Why Are You So Negative?
Do you know how many times, someone has asked me why I’m so negative? Or why it doesn’t seem like I have hope? I can’t even remember how many times, but way too many, lets put it that way.
I know you’re probably wondering where I’m going with this exactly, but hear me out. I’m not a negative person, and I do have hope for a cure for MS and many other illnesses like it. However, it’s a bit different when you’re actually living with an illness.
When people bring up things they ‘heard’ or something they saw on Dr. Oz, or something like that… they share what they have heard with me. I really appreciate them thinking of me, and sending the information my way, but sometimes it can be overwhelming.
So let me explain the fact that I am signed up to receive all MS news updates to be sent to my e-mail as soon as it hits the Internet. How do I do that? Well, I make a Google Alert, with the key word multiple sclerosis, and I can choose how often I receive the updates.
With that being said, when all these up and coming new medications popping up, it seems that things are looking up for those with MS, and I’m not arguing that. I’m also not saying I’m against trying the new medication coming out… So people wonder why I’m not super excited, over the moon, jumping for joy, etc.
I wanted to take this time to really explain why I react the way I do. I don’t show much emotion when I hear these things, because I’ve been there done that. Meaning I’ve sat there and waited for a medication to be approved, so that I can start it immediately, because of all the great research and clinical trial results it came with. However, it didn’t end up working for me the way it did so many others.
While I am happy that there are more choices out there for people with MS, people also have to remember that a certain medication can work for some, but not for ALL. There is not a ‘size-fits-all’ medication for people with MS.
So, with me not taking well to the big headline medication, I’m a bit cautious now. It’s not that I’m NOT hopeful; I just don’t want to be TOO hopeful…. does that make sense? I don’t want to sit here and be let down, again and again, when I’m already dealing with the disease and it’s symptoms as it is. I’m living with an unpredictable illness that has NO cure to this day.
So no, I’m not going to jump up and down every time there is ‘breaking news’ for MS, because there is no telling if it will work for me PERSONALLY.
Now, because my reaction is polite, but not over-enthusiastic, people act like I’m a negative person, with no hope, and that I don’t even want a cure, which is so far from the truth, it’s ridiculous.
For all of those people out there, that think that since myself, or someone else with MS, doesn’t ‘react’ a certain way… or a way that the person expected, doesn’t mean we are negative people… or that we are Debbie-downers, etc.
That’s not it all… We are just people that have had so much hope in the past, and have tried all these new things, with no positive outcome. It’s called self-preservation… not negativity.
It could also be the fact that you’re probably the 10th person that has shared information with me, and you’re expecting me to scream and be happy and go try it out right away. Again, I’m not trying to be rude, I just get annoyed with it sometimes.
It’s kind of of like hearing Sheldon from Big Bang Theory say, “Did you know…” 50 times back to back.
Anyways, that’s all for now. I just had to vent a little about that, cause it recently came up in conversation. So for those of you who aren’t full of joy, hope, etc.? Don’t feel alone; because I know that you aren’t TRYING to be negative, you are just getting by one day at a time.
This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The MultipleSclerosis.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.