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There Should Be Rules to This

There Should Be Rules to This

There’s a familiar adage commonly used to indicate when a series of (normally unfortunate) events occur one after the other, or worse, simultaneously. That adage is: “It’s always something” – and indeed, it seems that’s accurate. Prime example: here I am, battling a chronic, unpredictable, degenerative disease as a single mother of two, dealing with having to involuntarily medically retire from a job I loved, and having to depend on others for a myriad of abilities MS has claimed from me. Yet, life doesn’t stop, and the everyday ‘stuff’ of varying degrees continue to transpire.

I’m a strong, optimistic and resilient woman

Admittedly, not always due to wanting or having to be, but rather because it’s a learned behavior perhaps from watching my parents, their siblings and parents, or perhaps it’s innate, simply what is within me, what I’m made of, I consider myself a pretty strong, optimistic and resilient woman.

All the things we deal with

Dealing with a host of difficulties related to Multiple Sclerosis? Progression, as in worsening of and/or newly developed symptoms, of the same? Troubles at work – especially due to injury or disease? Trying to decide the right DMD and other prescriptions? Pain, spasticity, itching, burning, etc.? All while still encountering the other situations life can present? I’ve determined it isn’t a bad idea to want to implement a ‘rule’ or two for a tad of relief from such a living whirlwind.

Rule #1: One at a time!

There can only be an issue at a time with a two-week break (or more) in between. Example: You’re having trouble getting money to pay for a medication. Once settled and received, a new issue cannot arise until two weeks later – at the least!

Rule #2: Making plans

Plans can be made up to three weeks in advance with no fear of illness or exacerbations rearing their ugly heads. For example: Go ahead and RSVP that you will attend the employer’s holiday party – with confidence that you’ll be feeling just fine and with no other hindrances.

Rule #3: Adverse life situations and MS shouldn’t overlap

Should you receive an MS diagnosis, all adverse situations should immediately cease. Or, in turn, should you be in the midst of adverse situations or a busy season in your life, MS should be sent away. As in far, far away. Period.

Unfortunately, the aforementioned rules are ‘funny/not funny’, but the following two rules are very real. They can and should be complied with to make a whirlwind life manageable.

Rule #4. Take one day, one moment at a time

Although many like to view the ‘big picture, that can be overwhelming. Prioritize your nuances and tackle one at a time. Something or someone may have to wait, but you can only do what you can do.

Rule #5. Steer clear of the pits

Yes, things may look irrepressible, but being alive means that you have conquered another moment, hour, day and even if you think ‘now how did I get through that?,’ just recognize that you did and give yourself the credit you deserve. Use that credit to stay encouraged, focused and positive. It’s needed to keep your head in the game,

There’s another adage that says “when it rains, it pours”. Rules one, two and three would be great but are sadly unrealistic. However, hopefully, rules four and five will be your ‘umbrella’.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The MultipleSclerosis.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • Nancy W
    10 months ago

    I went to the dentist and he gave me a temporary fix so it wasn’t as fatiguing as I expected. Pain is gone and I get the root canal next week.

    But, I am so glad my hubby drove. It is raining like crazy here and there was an accident on the highway on the way there. He went some back way and got me there only 10 minutes late.

    I came home and slept for 2 hours so feel good now.

  • Dianne Scott moderator author
    10 months ago

    Ahhh @nancyw421 !

    I’m so happy that you’re husband was able to drive you.. You didn’t have to worry about that part. And I’ll bet that 2 hrs of sleep was good for you after the early and event filled day! ☺

    Thanks for following up to let us know how things turned out.

    Take care,
    Dianne♡

  • Nancy W
    10 months ago

    Thank you for your rules. #1-3 would be wonderful too, even if we changed it to only one issue a day. I said to a friend this morning, “I am the most delicate person who looks good, that you ever met.”

    I have a toothache that has been getting gradually worse over the last few weeks. The dentist has not been able to pinpoint the reason, even though I saw him yesterday. Finally, it got bad enough today that I will see him tomorrow and probably get a root canal. Add this to MS and I see how much I manage my life around my MS. My appointment is at 7 am and I will be shot the rest of the day. That is a given. But, will I have a digestive upset due to having to get up that early and eat breakfast before I go? I cancelled a special pelvic floor PT appointment for later that day and have to wait til Feb 20 to reschedule that. But, as your post says, I will look on the bright side. My hubby is home tomorrow so he can take me. The toothache is not so bad that I can’t deal with it today.

  • Shelby Comito moderator
    10 months ago

    Ugh @nancyw421, toothaches can be so painful! Juggling appointments and health needs can definitely snowball and cause a lot of stress. I’m glad your husband is able to be with you for your appointment today. I hope everything goes smoothly, and it helps alleviate your pain. Please keep us posted on how you’re doing! Best, Shelby, MultipleSclerosis.net Team Member

  • Donna Steigleder moderator
    10 months ago

    Thanks for sharing your rules. I support you all the way. Where can I go to vote on them? I’ve often said the same thing but so far haven’t been able to get them implemented. Good luck with your campaign to move them forward.

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