Since I’ve been writing for a few years… I have had so many people reach out to me. As many of you know from my previous articles, I tend to be a bit sarcastic and a big sense of humor. So I wanted to touch base on the fact that what I’ve gone through and wrote about, I’ve had many people reach out to me.
You are not alone
So my point is to let you know that whatever you’re going through, you aren’t alone. I know that many people feel like they are isolated… that you’re alone, and no one understands what you’re going through… or people don’t care that you’re going through with it. This is me letting you know that you aren’t alone. I’m not going to sit here and tell you names of people that have reached out to me, but I am going to tell you that 100’s of people have come to me saying that they are thankful that they now know they aren’t alone.
I remember that when I was first diagnosed, I turned into a hermit. I was scared and depressed. I felt like no one knew what I was going through. I didn’t want to hear what anyone had to say. I didn’t care what anyone had to say to me, or any kind of advice they were trying to give. Because all I was finding online were scary. I walked into the local meeting and walked right back out, because no one there was my age and they were all using assistive devices. Being newly diagnosed, that is NOT something I wanted to see.
Then there are the symptoms that no one really likes to talk about, because they’re embarrassing. But how else are we supposed to prepare for them? I mean I sneezed one time and peed a little bit. (TMI, I know). I was in my mid 20’s at the time, and there was no one I knew that could relate to me in anyway, so I just became angry.
Over the years I’ve come to realize that we aren’t as alone as we think. There are so many people out there that go through whatever we might be going through at the time; we just don’t even know it. I’ve now spoken to so many different people that have MS. All different age groups, genders, geographic area… you name it, there is a complete difference in our backgrounds. First off we have Multiple Sclerosis in common. Secondly, we have symptoms in common. I’ve had people message me saying I took the words out of their mouth.
Connect with others
Check out the discussion forum on MultipleSclerosis.net and there will be so many different topics, you never even thought about. One of the good things about communicating with others online is that you are behind your computer. You can be anonymous, and not worry about “coming out” to someone in your local community. I’m very forward when it comes to me having MS and what I go through on a daily basis. However, I know that not everyone is as forthcoming as I am. But for all of you out there living with this illness, I just wanted to reassure each and every one of you, that no matter what you’re going through, you are NOT alone.
(click on my name above for ways to reach me, etc.)