Unanswered Questions

I’m guessing that a lot of us have thought or questioned many things since being diagnosed with MS. Am I going to be in a wheelchair? Is my medicine working? Am I over doing it? The list goes on and on.

Have you asked yourself those questions and more? Have you thought to yourself, “I wonder what I’m going to be like in 20 years.” There are SO many questions and thoughts we have that really don’t have an answer to them. I’ve heard myself and many others ask multiple times on different things… Is this NORMAL? As in, is it normal to feel a certain way with MS… is a certain symptom ‘normal’. When honestly, is there really ANYTHING normal about MS?

Like right now… the weather is has gone from below freezing to highs in the mid-70’s in Central Texas and it’s supposed to go back down to freezing again, or close to within the next few days. My body does NOT like this AT all. So I’m sitting here wondering, is this ‘normal’ for my body to do because of the bipolar Texas weather, or am I in a flare?

So right now, my spasticity has increased by A LOT. MS has affected the right side of my body in the past, so it’s always been a tad bit weaker than my left side. But now, my right side is extremely weak and my foot is dragging (foot drop). So, it’s kind of like a waiting game, because there is no actually way to know WHAT is causing this, unless I have an MRI and rule out if I’m in a flare or not.

I’m not wondering if I’m going to end up in a wheelchair, because I’ve already been in one, but I’m wondering if I’m going to need it again in the near future.

And as I’m going through this, I have people close to me telling me to take it easy and don’t “over do”. Well, now here is another unanswered question… define “over doing it”…  So, instead of doing things I had planned on doing this weekend, I’m sitting around the house and now deciding to write it all out.

Do you ever wonder if the unanswered questions ever stop? I have. It always seems like when maybe I have an answer to one thing, another thing pops up.

For example, in the past when I’ve had a flare that was identified on an MRI, why did I have a flare? What exactly caused it? Do I need to change certain things in my daily routine? Do I need to evacuate Texas during the summer months with 100+ degree temps? Yea, there can be suggestions made to these questions but there aren’t any solid answers for them.

I remember when I was first diagnosed, a really big question I had was, “Why me?”  What did I do to get MS? How do they know for sure I’m not a more progressive form of MS than RRMS, just because I’m ‘young’? And I was told that being diagnosed at the age of 22 was a good thing, because I could start trying to slow progression since the MS was caught earlier on in life.

Then I’ve had different healthcare providers ask me, “When did your symptoms start?” Well honestly, I have NO clue… I mean I know when the symptom started where my face started going numb, that led to me being diagnosed months later. But now that I know all of the symptoms that MS can cause, I realize that there were signs here and there years before I was diagnosed, but I just didn’t know.

Well, those are just SOME of the questions that have gone through my mind and I’m sure all of y’alls as well. I’m just hoping that one day in the future, we have answers to all these questions and no more MS to deal with AT ALL. I can honestly say that I’m VERY tired of having more questions than answers, that’s for sure.

xoxo

Ashley Ringstaff

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This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The MultipleSclerosis.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

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  • Jen
    5 years ago

    I was Diag. in May of 1997. Unfort the only meds were steriods, but they claimed I didnt need them then cause my vision came back after I was in the hospital for a few weeks. I hate to tell ya this but yes those questions are gonna be daily and yes any little change in anything will make your MS flare up , atleast w/ me. Stress is my biggest trigger. Unfort I have the type of MS that effects me daily but not as many flare ups. 1st one was in 1997, then the last flare up was this past summer the new symptoms lasted about 5 months, then this past Dec the Apt complex I love in got lazy after the 1st snow and didnt pour rock salt so I am back in a flare up w/ crazy symptoms inc. Kidney Stones, bladder infections, and my muscles still wont heal right. I am not sure if you are on any meds but I have problems w/ the Interferons ( they actually make me worse) and the other meds cant take until I get off daily prednisone therapy and I take 500mgs of amoxocillan or more. Unfort I dont knwo why and neither do the Docs so they claim but if I dont take atleast 500MGs of Amox daily I end up bed ridden. I love the way Prednisone along w/ other meds help me have somewhat of a life but unfort I have to taper off the prednisone for now or at least get it to 5mgs a day cause the water weight is bad and its also affecting all my blood work I believe. Ofcouse the Docs are still fighting w/ eachother on what to do w/ me. I hope things get better and the best type of therapy besides meds you can do is Aqua Therapy

  • boomer51
    5 years ago

    I was dx when I was 28 at a time when there was no medicines to help. My doctor at the time when I asked if I would be wheelchair bound he simply stated he didn’t know and that I should continue to go ahead and live my life. I was only married six years with a three year old daughter upon which he told me to continue to have more children if I wished. I have followed that advice for thirty-five years.

    Life has been good as I learned to adapt as I got worse. I have progressive ms now and have never taken any ms drugs. I can still drive and am mobile (using a cane for long distances but able to handle without around the house).

    I know of so many people with ms that show no symptoms as much as those that do. My advice is take one day at a time and always remember this: Don’t worry about those things what you cannot do but what you can do do better.

    Take care.

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