Excuse me, but I think I have a brain tumor

A headache. A seemingly benign symptom of life. I had one for 3 months that never went away. While suffering with that, I noticed dizziness. Then came the lack of ability to walk a straight line. I couldn’t stand without holding something for balance.
When I finally went to the ER, I point blank told the doctor, “I need a CAT scan, I’m pretty sure I have a brain tumor.” I’ve been a critical care nurse for 23 years, so the doctor obliged. She came back and said, my CAT scan did not show a brain tumor, but rather looked just like MS. That was astounding to me. Really? My scan must look terrible if MS showed up on it.
Turns out, the next day I had a MRI. I was diagnosed with Tumefactive Multiple Sclerosis. It’s a very rare type of MS, characterized by “tumor-like” lesions that measure 2-3 CM, not mm. That explained the headaches which steroids relieved, but didn’t explain how this happened.
It’s now 3 months after my diagnoses. My latest MRI showed small hemorrhages in my lesions. While my symptoms have simmered somewhat, I’m realizing what MS has given me.
In time, I will come to realize my fate and figure out how I was so lucky to be in a group of <1% of everyone who has MS in the world.
There is little to no real research on Tumefactive MS, therefore I care must be taken aggressively as these lesions are large and affect more damage.

So now I adapt to the new me. My neurologist says it is very likely it will take a year to recover and even get to remission….

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The MultipleSclerosis.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

Poll