What support groups or in-person events have you participated in? What was your experience?


Community Answers
  • MArroyo
    1 year ago

    I just started attending a monthly MS Self Help group. All of us are pretty much in the same boat: diagnosed more than 10 years ago. It’s nice to hear about what others are doing day to day, which meds they have tried, etc..

  • nursePatly
    1 year ago

    I no longer attend drug dinners as I don’t like any mainstream drugs by Big Pharma and most people I know with MS just attend dinners to get the free meal, not to hear about the drug.
    I do like to attend intellectual talks about MS hosted by neurologists in the healthcare system. It was there that I learned about the OCT test that looks at your retinas and is a good predictor of how your MS will progress.

  • Marie T
    1 year ago

    I attend dinners given by drug companies. They have talks by a Neurologist and a patient on the drug at each meeting. They have questions and answers. These have been very helpful.

  • Nancy W
    1 year ago

    When I was first diagnosed, I went to a lot of presentations and to a support group. I learned a lot. If the groups were geographically closer I would still attend. But, it seems most of the ones I hear about are Over a 1/2 hour drive. I just don’t have the energy for that most of the time.

  • Kelly McNamara moderator
    1 year ago

    Hi Nancy. Thanks for sharing your experience! The geographical distance of support groups can really be a barrier to attending! – Kelly, MultipleSclerosis.net Team Member

  • Kelly McNamara moderator
    1 year ago

    Hi Nancy. Thanks for sharing your experience! The geographical distance of support groups can really be a barrier to attending! – Kelly, MultipleSclerosis.net Team Member

  • Kelly McNamara moderator
    1 year ago

    Hi Nancy. Thanks for sharing your experience! The geographical distance of support groups can really be a barrier to attending! – Kelly, MultipleSclerosis.net Team Member

  • Stephanie
    1 year ago

    I have been to several dinners by drug companies!! I’ve met several friends there!

  • Kelly McNamara moderator
    1 year ago

    Hi Stephanie! Thanks for sharing! These types of events can be a great place to meet others! – Kelly, MultipleSclerosis.net Team Member

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