I learn a lot of things about my MS daily. And by that, I mean I’m told by people what they think could have caused my MS. In other words, a lot of unsolicited opinions are given (insert eye roll here). The other day I learned from someone, whom I had just met, that artificial sweeteners caused my MS.
Actually, it went like this: “You don’t drink anything with artificial sweeteners, do you? Because I heard that can cause MS.”
All I could think was, “Wow.”
Things you shouldn't say to people with MS
The audacity of some people. Nope, sorry, I don’t want to hear that, nor do I believe that. Things like this definitely fall under the category of things you shouldn’t say to people with MS. The truth is unless you have MS yourself, you’re a known MS expert, or you’re my doctor, then I have no desire to hear your opinion on what caused my MS! I especially don’t want your opinion if it's an unproven fact. Honestly, I’ve had MS for almost 15 years now, so it’s a little late for your thoughts on what caused it.
Oh, are you an expert now?
It seems like people do these kinds of things often. They have a friend with MS or saw someone on TV with MS, so they’re now experts. I think what gets to me most is that when and if I tell someone that I have MS, I always tell them when I was diagnosed. For those who don’t know, that was in 2004. So, I find it funny that despite knowing that, people still like to tell me what they’ve heard in regards to MS. I honestly do appreciate their concern, but I don’t appreciate them telling me myths I’ve already read about. As someone who’s had MS for over a decade, I stay in the loop when it comes to anything about multiple sclerosis. I like to stay informed and up to date on anything new. Not to be rude, but if you want to tell me something that your best friend’s, sister’s uncle told you about MS then I just really don’t want to hear it. It’s not just people sharing what they’ve heard that causes MS either, it’s people telling me what can magically rid me of MS. People, PLEASE!
Power juice isn't going to cure my MS
For example, another one I got recently was how juicing could cure me (insert second eye roll). I’m sorry to tell you, there is no miraculous cure. Believe me, I’ve done my research. And while I’m all for doing things to help alter my symptoms and make me feel my best, I don’t believe anything will just erase what I’ve dealt with for the past 15 years. Your power juice isn’t going to take my disease away. Telling someone with MS that something can cure them when you have no proof of this, and we know that it is untrue, is just cruel. Don’t do it!
A little more understanding would be nice
Don’t get me wrong, I enjoy learning new things that improve the way I’m feeling. I don’t always hate people talking to me about MS. I truly do learn something new daily, whether it's a fact or not. And, I enjoy speaking to others with MS and learning what has helped them. However, I don’t want to be told myths, and I don’t want to be told that you’ve heard of some cure that helped your long lost friend. I also don’t want you to push what has helped someone you know onto me. There is no one thing helps all. MS is different for everyone. It would just be nice sometimes if everyone understood that.
Have you experienced any of these vision symptoms? (select all that apply)