My story

I started having symptoms before age 10, but the doctors told me it was something else. Same by the time when I was 15. By the time I was 20, I was told that I didn’t have carpal tunnel syndrome, which I had been tenatively diagnosed with at 18.

I stopped trusting the medical profession and didn’t go back reporting weird symptoms until I was 29, when I had areas of numbness and strange vision problems. I saw a neurologist and was diagnosed with MS, based on my past medical history. This year marks my 15th anniversary of my diagnosis, but I’ve been dealing with the disease for more than 30 years. I’m 44. First I tried Betaseron in 1998, but I’m allergic. My neurologist had me try Copaxone, but I’m allergic to that too.

In 2000 I got pregnant with my third child. After his birth in 2001 I had a major attack, my neuro thought I should be on some kind of drug. I tried the injectables again, but I really am allergic to them.

In 2003 I went on Novantrone and had 9 out of the 12 maximum infusions, with the last one in 2006.

Since 2007 I’ve been taking Methotrexate off label since it is normally given to patients with rheumatoid arthritis.

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