Living with MS: Perspective of a Sister

Where do I begin? My sister was diagnosed last year with MS, and this disease has turned both our worlds upside down. However, I think it has brought our family together. I have had to endure many changes in my life. From doing things for myself to completely giving up my life to care for her. I try to think of how she feels too. She used to work at a bank as a teller and is a college graduate. She’s only 29 years old. Now she can’t walk or feed herself. It’s been a rough few months. Her disease started with some weakness in her right hand and occasional falls. Then she broke up with her boyfriend and moved in with me. I gave up my bedroom so she could be comfortable. We all thought she was just going through a lot and would be better soon. We watched as she went from being independent to being totally dependent on me for her every need. I’m also a single mother to an amazing nine year old. He is a great motivator to my sister, but obviously we don’t want to put any pressure on him. It is stressful to me but I try and think of my sister more than I do of myself. People are always questioning me about why I don’t work anymore. Sometimes it upsets me but I understand that they could never understand. It’s a job caring for someone. Feeding them. Bathing them. Giving them their medicine. On top of all that, I have a child to raise by myself. At times, I have wanted to just burst into tears but I know what I have to do. I’m thinking of moving back in with my parents so my sister can have more support. I’m going back to work so I can save up for a home better suited for my sister’s needs. It’s a struggle everyday but It’s worth it. I know she will get better in time. I just have to be here for her everyday.

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Comments

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  • potter
    9 months ago

    Before you make any decisions about moving back with your parents you should probably discuss it with a heath care counseler and your parents. Caring for someone who needs that much attention can affect all of you. Your sister probably doesn’t want you to give up your life to take care of her. One of my aunts who had MS had to move to assisted living when she was 32 and lived happily there until she died. Potter

  • Christine F moderator
    10 months ago

    Hi @JerralynDWhite. Thank you so much for sharing here. I just want to say that you are an amazing sister and your sister is so lucky to have your love and support. Being a caregiver for a loved one with MS certainly can be challenging. This article discusses some of the challenges and tips for coping with them: https://multiplesclerosis.net/caregiver/challenges-being-caregiver/.

    We have a caregiver forum which you may like to check out. You can connect with other caregivers and see many questions and answers that have been posted there: https://multiplesclerosis.net/forum/caregivers/.

    Please don’t hesitate to reach out if you have any questions or concerns. We are happy to help in anyway we can and are here for you and your sister anytime. Thank you for being a part of the community!

    Best, Christine, Multiplesclerosis.net Team Member

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