Skip to Accessibility Tools Skip to Content Skip to Footer

My Sadness with MS

Hi. I was diagnosed with MS on October 31st 2008! I remember the time, 3:00 PM. The news hit me like I was hit by a bus I sat on the floor outside the hospital crying for hours.

MS feels like a lonely place whenever I feel tired or anxious no one can see it because all the symptoms are internal and so no one can physically see how you really feel. I feel like I spend every day lying saying I’m fine.

I miss being me the dancer who competed and danced 5-10 hours a day the person who went to yoga and pilates. I struggle with all of this and I had been dancing for 20 years.

I just feel sad like a part of me is now lost since having MS and wish there was a magic wand I could have that could bring me back to being me.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.


  • Erin Rush moderator
    11 months ago

    Hi cocochanel! I am sorry you are feeling disconnected from the you that you used to be, if that makes sense. It can be very challenging to reconcile a new and unwelcome normal when something like MS comes in and disrupts our lives so fully.

    I hope you have been able to find some new ways to be creative and active. Unfortunately, I know many of our community members can relate to what you shared. I hope you feel free to mourn the losses you have dealt with since your diagnosis. Here is just one of many personal stories about the mourning process that I thought you might find relatable — Thank you for sharing a piece of your story so openly and honestly. And, by the way, I do love your user name! Best, Erin, Team Member.

  • Poll