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MS HUG & ABDOMINAL DISTENTION

  • By VickiW

    I am a fairly new diagnosis — less than 18 months.

    Almost daily I am “hugged”. As the day progresses the tightness gets worse and the distention makes me look like I’m about to deliver triplets!

    Has anyone experienced abdominal tightness and distention?

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  • By Akwjules

    Omg! Mine is in my stomach and back, with pain in my lower back and pain and sometimes on the right lower abdomen. Also a time it “catches” and turns into a full blow muscle cramp! I thought it was something to do with my kidney. I just thought I was fat or bloated! Mine comes and goes, but this I’ve had now for almost a month now… Seeing my neurologist next month. I look forward to talking to you. I just joined and don’t know how to add my pic yet..,

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  • By B.L.

    YES!!!! While, I Also have endometriosis ; I’ve had a total hysto , however mine never went away, when I begin to feel a flare come on and the “HUG” starts to feel like it’s crushing my ribs , I suddenly look like I am about 6 months pregnant; what’s amazing is that it can happen within 5 to 10 minutes! It is SO painful! You are NOT alone in this. I also have ISBD, and diverticululosis, which means I have had to learn by trial and error what works for me; but I am at my best when I stay away from heavy dairy, raw vegetables, nuts and seeds. Of course, everyone’s body is different; but I also find that I have less of a HUG when I eat as gluten free as possible . It may not not work for you, but I learned that eating low fiber and gluten free helped me out ALOT! Hopefully, I’ve said one thing that can help you.

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  • By Erin Rush Moderator

    Thank so much for sharing, Bentley! I hadn’t considered the gluten-free option, but it makes sense and could very well help other community members. Thanks again for sharing! Best, Erin, MultipleSclerosis.net Team Member.

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  • By djmyers725

    I have the exact same thing. My doc put me on gabbapentan & also a muscle relaxer and it helps with the hug & the abdominal bloat. I am having an upper GI done to make sure it isn’t my stomach, but it’s probably from the spinal lesion’s location.

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  • By ecobb27

    I have a lot of abdominal discomfort and heartburn as well. i don’t know what is what anymore. Is it a symptom of my ms, do i have an upset stomach, am I gaining weight from the medicine. I am so confused. My stomach also looks like I am pregnant at times with cramping and bloating all of a sudden. Is there something to help alleviate this.

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  • By MommaCin

    So, forgive me, I am not diagnosed yet, waiting to see a second neurologist…first one said I was depressed..

    I am currently being treated for what the CNP thinks could be diverticulitis, I had an ultra sound done of my kidneys, shows urine backing up, (hydrophonesis) ct scan showed everything is normal, gall bladder, pancreas, liver, kidneys.
    But the pain in my kidney area(both sides) is awful at times, my belly bloats up like I’m 7 months pregnant, it feels so tight and hard. I have horrid, what I call a gas bubble that does not move at all, this will last hours, I can’t even really walk when it does this…I am mostly gluten-free, I started that 2 yrs ago, before anyone even mentioned MS, oddly I’m getting to have problems with even the gluten-free foods. I can’t do nuts or dairy. I recently, WELL DUH!, realized my greek yogurt is actually milk, no wonder it set me off all the time! CNP is having me try a probiotic…

    Is this what everyone is calling a hug?

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  • By Erin Rush Moderator

    Hi MommaCin! I am sorry you are experiencing this issue. While many folks describe “the hug” in a variety of ways, your “hug” sounds much like the descriptions shared above. It is not unusual for people with MS to also experience various digestive issues. I thought you might find this article on digestive problems and MS interesting — https://multiplesclerosis.net/living-with-ms/surviving-head-butt-ms-patients-adventures-digestive-care/. It’s good that you are being so proactive and trying to get to the root cause of your digestive issues. Keep advocating for your health! I hope you get some definitive answers AND potential solutions very soon. And good luck with the probiotic! Please feel free to come back and update the community, if you feel comfortable doing so. Thanks for sharing! Best, Erin, MultipleSclerosis.net Team Member.

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