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Does anyone take pain medication?

So, I’ve had MS now for a few years. Lately, I’ve been getting really bad muscle tightening and spasms. It’s just so painful. What do I do? My doctor says MS is not painful, and I have barely slept in a week. I’m tired and in constant pain.


Community Answers
  • ColletteLeonor
    2 weeks ago

    I have had great relief using Gabapentin, baclofen and often use ibuprofen. Sometimes for spasms I use a heating pad….especially on my back. The gabapentin has not completely eliminated the burning and strong vibrations in my extremities. My neurologist has helped me to vary the dosages to maximize my comfort….though the pain or discomfort is never fully gone…..never.

  • ColletteLeonor
    2 weeks ago

    If your Dr says MS does not cause pain then you you need another Dr. I cannot believe a reputable MS neurologist would say such a thing.

  • vvxjr9
    1 week ago

    You are so right. I can’t imagine continuing to go to a neurologist that would say MS does not cause pain. It certainly does, unfortunately.

  • Donna Steigleder moderator
    2 weeks ago

    @jab2o10 Congratulations on your hard work in kicking your addiction and staying free all this time. It’s quite an accomplishment and speaks to your determination to take care of yourself. I’m thankful you are doing well and grateful you have shared your story with us. Thank you for being part of our commmunity. Donna S. Moderator MultipleSclerosis.net

  • jab2o10
    2 weeks ago

    My pain mgmt doctor prescribed opana. I took it for almost ten years. My doctor slowly increased the dosage to a point where I didn’t realize the horrible effects it was having on my health. I finally realized that I wasn’t thinking straight and had become physically dependent. It was a horrible experience getting off the opioid, but I did, and never again will I take it. I am also really surprised that I don’t feel worse since kicking the dependency.

  • meandMyShadow
    3 months ago

    My neurologist prescribed Tramadol (gabapentin). Works well enough. NO Opioids. I also take regular strength acetaminophen, when necessary, but use it sparingly. Have dealt with MS diagnosis for 41 years so am well-versed in its pain. Get plenty of rest and spoil yourself. Judi

  • Shelby Comito moderator
    7 months ago

    Hi @Jadanne, I’m so sorry to hear you’re in so much pain and that you haven’t found help from your doctor. While community members may share their personal experience with you, I thought you might be interested in knowing that many find it helpful to get a second opinion when their doctor isn’t providing them with the kind of care they need. I thought I’d also share with you this article on types of pain associated with MS and typical treatment options: https://multiplesclerosis.net/symptoms/pain-chronic-pain/
    I hope this provides you with some help. Keep in mind that treatments work differently for different people, so we definitely encourage you to speak with a doctor or specialist about what would be right for you. We really hope you’re able to get the kind of health care you deserve. Please keep us posted. Best, Shelby, MultipleSclerosis.net Team Member

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