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MS Medicine and Cancer

I was taking Gilenya last year and it “allows me” to get Cancer. I am in remission now but now have another scary problem, my MS doctor does not feel comfortable having me on any MS medicine because of the cancer risk for me. So I get an MRI every 6 months and pray for no new activity, because then I will have the chose a medicine. And no I am not one of those people who want to NOT take any medicine I have heard all the positive stories from people but I am not willing to do that. Soooo what medicine would you chose to take in my shoes and why? I cannot take Tysabri or that new medicine that just came out because in the warnings if you took a certain Chemo drug it increases your risk to getting certain types of cancer to like 50%. And of course I took that Chemo Drug so any advice would be greatly appreciated because I know this decision is coming soon. Thanks in advance

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Comments

  • Polifax
    2 years ago

    Hi Laura, I am sorry to hear of your struggle. It is challenging enough already to select a medication. I am assuming that advice or warning depends on the type of cancer. I have had Thyroid Cancer twice since being diagnosed with MS but I have never had any Neurologists bring that up as a concern, although I do think mine mentioned a risk for an increase in breast cancer with Ocrevus. Everyone’s journey is so different. I was not on any MS Medication for the first 11 years and was fine with that choice. My brother also has MS and has been on medication since his diagnosis. I have accumulated significant disabilities, he has not. I hope that you will find the right one for you.
    My Best Regards

  • Christina Hegarty PT, DPT moderator
    2 years ago

    Hi Laura73,
    I’m sorry to hear about what all you are going through! In addition to speaking with your doctor and any feedback you may get from the community, I wanted to share treatment medications with you including common side effects of each: https://multiplesclerosis.net/treatment/managing-the-disease-progression/. I hope this is helpful! Please keep us updated with how you’re doing if you’d like!
    Warmly,
    Christina, MultipleSclerosis.net Team

  • Laura73 author
    1 year ago

    Update: well it’s been almost a year and I have new symptoms but no new lesions that have shown on my MRI (maybe) (last MRI was at a new place and they could not compare it to anything). My MS doctor told me when I asked why his response was “You have MS” that’s what happens”. He still does not want me to take any medicine.

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