MS Zombies? Run!!!

I really like the services and information provided on the Consortium for Multiple Sclerosis Centers (CMSC) website.  They do a great job of posting current takes on the best of the research news, and they also sponsor the largest MS conference/convention for clinicians and researchers that takes place annually in the U.S.

The CMSC certification and membership is the gold star standard for MS neurologists– there are rigid standards the MS doctors must maintain to get this seal of approval.  They must also pass special MS exams and participate in administering/overseeing clinical trials.  In other words, CMSC members have their stuff together when it comes to MS support and services. It’s a group with very high standards.

I’ve often referred people to the CMSC site to read specific articles or look for CMSC certified doctors offering services in their area.  They have a great searchable directory of specialists who also happen to be CMSC members.  I have always found it unsettling that their web url makes me do a double take – for the life of me when I see their homepage link www.mscare.org, all I can see is the word MS SCARE. Perhaps that is because it is ingrained in me that MS is scary for all of us.

Recently while perusing the MScare site, I discovered something truly scary. They have unveiled a new patient support program that is a virtual online support group, Virtual conversations in Multiple Sclerosis.  You can join their group and have a discussion about your questions on MS, living with MS, treating MS and all sorts of other topics.  This is all good and well – an excellent idea even, except for one thing –  the people in this support group look…….ZOMBIES!!!  Yes, see them sitting there in that room pretending they want to help you with your questions about your MS brain when maybe all they really want are your brains for dinner. They sure have the zombie stare going on that spells trouble.  Well they can’t have mine – it’s pretty well used up and has too many holes to provide much nourishment anyway but I still have use for what’s left of my gray and white matter.

If you take a few minutes to interact with the support group you will notice they have peculiar body tics as well – they all have to scratch their heads or rub their nose and do it often.  I wonder if that comes from their type of MS or being Zombies but there is no place to ask that question.  I didn’t hang around in the conversation long enough to see what might lurk in the corners and I took the cue and escaped while still intact with my brain.

Wander through this virtual support group and tell me what marketing person decided to take a wonderful idea and turn it into a nightmarish version of some Claymation script.  I was excited to know they had developed this idea and then when I saw it I was immediately taken back to the idea about MS Scare.  Isn’t it enough that we already often walk like the living dead – with this new online tool, they have depicted people with multiple sclerosis as scary, too.  I expect better from a group that represents the best of the best in MS care.

Wishing you well,

Laura

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The MultipleSclerosis.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

View Comments (10)
  • Laura Kolaczkowski author
    4 years ago

    The CMSC has another virtual simulator – this one is for Doctors and it doesn’t have the people with the vacant stare but they also have the peculiar twitches and itches. You can download this app and get a better feeling of what doctors go through in trying to make a diagnosis of MS.

    https://alivemed.com/Topic/52W2/Web/CMSC

  • Kim Dolce moderator
    4 years ago

    Hey Laura,
    I just tried downloading the app and encountered and error. I did eyeball(hehe)the still image of these cartoon characters in the virtual forum room, however, and I couldn’t stop laughing. The characters are okay except for their bug-eyes, which is a bit disconcerting but mostly hilarious. What’s more, when I shifted in my chair and stood up, I swear their eyes followed me–and the guy won’t stop looking at my chest ;)Love it!

    Kim

  • Laura Kolaczkowski author
    4 years ago

    it’s the eyes – please try the download again. There is good information in there is you can get past the stare.

  • alchemie
    4 years ago

    But I love zombies 🙁 Horror movies have been my favorite kind of movie since I can remember. I even created this signature, after I got diagnosed: “Multiple Sclerosis sucks… but zombies don’t want to eat my brain!”

  • Laura Kolaczkowski author
    4 years ago

    Thanks for the laugh – Zombies are big, everywhere. Thanks for commenting- Laura

  • itasara
    4 years ago

    AFTER reading the comments, I downloaded the conversation to see for myself. Here are my comments: I thought the cartoon individuals were rather clever. I did not like the eyes, however. They stuck out and would look better if they were more realistically designed! I did not feel the characters were scary but everyone has his/own opinion. The conversation was actually well done and very “smooth” in its presentation. I think it is a great idea especially for new MS patients or those not particularly knowledgeable about MS. One suggestion (and maybe I missed it) would be to let viewers send in their own questions that could be answered in future sessions.

  • Laura Kolaczkowski author
    4 years ago

    The information in this one is good, but the eyes have it!LOL thanks for sharing your thoughts, Laura

  • Laura Kolaczkowski author
    4 years ago

    The link is the red word ZOMBIES but you can also access it through
    http://myalivemed.com/Topic/54W5/Web/MS-Conversations

  • Cathy Chester moderator
    4 years ago

    I have worked for and with CMSC, Laura, and I take great exception to your piece. While I’ve never taken a look at what you are referring to, I dislike bringing any kind of discredit to an organization who does so much good for so many. Everyone associated with CMSC works tirelessly and their efforts deserve a little more than what is written here. I think there could have been a better way to voice your opinion about this exceptional organization whose only mission is help those suffering from MS. We’re all on the same side.

  • Laura Kolaczkowski author
    4 years ago

    Cathy, I hope you will take a look at the site and then tell me the images they have of people in their virtual room are ok. As I wrote in my piece, I am a big fan of CMSC and I still am. They just missed the mark with this one. best, Laura

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