotionally. We know emotions can impact health, and perhaps story telling also makes us better physically.
Once Upon a Time is how so many stories begin and that is how Joy from Atlanta begins her recounting the 30 + years she has lived with MS. I know her story made me smile at several points and I hope you will read her words.
We often refer to Multiple Sclerosis as the MonSter – and fittingly this next quote comes from A Monster Calls by Patrick Ness : “Stories are important...They can be more important than anything. If they carry the truth.” The stories you share here carry the truth – whether it be the stories filled with struggles and pain or the celebrations of love, family and empowerment that lift us up. Each and every story here has meaning for the storyteller and in turn for the reader and is important.
Christina O’Connor writes about the Monsters under her bed in her youth and the new monster that has moved into her life. You can read her story here.
There is so much about our future with MS that we can’t know – the disease is unpredictable and often our imaginations take us to the worst case scenarios of how our story will play out. It helps to hear how others identify the uncertainty through the sharing of their stories.
Gilda Radner, the late comedienne who starred on Saturday Night Live in its early years, had ovarian cancer, but her words also reflect what we struggle with in Multiple Sclerosis - “I wanted a perfect ending. Now I've learned, the hard way, that some poems don't rhyme, and some stories don't have a clear beginning, middle, and end. Life is about not knowing, having to change, taking the moment and making the best of it, without knowing what's going to happen next.”
I hope you’ll take a few moments and listen to the stories of your peers here at https://multiplesclerosis.net/stories - I can’t begin to highlight them all or even a few in this limited space, but I can encourage you to discover them on your own and share your thoughts and reactions with the storyteller so they know their words are heard. Then perhaps you’ll share your own story.
Wishing you well,
How many specialists did you see before finding "The One"?