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New to MS

Hello!

I woke up one day in June of 2016 to zero mobility in my left leg. I have went through 4 MRI’S, had my blood tested for approximately 30 different things, AER, SER, VER, EEG, EMG, sleep apnea, and other tests. my ER doctor, my neurologist, and my general doctor all think I have MS. My neurologist said he has done all of the testing as a process of elimination before doing the spinal tap. all test have came back normal except for the fact that I am low on vitamin D and B12. I also suffer from arthritis, diabetes, and neuropathy among other things. I have many symptoms of MS which some are the same as other symptoms from other diseases. However I have a few symptoms that are only caused from MS. I am currently awaiting my insurance approval to do the spinal tap. Once the doctor is able to get the results from that test I will get a diagnosis. I am almost positive that it will show I have MS. I am scared at what all MS has in store for me. I don’t like the intestinal symptoms that I have dealt with thus far. And the brain fog is very frustrating at times. So I guess without going into too much detail… this is the start of my MS story.

Thank you for allowing me to share.

Please, feel free to comment and ask questions.

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Comments

  • wobbles
    3 years ago

    Liberating! I finally have a name for the antagonism that has plagued me for a decade (or so).

    For everything I have given up, lost, or ended attributed to this I am now motivated to replace with healthy things.

    Out with the old. In with the new. Happy New Year folks!

  • Julie
    3 years ago

    Oh the fun of getting a diagnosis. I was lucky in that I had a primary care Dr that pushed until they decided I have MS. When my spinal tap came back showing the O rings, it was final. That was 15 years ago. I still ask my neurologist occasionally if I really have MS lol. I think that’s normal, or as normal as we can be.

    The brain fog is frustrating. I put everything in my iPhone that I need to remember or do. Otherwise, forget about it. I will never remember. Do what you need to do. Just whatever works for you.

    I post here occasionally. I love reading the stories of what people are going thru and realize I’m not alone in this. Let us know how it all goes. Talking to other MS’ers is the best way to navigate this strange disease.

  • gma67 author
    3 years ago

    thank you so much for your reply. i am trying to do as much research as i can. i finally have a date set for my spinal tap. and then i wont know the results until a month and a half later. ugh! i just am so tired of waiting to find out a definite answer.

  • DonnaFA moderator
    3 years ago

    Hi gma67, we’re so glad you found us, and that you shared your story with us. We’ll be sending good wishes your way, and please know that we’re always here to share support and lend a friendly ear. There are a couple of articles that you may be interested in reading, to help you understand what is happening and what you might expect: Advice for the Newly Diagnosed from Someone who Cares and A Few Thoughts for the Newly Diagnosed. And of course, please don’t hesitate to reach out if you have questions or need support. You may also like to visit our Facebook page. -All Best, Donna (MultipleSclerosis.net team)

  • gma67 author
    3 years ago

    thank you very much for your reply and your help. is writing stories the same as starting a topic in forums? if not, then how do i write a new topic in forums?

  • DonnaFA moderator
    3 years ago

    Hi gma67, you’re most welcome, I’m happy to help!

    If you’d like to add a topic in the forum, just go to the board to which you’d like to add a topic. Scroll to the bottom of the page and you’ll see the form to add a topic. If you’d like to share a story with us, visit: Stories and click the gray text that says “Share your own story”.

    Thanks for being here! -All Best, Donna (MultipleSclerosis.net team)

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