Those with difficulty or inability to walk, have you ever been able to recover to walk again?


Community Answers
  • lightweaver
    3 months ago

    10 years ago I did. Was able to exercise and walk distances. It lasted for 2 years and then I slowly lost it again. I know there is reason to hope.

  • Azjackie author
    3 months ago

    Thank you for sharing your information. Your right the hope is worth it.

  • Jan
    4 months ago

    Devin, I agree that a good PT can help greatly. At year 13 now, never MS DMDs but some foot edema and driving issues, I am faithfully working on the helpful PT exercises. Maybe this is a dream, but I’m feeling a bit claustrophobic in not driving and have the will to drive again. Great help from spouse and friends, but still.

    And 8 years ago I briefly came out of skating retirement–oh, how fun that was. SPMS has slowly been sliding in. And oh wow, I recently said to my neurologist, “Oh, I have had MS for 13 years, and it’s not going away and getting nastier?” We both laughed. (How’s that for denial? In reality I just do as I am able, and no one has a crystal ball. I asked. He doesn’t have one, ha.) But emotional stress is huge, and something I also work on.

  • Devin Garlit moderator
    4 months ago

    Hi Azjackie, never give up hope. MS is a wacky and unpredictable disease, not always in the negative way though. People do improve their walking. After my very first exacerbation, which left me unable to walk, I even recovered enough to run a marathon. That kind of change seems far off for my difficulties now, but nothing is set in stone. I also recommend working with a physical therapist, they can help you make dramatic changes and improvements to you walking. I really can’t recommend them enough. Depending on the cause of your issues, there may be braces or even a device that provides electrical stimulation to key areas to help you. There are many options out there to talk to your doctor about, and if they don’t suggest a physical or occupational therapist, you should bring it up.

  • Jan
    4 months ago

    Oh, and the PT is doing e-stim on my one leg/ankle really that is weaker. And I will ask if a brace exists for driving.

  • Azjackie author
    4 months ago

    Physical therapy is great. It helped me learn to walk again in 2004 after a drunk t-boned me in the middle of the day. Ironically same leg with foot drop today. Something telling me my right leg is doomed. Funny she also crushed my right wrist. When I’m suffering that wrist is hard to use. Hmmm where I had trama? Well I better watch out she broke 3 ribs over my heart too. Yikes!

    How many times do I have to learn to walk? I’ll first have to take care of the excruciating mid back pain with County Health Services before I try.

  • Jan
    4 months ago

    Devin, I agree that a good PT can help greatly. At year 13 now, never MS DMDs but some foot edema and driving issues, I am faithfully working on the helpful PT exercises. Maybe this is a dream, but I’m feeling a bit claustrophobic in not driving and have the will to drive again. Great help from spouse and friends, but still.

    And 8 years ago I briefly came out of skating retirement–oh, how fun that was. SPMS has slowly been sliding in. And oh wow, I recently said to my neurologist, “Oh, I have had MS for 13 years, and it’s not going away and getting nastier?” (How’s that for denial? In reality, no one knows, and I just do as I am able). But emotional stress is huge, and something I also work on.

  • Azjackie author
    4 months ago

    Thanks Jan for the falling advice. You are right about showers. I fell, bruised, ego destroyed (one step forward ten back, curl up balling destroyed). As I lay half in shower half on floor I think only worse from here. Collected myself and purchased a special grip on Amazon and realization completely dry before getting out. It is so hard and I don’t think I#m strong enough for more.

  • Azjackie author
    4 months ago

    Thank you Devin for the information. A marathon? That is very impressive and a great inspiring achievement.

    I neglected to say I am indigent, without a physician, and insurance.

    I’ll search online for MS specific exercises. Maybe I’ll walk without a rollater again.

    I have had MS for over 10 years. The last 5 have been the hardest. Losing my job, ability to work, insurance, self esteem…I’ve worsened from walking to wall walking, falling, cane, now rollater and crawling.

    I crave inspiational stories in my decline. The thought of running a marathon gives me hope to try harder.

  • Jan
    4 months ago

    Azjackie, I am truly sorry for all of that (and I can relate). I will mention what my neuro had recently said–to be careful so as to not wipe out on a (bathroom is most slippery) floor and break a hip. (I’m likely at a disadvantage in thinking I should be able to carry on as if I’m age 35, when I’m really 56).

    With prior skating, I of course fell enough. But this MS stuff is different; and I’m not the octogenarian I know a bit who still does axle jumps–not typical, but if not for MS, I’d still be skating. (Folks, the key to having sport longevity is to keep doing it continually throughout the years. If someone comes up with a cure for MS tomorrow, I’d be at an 8-year deficit, rather unwise now. Even my dr. gave up skiing because of not wanting to wipe out and risk another injury).

    So, other things prevail, such as writing. And coming to terms with the word, “acceptance.” Can’t say I am great at that one. But I’ve also learned that others don’t really care so much about a wheelchair or Mart Cart–I’m the one who does. So then, I’m the one who needs to better deal with this and educate others, too. (But watch out, as I can be a force to be reckoned with when on my SmartScoot, as can wield it at a good clip).

  • mrsaristotle
    4 months ago

    I think the trick is to pace yourself. We so want to walk more so we try extra hard and just that little extra push can put you back on your back so to speak.

    Tiny steps. Even just a few a day build up your core strength. It comes from the core. You have to keep walking a little every day, if you dont use your legs you loose your legs.

    My motto is this to keeping upright now, i am in pain if i do it, and pain if i dont. I get more out of my life doing it or at least trying so i take that path.

    It also comes from what we take inwards. Eat well chuck out the sugar, and you will gain enough strength to take those first few steps again. Magnesium helps to build your muscles.

    Applause for all of those who are trying the achievement is the trying even one step is a huge achievement just gently ok. xxx

  • Azjackie author
    4 months ago

    Thank you for your advice. You are right, don’t use it, lose it. I don’t know how to overcome my despair when I fall anymore. I used to get angry with MS and try out of spite. After 10 yrs it hadls become increasingly difficult and despair grows.

  • Jan
    4 months ago

    Azjackie, it is a bummer to fall. And risky. I vote to be prudent and avoid that. I do that myself; falling hurts more now.

    I wiped out last year forward on our sofa–a sofa!!–and flipped my wrist backward, fracturing it in a couple of places to the tune of a cast. More than 30 years of figure skating and no breaks. And then a cast after falling onto our sofa. Go figure! And now, a year later, it aches some–the hand dr. wants a specialized MRI (bones are fine–it’s about ligaments). Hmm: not sure yet about that. I want to avoid surgery, and my PT said the recovery would leave me without the ability to use a rollator, Mart Cart, or whatever. As long as it doesn’t exacerbate, I’d likely opt for some pain and no surgery.

    So you, like I, may need to work more on the word, “acceptance,” and only do as truly able. And find other stuff in which we can be effective and not frustrated. With not driving at the moment, while it can be hard to ask for help, I also remind myself that for someone to give (my preference but not so possible in ways I’d like), someone has to receive (that would be me). It’s a letting go, but a gaining in other ways.

  • MamiJo
    4 months ago

    I have been in a wheelchair for the last 3 years. I was finally able to walk some and even climb the ladder to get in the pool! I did too much and had to stop and slow down with my activity because I got to the point that I could not even lift my right foot! I am slowly working my way back up to walking. I pray about it every night!

  • mrsaristotle
    4 months ago

    I applaud you hun, well done for doing that its amazing. You just need to take a few steps back you over did it in your enthusiasm to walk, it will come right just tiny steps. well done. big big big hugs. xxx

  • Azjackie author
    4 months ago

    Thank you for your response. I appreciate the message. I know exactly what you mean by overdoing things.

  • Azjackie author
    4 months ago

    I hope too. I had asked after the 4th fall during house chores, a goody. I get depressed and wonder if I can get better. If I hear someone has it gives me strength to fight. Thank you for your comment.

  • lightweaver
    4 months ago

    I hope I can.

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