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A Dream Come True At The Barbecue

When I first started my free Get Back Your Music jam sessions for patients with any neurological disorder, a goal was to form a “band of misfits”, if you will, made up of players with MS, Parkinson’s, CP, etc. That dream not only came true, we performed our first “gig” at the 2017 MS Center Barbecue. The band is called Axon, named after the long myelinated fiber that is part of a neuron. Our line up at present consists of three of us with MS of varying stages, a drummer with cerebral palsy and a keyboardist/guitarist with Parkinson’s disease. When we play music together, we are not aware of our various conditions. We are in the zone and enjoying making music. That’s our passion. Don’t give up on yours! Here we are

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  • Nancy W
    2 years ago

    I can so identify with this. I played the clarinet in a community band for 12 years until MS made it impossible for me to keep up and play in the heat. I participate in a weekly spiritual book discussion. I was just commenting today on how playing music in a group can be a spiritual unifying experience. I truly miss it.

  • PS98107 author
    2 years ago

    Thank so much for responding, Nancy! The reason I started Get Back Your Music is because I lost my ability to play multiple instruments because MS took that away from me but, I got my ability back because I didn’t give up, I was persistent and I got it back within a years time. You can get your ability back again too if you have the will to try and keep it up. I and a couple of members of my band are proof the brain can rewire itself.

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