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What is the MS Cure?

What is the MS Cure?

I recently had a great conversation on Twitter about a particular off-label treatment that some patients use, or have tried, to combat various diseases, including multiple sclerosis. According to evangelists, ie, fans of the drug, this relatively inexpensive compounded medication treats such a wide variety of ailments that it just might lean toward miraculous.

The name of the treatment is irrelevant to the following conversation, so I’ll just say that fans of the treatment talk about how great it is. I’ve rarely seen discussions of its potential ineffectiveness or negative side-effects in MS forums. But I have read how it amounts to “a cure” for several diseases, in some people’s opinion.

What is “The Cure”?

If you had asked me what The Cure was in college, I’d say an English rock band that was fun to listen to because their music was SO DIFFERENT from the classical music of Bach, Beethoven, Brahms, Chopin, Czerny, Debussy, Mozart, Prokofiev, Strauss, Tchaikovsky, Kabalevsky, and more, I studied and performed every day while in music school.

If you had asked me what The Cure was just a few years ago, in reference to multiple sclerosis, I’d say a treatment that got rid of MS for good, transforming an incurable disease into a curable one through some amazing mode of action that worked for everybody stricken with this bizarre and relentless disease that frequently wreaks neurological havoc. Basically, I pictured no new attacks or damage, ever.

If you ask me what The Cure is today, I would first ask what YOU mean by cure — because we each have different ideas and opinions on these types of issues.

When I picture what the cure for MS might look like, I think of something that not just stops disease progression, but which reverses the damage that MS causes to the central nervous system. Complete eradication of the disease may be a successful cure. But look at diseases such as measles which was supposed eradicated from the US in 2000, it has come back due to lapses in vaccination practices. However, MS is quite different than the measles so that’s not a fair comparison.

Does remyelination equate “cure” in your book?

In thinking of my own experience with MS, my current disease-modifying treatment seems to have practically halted disease progression in recent years. Certainly I still experience many MS symptoms, especially the kind that get worse when I’m not feeling well, overheated, fatigued, or sick. I have damage that will likely never improve.

However, this overall improvement of my MS didn’t happen immediately; in fact, I used pulse steroids during the first year after switching medications because things just wouldn’t calm down. I even had some relapses about the same time I was due for a round of infusions but had been putting it off.

But once I got on a regular pre-emptive schedule with the infusions, things began to get better. I regained strength and function and haven’t had a major relapse in four years. My MRI scans are stable, even improved from two years ago. No new lesions in the brain or spine, and my cervical lesions have become smaller.

It’s not a cure, but definitely a huge success in my estimation. To be “cured” of MS, I would like to not experience any significant residual damage from previous attacks. I would like to experience complete remyelination. What my body has done on its own is great, but I’d like to see more.

So that’s what I would like to see as the cure of MS — no disease activity, no symptoms, no neurological damage, no signs of MS whatsoever.

Tell me, what does the “MS cure” look like to you?

Lisa Emrich | Follow me on Facebook |Follow me on Twitter | Follow me on Pinterest

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The MultipleSclerosis.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • faithkathy
    6 months ago

    I went to the hospital to do TEST and to my greatest surprise, I tested negative to Hepatitis B Virus just as he said it will be within 2 weeks of usage. Do not loose hope too soon. Contact him if you need his help and you can Email him on his email addresses:(voodoospell10@gmail.com) For easy and fast communication you can also call or add him up on whats-app…(+2348135790702)

  • zenhead
    4 years ago

    cure for me would mean being free of all symptoms – spasticity, cognitive issues, etc., and an end to the progression. basically, a cure means no more ms in any part of my body. it also would mean prevention, a vaccine or early interventional treatment. we can dream, can’t we?

  • JustsayN
    4 years ago

    Great topic Lisa! I will join in on the brisk walk on a warm day day with no missteps or staggers. I add that we will have lots of energy and all of the confidence that wellness allows.

    For me a cure would look definitely mean remyelination. Something that would erase the symptoms that have grown over the years. I just want to walk with ease and grace.

  • Candy
    4 years ago

    I agree with both of you!! A “cure” would be NO symptoms, NO bad days, remyelination, NO heat sensitivity and re-ambulation too! My body hates DMTs so I’ve not had them since I was diagnosed. The only thing I haven’t tried is LDN but my last MRI showed my MS is stable too. I am on the MS Paleo diet which did take away my debilitating fatigue two months after I started it so eating clean is worth it!!

  • Lisa Emrich moderator author
    4 years ago

    Hi Candy,
    Yippee, we are all of like mind! Sorry to hear that your body hasn’t responded well to the available DMTs. I found that things got A LOT better after I switched to chemotherapeutic anti-CD20+ b-cell drug (for my RA officially).

    While I’m not following a specific diet for MS or otherwise, I have been more conscious of what I eat during the past 6 months while I’m tracking my weight and activity. I’ve begun to notice a few foods that do make me feel more sluggish. Eating well does make a difference.
    All the Best, Lisa

  • Laura Kolaczkowski
    4 years ago

    Cure? To me it would look like you and me taking a brisk walk in warm weather without worrying about a misstep and staggering. 🙂

    Remyelination has to be in the picture somewhere for it to be a cure – i will be ticked if they find something but it leaves us where we are with our MS and doesn’t offer the hope for further improvement. I hope it happens for both of us. -Laura

  • Lisa Emrich moderator author
    4 years ago

    Laura,
    I love your imagery of enjoying the outside with a brisk walk without missteps or staggers. And I’ll add without dragging 50 lbs with each leg the farther we go. Complete nerve repair and remyelination would be great. I do hope we see it happen at some point. Researchers are working on it. Fingers crossed.
    Lisa

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