Rx ‘OrIcan’ Prescribed For Perception
There seems to be medicines available for most ailments. I remember when I was diagnosed with multiple sclerosis (MS), I was advised there was no cure, but rather DMTs (disease-modifying treatments) designed to slow the progression of its course. In addition, to manage the symptoms of MS, there were medicines available that could be prescribed to make them as bearable as possible. I only wanted what could help me get through my day, to continue to live my best life. The neurologist explained that some worked better than others, but we'd ‘tweak’ them accordingly to make them work for me. Feeling a bit out of sorts about my new normal, I discovered quite quickly that the best medicine was not covered by insurance nor found over the counter. OrIcan was a very valuable and effective personal Rx needed to live - and I didn't need my doctor’s prescription pad.
From Rebif to Tysari to Gilenya
The first DMT I was prescribed was Rebif. For me, it was like injecting doses of ‘ineffectiveness’ into my system. It didn't help and I experienced severe reactions to it including painful site soreness, paralyzation, and nausea. This went on for months until I was forced to make the decision that the doctor had been wanting me to make which was to switch to an infusion, Tysabri, that they thought was a good ‘fit’ for me. But I resisted due to the risk of contracting a rare, but existent side effect called PML - a fatal brain disease. I couldn't tolerate Rebif, Tysabri was scary, but read to be very effective... what was I to do?? After I faced another frightening reaction to Rebif, I took a dose of OrIcan, switched to Tysabri and loved it for years until I had to stop at which time I switched to an oral DMT, Gilenya.
My life revolves around MS
Amantadine, Oxybutynin, Keppra, vitamin D, hydrocodone (Tylenol w/codeine) are prescribed for such symptoms as, respectively, fatigue, incontinence, seizures, vitamin D deficiency, and pain. I still experience fatigue most days, toileting ‘episodes’ at times, and a seizure or two after taking the medicine. And even after taking Gilenya, I’ve acquired new symptoms and progression. My life revolves around multiple sclerosis… or multiple sclerosis revolves around my life… and the DMT's and prescriptions do not take that fact away. They help, but I need more to navigate through my MS peregrination. It's frustrating to say the least and definitely necessary to turn to my own medicine cabinet, my own vice - my personal Rx, OrIcan.
My personal Rx, OrIcan
Through science, multiple sclerosis’ symptoms may be somewhat manageable to many with medicines. However, coping with its effects on one’s life requires something more, something that can tap into one's perception. That is when I found a ‘friend’ in my very own Rx, OrIcan.
Though I could appreciate finally knowing what was wrong with me, I still felt overwhelmed at what the answer was and what an MS diagnosis meant for me. It was necessary to take my first dose of OrIcan... I was faced with the option to fall apart and consider life over for me because I have a chronic, degenerative disease, Or I can recognize that now that I know what's afflicted me for the past six years that I'd been un- then misdiagnosed, I can acknowledge the relief in knowing, receive the necessary treatment, and seek ways to manage my life in spite of my diagnosis.
OrIcan to help me live my best life
I can perceive choosing an effective DMT confusing and formidable Or I Can calm down, study various DMTs and other medicines, trust what my doctor and I have chosen for my care, pay attention to my body, and ask my provider questions for clarification if and when needed in order to find some peace.
My ‘take as needed’ personal Rx for a healthy perception is OrIcan:
Give up, give in, be defeated.. Or I can... think positive, be optimistic, and recognize that whatever is available to help me live my best life is just that... something (albeit scientific or psychological) available to help me live my best life.
Have you ever experienced any of the following financial struggles due to your MS?