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There’s More?

So I would like to talk about day-to-day well-being. I’m not saying this is what it’s like for everyone, but it is for me… and many others I know that have been diagnosed with Multiple Sclerosis.

Okay, so MS is the ‘big’ thing that I’m living/diagnosed with… but that isn’t all I’ve been diagnosed with… I have also been diagnosed with more ‘common’ (not as life changing) as MS.

So – just for a bit of background, let me just say that I’ve been a walking accident ever since I was little. If there was something to fall/trip over (yes even flat surfaces) I was the one to do it. I was very active in sports and things like that back in school, and my mother liked to tell me that I did things in life going 110mph…

Needless to say, I’ve broken a few bones here and there since I was like… 5 years old. Two of the times I broke a bone, I had to have surgery and pins inserted, and all that lovely stuff. Okay, I’m rambling… what am I getting at?

I have arthritis. Living with that AND multiple sclerosis, I can tell when the weather is going to change without looking at the forecast a day or two before the change happens. (Mind you, I live in Texas… so the weather is bipolar.)

Interesting enough, when I was getting imaging done when they were trying to figure out what was causing my symptoms (prior to being diagnosed with MS) they told me I have degenerative disc disease and spinal stenosis. After those two findings, I then got my diagnosis of MS.

Now, this is what I’m talking about when I named this blog “There’s More?” because when I’m hurting or having obvious pain, everyone assumes/blames my MS, but that’s not always the case. Now do I think that the pain I experience is worse because of my multiple diagnosed issues, YES.

So, the moral of this story… I’ve experienced it and heard from others with MS, that we usually aren’t JUST dealing with MS, but multiple issues… Like being diagnosed with MS isn’t enough as it is… I know that I’m reaching my limit of ‘strength/tolerance’ on dealing with all the medical issues I’ve been handed.

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xoxo

Ashley

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Comments

  • cabotsmom
    2 years ago

    Well I have no idea what else I have as when I was diagnosed I said
    That[‘s IT for me. MS was more than I could handle and enough. So as a physician and now a former physician I know what it is to dig and dig until you find maladies. No thanks. This nasty disease ended my career way too early and my family isn’t terribly supportive so I intend to live the rest of what is left of my life on my terms. I don’t care if there is anything else as I won’t treat it. Early on in my schooling the one thing (yep I sometimes even paid attention in class) I remember is “that for every action there is a reaction.” As a physician I was always cognizant of that fact and laid all the options out on the table and let my patients decide (or their family – their choice.) I decided when I got the formal diagnosis I would do that for ME.I would not put my husband in debt because of maladies that were not going to get any better or that could possibly make my life and his worse. I do believe I have accomplished most of my goals and that I did what I was sent here to do and the rest, well we shall just leave that to chance. I have seen too many people put on too many drugs with too many procedures only to expire as they would if none of this would have happened. So for those who enjoy the doctor visits (I was ER so I am sure no one enjoyed visiting me) I do not. My friends – well most of them get it as we are of the cloth but some don’t and I am okay with that. I believe that everyone gets to live their chosen life and this MS is sometimes more than I can bear so why worry about anything else because FOR EVER ACTION THERE IS A REACTION.

  • jennyb
    2 years ago

    I have MS, and have been diagnosed with psoriatic arthritis, Menier’s Disease, psoriasis, osteoporosis. I recently had pulmonary embolisms and am on warfarin.I had Hodgkin’s lymphoma 2 times a long time ago. I call it disease de jour. I never know why I hurt, arthritis or ms. I like the fire on for arthritis, but it can make me sick from MS!!! Can’t win! h I take the same oral meds for both of those diseases, so that is a plus! I enjoyed your article.

  • alchemie
    5 years ago

    I have more than 1 too: MS (of course!), Arthritis, Asthma, the “crazies” heh, GERD, and Fibromyalgia. I’ve also had a subarachnoid (brain) hemorrhage and hyperthyroidism in the past. However, since the MS diagnosis, I also have known that there was something else going on for a couple of years though, besides the above. I’ve been tested for so many things since: Lupus was the main one that they thought it might be and even though I’ve had 2 positive ANA’s no diagnosis of it.

    But as of this week – I “flunked” 2 different insulin level tests. They were both low, with one being a 12 hour fasting test. Now I’m scheduled for the 3 hour glucose tolerance test, of which I have to fast for again. I’ve actually taken this test before, when I was pregnant over 10 years ago before the MS diagnosis. I flunked the 1st test but passed the 2nd one.

    All I can say is, knowing that 4 of my relatives have had Type 2 Diabetes (3 have passed on; my younger sister has it), and jokingly saying that I’d trade them, well- that may have came back to bite me on my butt.

    Who knew that a 42 year old that weighs 120lbs could end up getting Type 2 Diabetes? I sure didn’t. I guess my genetics just suck, lol.

  • hadel
    6 years ago

    Hello Ashley and followers,

    I also suffer from multiple issues. I have ankylosing spondylitis (arthritis that fuses your spine together over time) and rheumatoid arthritis. Additionally I have been diagnosed with Bipolar 1 rapid cycling. I have to wait for two hours after I wake up to determine if I am having MS pain or arthritis pain. All of it is rather exhausting to tell you the truth. But at the end of the day it is what it is and I am stronger than this challenge.

  • Ashley Ringstaff moderator author
    5 years ago

    Love your attitude!
    I can totally see where you’re coming from on determining exactly “what” pain your having… or what the cause is. It’s difficult at times, cause MS affects so much, it’s like okay… maybe it’s a bit of my arthritis and my MS? So confusing! Especially when I’m asked how I’m feeling at my neuro’s office.

  • Sonya
    6 years ago

    Hi Ashley!
    A belated Happy 2014 to you!
    I sometimes think to myself….can anything else be wrong with me? I have arthritis, degenerative disc disease, glaucoma, high blood pressure, IBS, & have had skin cancer.
    Seems to me, if it isn’t one thing hurting, or being bothersome,it’s another!
    It is what it is, & it’s up to me to make the best of what I have been dealt 🙂
    Sonya

  • Ashley Ringstaff moderator author
    6 years ago

    I like your attitude about everything, cause that’s a hefty list!
    Wishing you all the best this year!

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