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Men with MS

  • By David

    A lot of the comments are posted by women. I know that MS attacks women for the most part. There are us men who also have male-specific problems. I’m wanting to open a discussion with the hopes of addressing Men and MS problems. I was diagnosed in 2007 with RRMS and am now SPMS. Any comments out there men or women? Thanks for this forum.

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  • By Kim Dolce Moderator

    Hello David, thank you for posting! So true that MS affects more women than men and that women dominate the conversation. Here’s a link to an article of mine about the ways MS affects men in contrast to women: https://multiplesclerosis.net/?s=MS+and+the+Manly+Man

    You can also find articles by our male contributors about how they experience MS. Just click on “Menu” at the top of this page, then “Community” and “Contributors.” There you can click on the bios of Devin Garlit, MattG, et. al, where there is another link that takes you to a list of all their articles.

    I hope other readers will respond to your post very soon, David! –Kim, moderator

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    • By David

      Thanks Kim. I will check out your entry. I have been following Devin for some time now. He certainly is relevant. Often I think he is writing about me. So far, I have been very blessed. They started me on Rebif early on. I was on it for 2 years and then my grant ran out and did nothing with my MS. Finally got connected with the VA. They just started a new program, the MS,VET. I was accepted into the program. I started on Avonex 9 months ago and am doing much better. The recent two MRIs have shown no new lesions. David

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  • By Kim Dolce Moderator

    David, that’s so great that the VA has a new MS treatment program! I’ve heard from veterans in the past that had unhappy experiences there, so this sounds like a huge step forward. I’m so glad you’re doing much better and that your MRIs show no new activity since being on Avonex. Hope things will continue that way! Please keep us updated, we care. Warmly, Kim, moderator

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    • By David

      My history with the VA in the beginning, years ago, was terrible. Any appointment was an all-day event. I gave up and began using my insurance and out-of-pocket payment. When the VA sent me a letter regarding the MS VET program I was very skeptical. I went and was hugely surprised. The MS program was a full smorgasbord of help. They tested me, they examined me, they provided me with all my medications. I was seen in psychiatry, physical therapy and even for chronic pain. Usually, they see me within 5-10 minutes. There were signs everywhere at the check-in desks that say, “If you have waited more than 15 minutes please check with us again so that we can see why you are still waiting.” I have nothing but the best to say about how I have been treated over the last year and a half. There is such a massive change in everything. I recommend people to try it again. David

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    • By Kim Dolce Moderator

      David, would you consider writing about this in our Stories section? This change in the VA treatment program is so important to so many, I’d like to think of ways to get the information out there. Your posts about this are a revelation! If you have any suggestions/ideas for getting the word out, that would be fabulous. –Kim, moderator

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  • By David

    I would be happy to write about my experiences with the new VA program. I am a writer and am a photo journalist. I was the editor of three college campus newspapers back in the day. Do you want me to write here or under somewhere else and submit it? Just let me know. Sorry to not get back to you sooner. I live in a blended family and the accompanying chaos that goes with it. I didn’t know until today that there was an inbox. I found a number of messages and am just now trying to catch up with all of them. I will check more often. Thank you. David

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  • By DonnaFA Moderator

    Hi David!

    Kim was referring to our Stories section. Just click on the blue “submit your story” button under the header.

    Thanks for your generosity in sharing your story! We can’t wait to read it! -Warmly, Donna (MultipleSclerosis.net team)

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