I Was Told By My Neurologist Today That I Do Have MS. Finally!

By eritorres

1 min read

I was diagnosed originally in 2015, but I was non-symptomatic. My neurologist did not want to fully diagnose me yet. When I was originally referred to him it was for migraines I began to have and of an abnormal brain result.

I don't know if I'm ready for treatment and infusions

Then I was ordered another MRI of the brain and had a spinal tap and there is when they said I had MS. I have been seeing my neurologist every year and today he asked if I am interested in the injection treatment for MS. My only symptoms still are migraines and my cognitive thinking is a little flawed I have noticed, but I don’t know if I am ready for the medication treatment and the infusions. I do remember when I had two infusions when I was first in treatment.

I want to fight this

I want to fight this. I want to live a healthier lifestyle. I don’t want the disease to define me. I want to be in control of me. I have accepted I have MS, but I want to be a better me because of it.

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Devin Garlit Moderator
Thanks for sharing <inline-mention user-id="3987298" username="eritorres"/> ! You have a wonderful attitude! I've been diagnosed for close to 20 years, and while it has certainly taken from me, I have no doubt in my mind that I am a better person because of the disease and the challenges it has given me. You are in a great position, particularly if you start a disease modifying treatment early, before you have too many issues. The medications we have available now, particularly the infusion ones, are amazingly effective at slowing progression. I wish you well and hope we will see more stories from you in the future!
f5hwo4 Member
When I was diagnosed I wanted to slow down my MS, I had two aunts who had MS when there was no medication available. I had kind of a inkling of what they went through. One of my aunts had to move to assisted living when she was thirty years old. I ask my neuro about it and he wanted me to go research my choices. I am glad I did I started out with the newest drug for MS and it was covered by my insurance. My last MRI showed very little progression in the past 11 years since I was diagnosed. Potter
1. eritorres Member
 Thank you for sharing this <inline-mention user-id="4076865" username="potter"/> . I am the first in family to be diagnosed with MS. I will definitely start looking into the medication and the benefits.
moretocome Member
Hi, Glad you finally got diagnosed! I went through the same thing with a neurologist. He just did not want to say I had MS. All the test and brain scans showed that I did but he just could not say it?? Then, miraculously, we had an MS specialist that moved to my town. He’s a neurologist and all he does is MS patients. He is an expert! I had all of my records sent to him and he said there was no doubt that I did have MS. That was five years ago. I elected not to take anything and just try to live healthy and keep going and get plenty of rest. I just had another MRI done and I can’t wait until my appointment next month to see what it reveals if it’s worse or not. I watch what I eat and I do well. Good luck to you and your choices.
not found
You can fight MS with willpower, Erritores! MS Medicine should be a last resort. Proper nutrition and exercise should alway come before a decision to medicate as medicine, has side effects that are mistaken for MS symptoms, e.g., fatigue, sensitivity to light and effects of heat, etc. YOU are empowered to fight the disease and to rewire your brain!
1. not found
 I agree that healthcare providers should be seen and should be listened to, up tp a point, to get prospective on different treatment options, including organic; however, patients should always get more than just one opinion and from different neurologists, not Just one, and know that they, the paitient are empowered to make the final decision.
2. not found
 You've got the willpower and your neuroplasticity is built-in. Don't let it change. I haven't and it's been 17 years for me.

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