Forums


Symptoms

Cognitive Dysfunction

  • By Sue

    Can we talk about memory issues? This seems to be my number 2 problem after balance. I am forgetting all kinds of things! I used to think it was my age (54, and just diagnosed with MS a few months ago), but apparently that and my balance worsened dramatically in the last year. So last night I forgot to close my car windows and my moonroof, and of course it rained! On Sunday I was trying to tell my daughter the names of some friends who had attended a ballgame with us and could only come up with random bits like the daughter’s name or the woman’s nickname. Conversations with my 18-year-old are often hilarious because she’s always prompting me to get the full story. I don’t always notice what I’m not remembering because, well, I don’t remember! Anyone else dealing with this? Is it MS or age (or both)?

    Reply Created with Sketch. reply
  • By Nick

    I have serious memory issues I forget all kinds of things from one moment to another. I used to be a good student, I could read anything quickly and could remember what I read. Not anymore, I am a spanish teacher in high school and am rapidly losing my ability to remember the words I want to use. It is frustrating but there does not seem to be anything I can do so I will just live with it

    Reply Created with Sketch. reply
  • By Anonymous

    One of the most frustrating, and to me at least, devastating symptoms I have is what I call “brain farts.” I am not minimizing the effects of cog fog, by referring to them using that term believe me.

    I have 2 bachelors degrees, one in English, and one in Journalism. I am not posting that to brag, I just love to write. But now, without spell check, I can’t remember how to spell anything. I constantly repeat myself, and have no short term memory!

    In addition, to that, the extreme fatigue gets my entire system out of whack. I lose at least one day a week. For example, I’ll think even though today is Sunday, I am convinced it’s Saturday. It is So frustrating! Thanks for letting me vent.

    Reply Created with Sketch. reply
    • By Velana

      Hi,

      I often have brain “farts”. It’s most frustrating trying to remember what I wanted to talk about and ending up just walking away. When I do remember I can’t seem to get my thoughts into language and then I forget what I wanted to say again! I also find that I seem to have developed a form of dyslexia. Common words like brain comes out as brian or the comes out as hte. I can’t remember names of people I work with or names of people I’ve known for years. So I do understand the frustration you feel

      Reply Created with Sketch. reply
  • By Suzanne n

    hi. I also have memory issues and my big problem is that I know what I want to say it won’t come out right. Not good being in a health care field! My coworker s are so used to it they know what I mean, thank God. So yes it’s very frustrating.

    Reply Created with Sketch. reply
  • By Janice

    It isn’t good that others have the cognitive problems but it is good to know that others go through the same frustration that I experience every day. I totally understand the term “I’ve lost my marbles!” Even if you can find one it doesn’t fill in the holes that are still there. Depression has always been something I have dealt with but now I fill like I am losing my mind and it makes me more depressed. I don’t like to be around people because I feel like I am stupid because I can’t remember things that I used to know. It would be nice to just be around people and laugh about the way things are happening in our brains. It is very hard to think positively about MS when you can’t remember anything to be positive about.

    Reply Created with Sketch. reply
    • By Kelly McNamara Keymaster

      Hi Janice. Thanks for sharing your experience and for being a part of our community! So sorry to hear everything you’re experiencing. Cognitive symptoms are always so frustrating. Whenever you need support or feel like laughing you’re always welcome to share here. Wishing you the best. – Kelly, Community Manager

      Reply Created with Sketch. reply
  • By dianne

    I struggle with the same memory issues as y’all. what irritates me is when my non-MS friends and family blow me off and say “oh, I can’t remember anything either.” People always trying to compare. I know they are trying to make me feel better, but still it frustrates me.

    Reply Created with Sketch. reply
  • By Janice

    I have to agree that I think non-MS people and family make it more frustrating because they think they can say something that will make it better or have you do something that will make it better. The one statement that I hate the most is “that happens to everybody when they get old!” I guess I can just tell every one that I am just a crazy old lady and maybe that will be accepted.

    Reply Created with Sketch. reply
  • By Olivia Walker

    I have been struggling with my short term memory also. I am 48 and have always been responsible for paying our household expenses,the other day when I was doing bills I made several mistakes. Looking back through the ledger I found several more mistakes. I have also found I am having difficulty remembering names of people and also things. I forget what I am saying in the middle of a conversation. This is so frustrating but also scary,what is happening to me and my brain?

    Reply Created with Sketch. reply
  • By DarlaKaye

    I have memory issues too. One of the most frustrating things for me is my inability to remember how to get to places I have been to many times before – like my Doctor’s office. Thankfully I have a smartphone with a good navigation program. I use it all the time! I also have problems with buying stamps at the grocery store. I write stamps in big letters at the top of my grocery list and I usually remember that I want to get them when I get in line but I am done with my list so I put it away. By the time I get to the front of the line, I have completely forgotten and I generally get back home before I realize I forgot to buy stamps. I’ve done this 3 weeks in a row before finally remembering to buy stamps. Now, I put a post-it right on my card that says STAMPS so I can’t pay without seeing it. Cognitive issues are the worst part of my MS experience. I have mitigation strategies but even coming up with strategies to work around the memory issues is a challenge. I don’t generally come up with good strategies on my own anymore – my husband helps think up good ideas for me although the smartphone navigation and the post-it note on my card were both my ideas.

    Reply Created with Sketch. reply
    • By Lisa Emrich Moderator

      Hi DarlaKaye,

      The cognitive issues can definitely be a problem. Working with a skill neuropsychologist or similar expert to learn different techniques for dealing with specific deficiencies can be very helpful. I do really like your final solution to the stamps issues. Putting a stickie on your credit card, the last thing you’ll have to use while in line, was brilliant thinking. Good for you!

      Best, Lisa

      Reply Created with Sketch. reply