Hi Kim!
Thanks for the response, it’s so comforting to finally speak to someone.
1) So I have had an MRI on my lumbar (to check for rheumatoid problems) and my neck, both came back fine but again no one was looking for lesions - and also one on my head coming up in June because of the dizzy spells I have had, my neurologist never mentioned possible MS - my doctors have not suspected MS and in fact it’s never come up. So far they blame fibromyalgia but, something is just different than anyone with fibro I’ve talked to. My nerves seem very tender, a lot of throbbing, and even last night I had this very odd sensation like someone was rubbing something sharp prickly on my foot ankle and shin, kind of like pins and needles. I’ve also had that in various random areas of my body. Aside from bad dizzy spells, sore feet, legs and general stiffness, my knees give way sometimes which almost topple me over.
2)I’m pushing the doctors for more even though they think I’m crazy and wasting their time, but I know deep down something just isn’t right. I wish I could get them to look into the possibilities of MS, but they don’t even bother. I do understand there are other diseases and problems that cause similar symptoms which I have explored such as going to a rheumatologist whom found no rheumatoid issues but I have no idea if they would have been looking for anything else like MS other then looking for symptoms of arthritis.
2)Right now I am on cymbalta and I get weekly injections at a pain clinic of bupivacaine - I also take medicinal THC oil- I started all these drugs at once so it’s hard to tell what exactly is working best, but either way it’s the best I have felt in 3 years, I still have the throbbing burning sensation in my legs and they are not as intense, stiff or heavy feeling as usual.
I have tried quite a few other medications to no avail, however I’m wondering if whatever I have is currently in remission or if it’s the meds.
1.5 years ago, I could hardly move from my office chair, and I no longer did any physical labor for my business as I just couldn’t move. So many people tell me it’s in my head because I think they see me walking almost normally and I never talk about the amount of pain I am in.
Anyway, I have an optometrists appointment on Monday to check my eyes, and I have requested them to check for any possible trace of MS. Will keep you posted, thanks so much for the reply, I haven’t talked to anyone about this in detail yet. Thanks.