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Numbness and pins and needle feeling

  • By sadieschafer

    Hello everyone, I am new hear and have had ms for a while, but chose not to take meds for it as of now. I am currently having a flare up I believe and was prescribed a three day dose of steroids and also gabapentin , I am wondering if anyone has had experience with these, or can tell me your experience with how long the numbness feeling has lasted. I have never had this before, and it’s a little scary. I cannot get into a neurologist until next months- so just trying to get some support in the mean time. Thank you!

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  • By Thomas Bellas

    I have pins and needles the entire day, every day. My feet, legs are the worst of it, but it spreads to my arms, hands, face and so on. Though as I said, the feet and legs are constant, for years. I also have numbness, my feet are always. It does spread up to other parts of my body. Its just a joy. (sarcasm).

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    • By Meagan Heidelberg Moderator

      Hi Thomas,
      Thank you for sharing your experience with us and our community. You’re not alone! If any new or worsening symptoms, we like to encourage our community members to speak with their physician or health team. We appreciate you being a part of our community.
      Meagan, MultipleSclerosis.net Team Member

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  • By Erin Rush Moderator

    Hi sadieschafer and I am so sorry for the delayed response on our part. Numbness and/or tingling is a symptom that many people with MS may experience. While it can be very disconcerting, it seems like you and your physician are pursing appropriate treatment for the issue. Here is some information on numbess and tingling that you might find helpful — https://multiplesclerosis.net/symptoms/numbness-tingling/. I hope that by now, you are feeling better! As I shared above, these symptoms are fairly common MS symptoms, so many of our members can relate to what you are experiencing. You might find this article on tingling and numbness relatable — https://multiplesclerosis.net/living-with-ms/body-all-a-buzz/comment-page-1/#comments. If you haven’t already, you can also check out our Facebook community – https://www.facebook.com/MultipleSclerosisDotNet/. I hope you are able to get into a neurologist very soon! Please feel free to update us on how you are doing, should you feel comfortable doing so. Best, Erin, MultipleSclerosis.net Team Member.

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  • By Andsea

    Hi my name is Andre I was newly diagnosed with relapsing ms fri it’s all overwhelming to me my symptoms have progressed a lot no one cought it been going to doc for 3 years and it was finally spotted but it’s so far into it they looked at my MRI results and admitted me was released sun cant get in to see specialist till August 3rd i see my pcp fri I’m still in shock but trying to except it..

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  • By bknurs32

    Hi Andre sorry to hear you are having a tough time. Getting your diagnosis is bad but also a relief for most since we all have know something wasn’t right. I think after having been diagnosed for over 15 years now my best advice to you is first try to relax and then learn. Once you have an official diagnosis from your doctor and go to the neurologist it may not move real quickly. however august seems like a long time. maybe ask your PCP if they can contact neurologist and see if their are any test that you can have done prior to your visit to help get things moving. back to what i said about learn. You need to spend some time reading from legitimate websites like this one about MS and its treatments prior to seeing the neurologist. I will help you to make more informed decisions about medication options. If you have health insurance you can contact your member services and see what information and resources are available thru them as well. good luck to you

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  • By Carol

    I have been going through a flare up. I finally called the neurologist, who then wanted me to call and get an appointment the next day. That would have been Friday and I had too much going on that day to jump into a taxi to get down to their office. Of course, now it is really bothering me like crazy. The feet and legs are either feeling frozen or all prickly. So, now I am really unhappy that I didn’t go ahead and go on Friday.

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    • By Meagan Heidelberg Moderator

      Hi Carol –
      We are so sorry to hear that you’re going through a flare. With any worsening symptoms – we like to encourage our members to speak with their physician or health team (which it looks like you did). Have you attempted reaching out again to see about getting another appointment? Hoping you can get one quickly.
      Best – Meagan, MultipleSclerosis.net Team Member

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  • By Yoshitail9

    Hello all my MS friends. I was diagnosed in the spring of 1979 and have experienced pins and needles 24/7 for EVERY day since then. That makes a total of approximately 14,000 days.
    It is just something I have learned to live with and accept though mot very happy about as it has cheated me out of so much. The last 6 months have gotten a bit worse and have had to resort to my cane. I can still feel the gas pedal and brake so am able to drive my car. Tried gabapentin without luck so just keep soldiering on. It’s been so long now that if it stopped I would probably miss it (sarcasm). Thinking of legally changing my name to Pin Cushion !
    In the movie Happy Feet you were nobody unless you could sing but we are all somebody So bang out some tingly tunes and hang in there.

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    • By Erin Rush Moderator

      Thank you for sharing, Yoshitail9! I am sorry you deal with that pins and needles feeling all the time. I know that must be very frustrating! I hope your medical team may have some new treatments you can try in the future. Thank you for sharing your wit and humor with the community! Best, Erin, MultipleSclerosis.net Team Member.

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    • By 4gracie4

      Hello all, the original reason I we t to see my neurologist was one morning out of nowhere i woke up with that pins and needles in my feet,mostly on the soles of my feet…I describe it to people as walking on the beach with socks on. After the usual tests…spinal tap and all…i was diagnosed with RRMS. the specific treatment at the time was mega gabapentin.. think I started at 3000mg day. It continued to get a little worse so my Doc raised my dose to 4200 mg a day…that stopped working, so he prescribed Lyraca…thought that was a miracle drug for this…but alas that stopped working after a week…so I am back to 4200mg of gabby…..it only maintains my pins and needles… never really think about it unless i’m telling someone about it as mentioned mine is also 24/7..doesn’t matter if i’m standing,walking,laying or sitting…the sensation is present…With acceptance this is the way it’s going to be…my greatest fear is if I go off any of my MS meds is what would happen? I’ll stick with all meds and I completely trust my neuro….hope this helps!.

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