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Singin’ With MS

Hi Everyone. I am 70 years young. I was diagnosed with MS in 1982. The doctor thought it was a spinal tumor. Total saddle area numbness. Had MRI. Back to doctor one week later and he gave me the news. Mine is relapsing/remitting. Had had balance, numbness, and the pesky MS hug. The reason for my usual title for my story is I sing karaoke online. And sometimes when the hug is hugging me real tight, I can’t breath unless I lay down. So I feel so blessed that I have my computer right by my bed. And I can log into my karaoke site. I can sing and hear others sing. So that’s all I’ll write for now. So glad I found this site.

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Comments

  • PS98107
    2 years ago

    Welcome ZINGBECK. I am so glad to hear that you sing. Singing, playing and listening to music makes both hemispheres of the brain “talk to each other” or very active. Medical science used to believe our brain would develop and make new connections up until we became 18 and that development would stop at that point. The fact it it continues to make new connections and develop as long as we are alive. It is never to late to change the way things are to the way we want them to be as long as we have the will and grit to do so. My dad, an accomplished organist with cerebral palsy, and I, a musician that plays multiple instruments (not all at once 🙂 ) with MS, and others, are proof of this. The following 53 minute Youtube video called The Brain That Changes Itself, and these short videos will illustrate this http://www.king5.com/news/health/body/musician-with-ms-relearns-guitar-to-teach-others/140341078 , my dad playing the organ https://www.youtube.com/watch?v=fc_V877sYnE and my band called Axon made up up three musicians with MS and a drummer with cerebral palsy practicing a song. https://www.youtube.com/watch?v=bMrJ4a2ezqM. We can will the way we want things to be to the way things are. 🙂

  • PS98107
    2 years ago

    Oops! Here is the link to The Brain That Changes Itself https://www.youtube.com/watch?v=bFCOm1P_cQQ#password

  • fara
    2 years ago

    Love that you get enjoyment from online karaoke and appear to maintain your beautiful positive outlook! Reading what you posted made me feel positive too, obviously your happy spirit is somewhat infectious. Thank you.

  • ZINGBECK author
    2 years ago

    HI FARA…I DO TRY TO HAVE A POSITIVE OUT LOOK….MY BROTHER HAS A SAYING…IT’S NOT NEW….,BUT HE SAYS IT OFTEN…THERE’S A WAY THINGS ARE….AND A WAY WE’D LIKE THINGS TO BE…SO I SAY TO MYSELF…THIS IS WHAT IS…NOW…WHAT CAN I DO WITH IT…? THE MS HUG…WHICH I HAVE RIGHT NOW…IS NOT EASY TO LIVE WITH…BUT,,,SEEING I AM ALIVE I MUST LIVE WITH IT…I MAKE SURE I TAKE MY MEDS AT THE SAME TIMES …SO TO KEEP MY MUSCLE RELAXERS WORKING…I TRY TO KEEP COOL…THINKING ABOUT A COOL VEST FOR THIS SUMMER…HAVING MS…WE NEVER KNOW WHAT A NEW DAY WILL BRING….SO WHEN WE WAKE UP…AND FIND A NEW MS ISSUE TO DEAL WITH…GO AHEAD…TAKE A MOMENT…SAY…THIS IS THE LAST THING I NEEDED…THE FIRST THING THIS MORNING…THEN…HOW CAN I DEAL WITH THIS? KEEP SMILIN’…ZINGBECK

  • DonnaFA moderator
    2 years ago

    Hi ZINGBECK! We’re glad you found us! Thanks so much for being part of the community and sharing your story and enthusiasm with us! It’s awesome that you have found community that brings you joy. -Warmly, Donna (MultipleSclerosis.net team)

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