When the End Game is Expected

Beyond the slow creep on the track is the dramatic sharp curve or steep plummet of the rollercoaster. It’s not a secret. You know it’s approaching because even if isn’t visible at the start, you already know what this ride is all about. You already know what’s coming. The end game is expected.

You can ‘see’ it

Disregarding parental guidance while being reared, ignoring wise counsel along life’s journey, frivolous decision making on important issues, little thought given to life changing circumstances, noncompliance with the laws of the land… These are all examples of injudicious choices made that can lead to a clear outcome, a hapless outcome. You can ‘see’ it. The consequences will not be great because limited effort produces limited and poor results. The end game is expected.

Disappointed, but not surprised

Experiencing gait and balance issues, fatigue, pain in my limbs, headaches, heat intolerance and several other symptoms prompted my Primary Care Physician to immediately refer me to a Neurologist. He suspected Multiple Sclerosis and subsequently ordered several tests which confirmed his suspicions and I was diagnosed with Multiple Sclerosis. A second opinion corroborated the diagnosis. I educated myself on this degenerative, chronic disease and over the years, bore witness to the decline (primarily) of my fine and gross motor skills. I’m disappointed, although not surprised. And I’m not despondent nor disillusioned by what has or what can and may potentially occur. The end game is expected.

Prolonging the inevitable

The occupational therapist came in to work with me due to my ‘curling’ hands. She explained that this MS symptom is caused by a disruption in communication between the central nervous system (the brain and spinal cord) and the sensory nerves in the hands. We also did exercises to stretch them and extend the fingers, massaged them and I was prescribed splints to keep them open for periods at a time. All of this would prolong the inevitable – that MS would cause them to fully contract at some point. The end game is expected.

Buckle up and brace yourself

Some things in life you just see, you just know, you just expect. Amongst other emotions, they can be scary, overwhelming, and challenging. Preparation, however, (if at all possible) can be advantageous.

The rollercoaster – buckle up and brace yourself.

The life changing decisions – think smart and have a ‘plan B’ ready to implement.

And Multiple Sclerosis – employ commodities early in the course of the disease that can (or may) slow the progression such as a DMT, physical and/or occupational therapy, prayer, diet, exercise… whatever your specialist recommends and anything additional that might personally (and safely) work for you.

It’s essential to prepare yourself the best you can… when the end game is expected.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The MultipleSclerosis.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

View Comments (7)
  • MzT
    3 months ago

    Respectfully, I am past my 30 year anniversary and I am still fighting. I started with Ocrevus, I am in physical therapy and work with a personal trainer (by the way, I am not rich by any means) and sort of kind of try to diet right. I guess every person can say they are in the “end game” but we won’t really know until it happens.
    Please try to try! No one should just give up.

  • Dianne Scott author
    2 months ago

    Hi @mzt!

    I’m sorry… I think you may have misconstrued my message. I am definitely not giving up, but I am aware that things have changed along the way and am able to come to terms with the expectation of progression. I, too, am in therapy… I have both physical and occupational therapy. It’s a maintenance program and which the purpose is to allow me to maintain my current functionality at the least and if there is progress, that’s a plus. I do what I can while I can with an understanding that there may be a day that I cannot… That I accept because that is real, but I I am an optimistic and positive person so you’re right… Giving up is not an option.
    Thanks for reading, sharing and encouraging!
    Best wishes,
    Dianne ♡

  • mikevallo
    3 months ago

    I’m there and it sucks! I’ve been dealing with this beast for over 40 years (I’ll be 61 on October 30). It really hasn’t been an easy life, and it got exceedingly more difficult at the end of last year. I was still able to get around by myself and led an active life with my wife (Patty), also an MS victim. So, I woke up one day in late December, 2017 and couldn’t get out of bed, so I called 911 and asked to be taken to the hospital. M

  • mikevallo
    3 months ago

    Sorry, I hit the wrong button. My manual dexterity isn’t actually stellar…allow me to continue.

    At that point, my legs had totally given out. I could no longer transfer. I now have to be lifted in and out of bed, on and off the toilet. Oh, travesty of travesties! Don’t ask how I can speak so glibly about this, but if I couldn’t laugh, I would collapse in a ball of misery…and I don’t need that!

    Well, after the hospital, I was sent to Corning Center a rehab institution/nursing home in Corning, NY, where I remain to this day. I’m currently in the process of gathering aides to care for me at home. I hope to be out of here in a week or two. I miss my wife terribly, that’s been the worst part of this ordeal. Although we speak on the phone, I’ve only seen her a handful of times in the last few months. Miss her so much!

    In parting, just let me add that most of the staff here are wonderful, caring people. A few are even following me home to be part of my team (Team Mike?)

    On the other hand, most of my roommates have been insufferable bastards. I don’t say that lightly. The crap I’ve had to put up with! I’m an easy-going, unassuming guy. I guess maybe that I just want out of here!

    I’ll stop ranting…have a nice day!

  • Dianne Scott author
    2 months ago

    Hi @mikevallo

    That’s alot and trust me… I get it so I feel and understand your rant. I am going to challenge you, however, to identify and focus on some positive aspects such as your loving wife, you’ll be going home soon and with a team of aides… Even some from the facility that you already are familiar with and have a rapport with, you’re able to go to the bathroom even with assistance which means you’re not bedridden and catheterized.. Everyone can’t say the same. Sometimes, I find when life gets so hard with any circumstance, I have to find a bright light somewhere no matter how small it may be to get me through to the next hour, half hour, or minute.
    Happy (belated) Birthday and congratulations on going home! #TeamMike

    Best wishes,
    Dianne ♡

    P.S. Thank you for reading my article and taking the time to share some of your story!

  • llfagan
    3 months ago

    Miss Dianne, this article is perfect. You’ve hit it out of the park with this one. (P.S. Beautifully written, too.)

  • Dianne Scott author
    2 months ago

    Thanks so much, @llfagan !
    I appreciate you’re reading my article and taking the time to comment… Take care!
    Best,
    Dianne ♡

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