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Lemtrada

  • By patv

    I just started the paperwork for lemtrada. Also stopped tysabri after about 8 or 9 years. NERVOUS. FfFOUND AN EVENT, MAY 13TH 2016, IN KING OF PRUSSIA, signed up for it and never heard a thing and now I can’t remember where I found it. Does anyone know about it or have any information they would like to share with me about lemtrada. Pat

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  • By Erin Rush Moderator

    Hi patv! Thanks for your question. We have a fair amount of information on this site about Lemtrada. Here is an article from one of our contributors that covers a lot of information about the medication — https://multiplesclerosis.net/living-with-ms/lemtrada-some-facts/. And here’s some information on safety and side effects — https://multiplesclerosis.net/treatment/lemtrada-alemtuzumab/lemtrada-safety-side-effects/. I hope this information is helpful! Like any medication, some individuals have responded better to Lemtrada than others. Every person is different and reacts differently to medications. I hope you find more information on the event on the 13th and are able to go! Thanks, Erin, MultipleSclerosis.net Team Member.

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  • By manda30

    It’s been a while since you posted how was/is lemtrada? My doctor was talking about starting me on it if the gilenya doesn’t show significant improvement but she said it was like chemo and I’m a little scared

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    • By Erin Rush Moderator

      Hi manda30! I wanted to share some information about Lemtrada with you from our community members. While every person reacts differently to treatment, I thought these perspectives might help you as you consider Lemtrada. Here is the first one, from one of our community members. It is a few years old, but I thought the information was very helpful and detailed — https://multiplesclerosis.net/stories/my-experience-on-lemtrada/. And here is a more recent piece by one of our contributors — https://multiplesclerosis.net/living-with-ms/not-all-snowflakes-are-the-same/. The author is great about just laying it out there and not sugarcoating things, which I find helpful. I hope this information is useful for you. Best of luck and thanks for reaching out. Best, Erin, MultipleSclerosis.net Team Member.

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