Community Answers

  1. CynthiaV54 says:

    MS Has Changed My Life Complelely, I’m Depression, I lost most of my hair, I can’t to the things that I could before, I’m in pain I take it day by day and by BABY steps, I’m Very moody , I fighting this MS everyday and I will keep fighting until they find a cure! I keep Believing, And keeping Hope and FAITH and Prayers. Some days I want to give up. Because I get tired of My MS .

  2. I learned a couple of years ago that the best way to manage my MS during the holidays is to take my time preparing for them. I start a minimum of two weeks in advance with the baking, wrapping and decorating. That way, I can stop and rest when I feel the need to. It may take me longer to get things done, but at least I don’t wear myself totally out so I can’t enjoy my family and friends.

  3. ChristineP says:

    I don’t know how to manage them other than to continue making sure I make my health a priority. It seems others–family especially–seem to think that it can take a backseat to gatherings, festivities, and even my much needed medical care. They see my disease and treatments, symptoms, and need for care as secondary, and I fight to keep them primary, which causes so much conflict. Stress doesn’t help. So, I’m contemplating starting a family of friends who do understand and accept what is while letting the others bad-mouth and get angry with me go. I don’t need or want that in my life. My holidays will be bright and cheerful, because I will not allow my beauty, joy, and appreciation be stolen by those who are selfish. I am my priority as is my health. I’m learning to be OK with that. Joy and peace.

  4. DonnaFA moderator says:

    Hi Christine! You have a wonderfully affirming and balanced view on this. I am guilty of feeding into that kind of thought, and I try hard to remind myself that self-care is not selfish, but it is esssential. Thanks so much for sharing your thoughts. Happiest of holidays! -Warmly, Donna (MultipleSclerosis.net team)

  5. MS Not4ME says:

    Well don’t do much with my family because they don’t bother with me the rest of the year. It makes me sad that they and my friends seem to have forgot me.And one member of my family says that it was my doing,but it wasn’t .

  6. Kelly McNamara moderator says:

    I’m so sorry @MSNot4ME. It can be so frustrating when you don’t have support from friends or family. Some members have found sometimes online support from others in the community comes a little easier. Thinking of you during the holiday season. – Kelly, MultipleSclerosis.net Team Member

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