Overrated Things About Having MS

Overrated Things About Having MS

Overrated 

“(of something) considered to be better than it really is” – Cambridge dictionary.

Over-rated is a buzz word these days ever since a high-profile person’s tweet went out about a famous actress being overrated. It got me started thinking about what else might be overrated and I immediately came up with this list of things we might have because we have multiple sclerosis that are also  over rated

Handicapped parking permit

“I wish I had a handicapped placard so I could  park close to the store entrance.”  Most of us have heard someone else covet our pass.  We get that pass to park as close as possible because our walking doesn’t work like theirs’ and we tire much faster. Saving steps in the parking lot make a difference in making it through the store for many of us. The handicapped pass is definitely overrated because way too often there are no designated spots available and we still have to park further back in the lot.

Disability income check

“You’re so lucky to get a check but not have to go to work.” To get disability income it means you had income from some source before you became disabled.  Disability income is NEVER the same amount as your pre-disability check. My private disability insurance plan through my employer pays me 60% of the income I used to earn – I guess the cut could be justified because I no longer need to drive back and forth to work and don’t have to buy clothes or lunch but those costs have been replaced by medical bills. Please, don’t be envious of those of us who get disability income, because it is overrated.

Drug assistance plans

“All the drug companies have plans so you don’t pay for your drugs.”  Sure, the pharmaceutical companies offer assistance plans to buy their disease modifying therapy  (DMT) drugs with little or no copay amounts, but that is only for people who have private insurance. Government insured people, including the military and their dependents on TriCare, Medicare and Medicaid, never qualify for these programs thanks to the way their government drug supplier contracts are written. There are no assistance programs for all the other drugs we take in additional to our DMTS. Don’t be lured into thinking these programs are great because they are overrated for many except the drug company.

A free pass to sleep more

“If you’re so tired, why don’t you go take a nap and get some rest?” MS naps are overrated – they are forced on us because of MS fatigue and are a necessity and not a luxury. Unless you have MS fatigue, you really can’t understand what it feels like. MS naps are overrated because no matter how long they might be, we still awaken tired and feeling as if we had not slept at all.

The perception that there are perks we get from having a chronic is a tough one to understand and I‘m sure you can think of other things overrated by others who don’t have MS.  I hope you appreciate the irony of someone envying our MS perks knowing all of us would happily give them up in exchange for good health.

Wishing you well,

Laura

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The MultipleSclerosis.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

View Comments (4)
  • katrina
    2 years ago

    I still hide my handicapped parking placard in the glove compartment when I’m not using it because I’m embarrassed by it. I’m still relatively young. People who abuse this or are envious have no idea how hard it is to shop when walking is difficult and or fatigue takes over. I would gladly give back that placard for a life free of MS.

  • Juleigh
    2 years ago

    Awesome article Laura! I can relate to everything you wrote about: parking pass, disability check, drug assistance, and sleeping. I’ll trade all those overrated things to be healthy enough to walk further, work, not need meds or naps. Who with MS wouldn’t??

  • Julie
    2 years ago

    Love it! Yes, having MS is overrated.
    What I wouldn’t give to hike across a busy parking lot AND be able to walk around a store then take the goods home and put them away. Just typing that wore me out!

    Lucky me! I get to sleep all I want during the day. What they don’t know is that I was awake all night with pain in my legs that shoot all the way down to my toes. No, I’m not feeling sorry for myself, it’s just that I don’t feel so lucky.

  • mario lobo
    2 years ago

    What a great article, Laura!

    This reminds me of an MS caregiver support group meeting I attended several years ago, during which a young lady who was the caregiver for her Mom recounted a humorous conversation her Mom had with her neurologist. The neurologist asked her something like, “So, how’s the MS?”, to which her Mom replied, “It’s overrated and definitely not all that it’s cracked up to be.”

    Isn’t it peculiar how people interpret situations in the lives of others! When my wife’s MS had advanced to the point that she could no longer work, a friend she hadn’t seen in a while asked her how work was going. She explained that she was suffering with MS and that she could no longer work and was staying at home. Her friend replied, “Lucky you!!!”

    Thanks for your always interesting posts!
    Mario

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