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Karen MS story

I was diagnosed in 2008 at the age of 59.

I had been told that I had peripheral neuropathy for a few years, and finally a neurologist changed the diagnoses to MS. I had no new lesions, only old ones. To my knowledge, I never had an exacerbation.

I had a mysterious itching in my feet. It was terrible, nothing could relieve the itch. Went on for a long time.

I was given a 5 day infusion of solumedrol. It was terrible. My blood pressure shot sky high, as did my sugar. My bladder became overactive. I felt terrible. Still no new lesions.

On Copaxone, which I wish I could get off. Pseudo-symptoms… what’s up with them? Not real, but the pain is real.

Sometimes I think that I am losing my mind.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.


  • Lisa Emrich moderator
    6 years ago

    Thank you for sharing your story. I’ve done IVSM infusions on 7 different occasions. They can certainly be difficult. It’s encouraging that you haven’t developed any new lesions. Hopefully the Copaxone is working for you.

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